Restless Legs Syndrome (RLS) Discussion Board

Hi majorward, and welcome to the site. You are having one long, continuous hell of a terrible time! I read your description of waking up with the electrical jolt as you were tipping over from falling asleep standing up, and felt my gut twist in horrified recognition. I was only in that state for wee...

I'm one of the people who can exercise strenuously regularly and have no ill effect on my WED. In fact, if I reduce the amount I exercise, maybe it gets worse (or maybe that was just coincidence). I think what Ann said about change applies to most of us: if we change the amount or timing of our exer...

veldon7: it may be hard to do, given the condition you're in, but you absolutely need a new doctor, and it will be well worth the effort to find a new one. That is, if you're sure your current doctor knows about the opioid solution for RLS and just refuses to try it. deb: probably this is not the an...

Wonderful information about rotigotine! It's nice to have someone who has used it on here talking about it.

hee hee same book, Ann

wow, Amy, your Mom's in a bad way right now and thank you for trying to help her out! The reason you don't see a lot of success stories on here is that they're buried - we spend a lot more time on the problems than the solutions, for the very human reason that once the problem is solved, we find we ...

I suspect I was posting at the same time you were! IF your ferritin is indeed low, an oral iron supplement works for many people. I take two 300 mg pills of ferrous sulfate daily. Some of us with WED consume our iron stores , for unknown reasons. Non-WED people with anemia need only supplement until...

Hi, and welcome! I have nothing to add but I am interested in your answers to Views' and pb's questions. especially whether you fit the four criteria. I suspect you will, because the Mirapex had such a dramatic effect on you; that's actually a supporting criterion: if a dopamine agonist (a drug of t...

Indeed. That gap in the middle is natural. Who knew!

sometimes, people are amazing.

Thought some of you might find this interesting. Apparently, before artificial light, humans slept from dusk til midnight, then woke for an hour or so of contemplation, study, sex, whatever, then slept again til daybreak. These two stages were called the first and second sleeps, in various languages...

I like this so much:

hazel wrote:It is easy to be nonchalant when the monster is caged by medication, it is easy to cry out for help when the monster is loose...

Montplaisir is a good idea, if all else fails. I was on the verge of trying him just before I finally got in to see Dr. Pawluk in Edmonton. Monplaisir is at a hospital in Montreal with Sacre Coeur (sacred heart) in the name. He has a slew of researchers working under him, I don't know how big his cl...

I gave one of my doctors a copy of Clinical Management of Restless Legs Syndrome. He was reluctant to take it at first (probably thinking he could better afford it than I ) until I explained that I had ordered an extra copy specifically for that purpose. that the better educated he was about it, the...

Hi legsakimbo I can understand your reluctance to plunge into taking medication. there are a lot of drawbacks. A lot of us are forced into taking meds by simply being unable to bear life as it is anymore. Like polar bear, it took me years to find the 'right' mix - in fact, I'm still working on it, I...