Search found 42 matches

by jml945
Tue Jan 27, 2009 8:07 pm
Forum: Just Joined?
Topic: RLS Pain, where do you get it?
Replies: 7
Views: 1567

The funny thing is I always knew the pain and weird feelings were always there. What I didn't realize is how much I move my legs around. When I started to realize this I saw that I am constantly twitching my legs all throughout the day and night... it's been a revelation to say the least.
by jml945
Tue Jan 27, 2009 7:52 pm
Forum: Just Joined?
Topic: RLS Pain, where do you get it?
Replies: 7
Views: 1567

Do you get a strange burning/tingling sensation that is hard to describe? My legs feel so uncomfortable for probably at least half of the day. I usually get some minor relief in the morning just after waking up but my pain kicks in around noon most days, especially while at work where I sit at a des...
by jml945
Tue Jan 27, 2009 7:43 pm
Forum: Prescription Medications
Topic: Mirapex, does it work?
Replies: 41
Views: 8875

Was it you who said you have RLS and MS? Can RLS be an MS symptom? For many years I feared that I had MS even though all the tests came back normal.
by jml945
Tue Jan 27, 2009 7:36 pm
Forum: Just Joined?
Topic: RLS Pain, where do you get it?
Replies: 7
Views: 1567

RLS Pain, where do you get it?

I get my RLS pain in my thighs, right above my knees. Occassionally I get it in my calves as well but 90% of the time it's in my thighs. I also get similar feelings in my arms and shoulders. Is all this indicative of RLS?
by jml945
Tue Jan 27, 2009 7:30 pm
Forum: Just Joined?
Topic: Newly DX with RLS
Replies: 8
Views: 1341

I think I need to keep a log to track my progress because I just can't say if it's been better or worse lately. I just have no idea.
by jml945
Tue Jan 27, 2009 7:25 pm
Forum: Prescription Medications
Topic: Mirapex, does it work?
Replies: 41
Views: 8875

I am not upset that this threat got "hijacked", because I find the discussions informative regardless if they are about me or not. I'm just very glad I found this place, it feels like I have had a ton of bricks lifted off my shoulders. As to the Mirapex, I just have no idea if it works or ...
by jml945
Sun Jan 25, 2009 8:47 pm
Forum: Prescription Medications
Topic: Mirapex, does it work?
Replies: 41
Views: 8875

One thing I have noticed since first taking mirapex is that while the pain and abnormal sensations in my legs have shown some slight improvement, I still have the uncontrollable need to move my legs constantly. In fact, that has gotten even worse, and my sleep has been worse lately. Is this a case w...
by jml945
Fri Jan 23, 2009 10:52 pm
Forum: Prescription Medications
Topic: Mirapex, does it work?
Replies: 41
Views: 8875

Thanks for the response. I think I need a dosage increase on my mirapex, but we shall see. I have heard that even drugs like mirapex don't work for some people and they need to take painkillers such as methadone. Is that true?
by jml945
Fri Jan 23, 2009 9:55 pm
Forum: Just Joined?
Topic: Newly DX with RLS
Replies: 8
Views: 1341

Thanks so much for your reply. I found it quite helpful. I meet all four of those criteria you listed without a doubt. Furthermore, my doctor has told me he is pretty sure I have RLS,(or possible fibromyalgia) and I really trust him. Another question, does it ever just go away? I have had this for t...
by jml945
Fri Jan 23, 2009 8:52 pm
Forum: Just Joined?
Topic: Newly DX with RLS
Replies: 8
Views: 1341

.

By the way, I can't say enough about how glad I am to finally get a dx. It all really makes sense now, for a long time I thought I had something that no one else had, or that I had MS or soemthing worse. I have been through many years or frustration, I wish I could get into it but just don't have th...
by jml945
Fri Jan 23, 2009 8:49 pm
Forum: Prescription Medications
Topic: Mirapex, does it work?
Replies: 41
Views: 8875

Mirapex, does it work?

I got a px for Mirapex (.25mg) and been taking it about a week. I've had some slight improvement but nothing major. Still get pain in my legs later in the day. I take it at night and sleep ok and feel pretty good in the mornings. Should I ask to have my doc up the dosage so I can take two, one at ni...
by jml945
Fri Jan 23, 2009 8:47 pm
Forum: Just Joined?
Topic: Newly DX with RLS
Replies: 8
Views: 1341

Newly DX with RLS

I am new to RLS. I have constant pain during the day from what a doctor said is probably RLS. For a long time I have suffered from intense uncomfortable feeling in my limbs, mostly in my legs, that seems to be alleviated when I walk. It gets worse throughout the day and at times can be very severe. ...