Restless Legs Syndrome (RLS) Discussion Board

Danny, spinal problems can cause secondary RLS. Since opioids help primary RLS, as Jumpy noted, it might be something do to with the secondary RLS that is causing problems. Many of us with primary RLS are so grateful for the opioids as they are the one thing we can count one working. That said, I do...

Whoo-hoo! Isn't traveling fun? I love flight specials Oh, yeah, except for the RLS part . Nadia, I wish you an RLS free flight or at least lots of leg room, walking room and some good drugs.

Ann

Questions: - Is any of this typical of the initial onset of RLS? I know everyone is uncomfortable if they sit still long enough, everyone needs to move now and then, and so on. Seems like a lot of folks here have terrible, terrible symptoms involving outright pain and sleep deprivation. I'm in disc...

mendel, you might want to look in the Pharmacuetical Therapies section - here's one but I bet there are more. There is a pretty good search function on the site. m This post in General Topics startedabout pain, but ended up being about withdrawal from klonopin (mine and it was very hard): m There ar...

Becki, the food elimination is easier than it sounds. Mu sister and I made excuses for weeks before we did it. We thought we'd only give up a couple things at a time, then we thought we'd do half. In the end, we just went out and bought replacements for dairy and wheat, used no-sugar-added jam and a...

Replies to this post in two other places - General topics and New to RLS.

This post was also answered in General topics.

Becki, if I wrote about my experience with the dopamine agonists along with 1000 other users, you'd think I'd taken a different drug! At low dosages, this drug destroyed my life in a way, yet it helps the vast majority of RLS users. If you tried it two separate times with the same results, IMHO I wo...

Trina, too tired to offer much, but please try here first: m m Please, please read some of these articles. They'll get you the best info you can about your RLS, the current durgs, used, etc. RLShelp.org is the first one to go to; read about the meds. Maybe your doc isn't up to date. Also read the al...

Hi Scared Mom, I can tell how scared you are. Just so you know, we always check the posts - you can safely post just once and we'll find it! We're good at that . Since this is all volunteer, sometimes it may take a few hours before someone stops by, though, to see it. But there are a core of very de...

Thank you for managing to get the board back up and get the saved messages. We appreciate taking your time to do this on the weekend. This board is one of the most active RLS boards and has come to mean a lot to many people, especially during the times when RLS is uncontrolled and a major problem. T...

Joelle, there have been several discussions about arms and RLS. Not sure where, but maybe General Topics? Short answer - yes and some people have is all over. If you search on Arms in the subject, I'm sure you'll find some of the past threads. Welcome to the board! Glad you have a name for this - it...

Meagan, I take methadone. Studies show that it can be taken for RLS with much lower risk of tolerance, dependence and addiction. If she only takes it at night, shouldn't be a problem. Some progressive doctors think that taking a 'drug holiday' from potentially problematice drugs can prevent problems...

Sara, well put. I also have mixed feelings about this. I do believe the commercials are US nationwide. People on at least three different message boards, including ours, posted that they saw the commercials, and they have all been from different parts of the US. I am so grateful that more people now...

GentleHugs, that is too cool! I love coincidences like that. You've come to the right place to find out more. Lots of information here. Links to good sites, good people, encouragement, commiseration, etc. Just one thought: many of us find that smaller amounts of two drugs in combination are better t...