Search found 23 matches

by mutsy67
Thu Jun 24, 2010 11:27 pm
Forum: General Topics: RLS
Topic: What do you think about Sinemet?
Replies: 8
Views: 810

I agree with Zach.
by mutsy67
Thu Jun 24, 2010 11:26 pm
Forum: General Topics: RLS
Topic: is it all RLS?
Replies: 19
Views: 1978

Two years ago I was DX with Hashimoto's Thyroiditis and the ENT that did the surgery to remove the thyroid said that "No one gets just one autoimmune disease." And I believe him! I think I'm up to eight different DX now and they're still checking on some of the symptoms - so there may be m...
by mutsy67
Wed Jun 23, 2010 2:59 pm
Forum: General Topics: RLS
Topic: is it all RLS?
Replies: 19
Views: 1978

Betty - I hear you! I often agonize over which doctor to call. Is this pain for the neuro, the rheumy, my pcp, ENT, etc. I never know and sometimes the doctors don't either and they tell me to go to a different one and that one says to go back to the first one .... ARGH! The other things that I forg...
by mutsy67
Wed Jun 23, 2010 2:46 pm
Forum: General Topics: RLS
Topic: Weaning off Klonopin
Replies: 15
Views: 2838

Heather, I was on Klonopin for many, many years when a doctor told me that once you are on Klonopin you are always on Klonopin. And that got me thinking and I decided to stop. Klonopin has a very long 1/2 life - about 4 days. So I actually felt okay for the first three days and on day four I couldn'...
by mutsy67
Wed Jun 23, 2010 12:37 am
Forum: General Topics: RLS
Topic: What do you think about Sinemet?
Replies: 8
Views: 810

I was on it eons ago - before Requip and Mirapex became available and there just weren't many treatment options. I did augment on it but it served its purpose at the time. I don't think it makes any sense any more though. Just my two cents!
Shari
by mutsy67
Wed Jun 23, 2010 12:36 am
Forum: General Topics: RLS
Topic: is it all RLS?
Replies: 19
Views: 1978

The one item that distinguished RP from GCA/TA was that my ear was sore. I didn't even want to mention it cuz, seriously - a sore ear?? What a wimpy thing to complain about, right? But I gave them the whole kitchen sink and that was finally the determination. Unfortunately they haven't been able to ...
by mutsy67
Mon Jun 21, 2010 8:54 pm
Forum: General Topics: RLS
Topic: is it all RLS?
Replies: 19
Views: 1978

Hi Everyone thanks for your responses. Polar Bear: They thought I had GCA (or TA) and did a whole slew of tests (twice) and even a Temporal Artery biopsy. It turns out that in addition to the other autoimmunes I also have Relapsing Polychondritis. I started on 60mg of Prednisone and spent over a yea...
by mutsy67
Sat Jun 19, 2010 11:31 pm
Forum: General Topics: RLS
Topic: is it all RLS?
Replies: 19
Views: 1978

is it all RLS?

Hello, I am a long-time sufferer of RLS but new to the discussion. I am almost 50 and have had RLS since at least my teen years. Early on it was occasional and it came to live with me permanently in my early 30s. I have many autoimmune DX so I take a boat load of medications. But Requip is my mainst...