Restless Legs Syndrome (RLS) Discussion Board

Thanks everyone, nice hearing from you. Even though the WED/RLS is doing some better with the Mirapex, the pain level is bad. I am in pain almost all the time. Sometimes not as bad as others but it is always there. Very hard for me to do anything. Thankful for my doctor who, at least, will prescribe...

Hi Everyone: I haven't been around for a while. The WED/RLS is doing better with the Mirapex but still have problems with it. But now arthritis, fibromyalgia, and a multitude of other health problems on top of the WED/RLS has got me down. I seldom go anywhere, unless I absolutely have too. Reading y...

Beth: Thanks for the advice. I do some of the things you suggested. I do do things liike go to lunch, get groceries, I also go to religious meetings. I have always been very active in my religion, less so now. But do what I can. But doing all these things, even once in a while, is very difficult. Ge...

Wonderfully written. Thank you, and so true, no one can understand unless they experience it themselves. Thats why, when I stumbled on this site, it was the first time I heard from people that understood exactly where I was coming from.

BETTY/WV

I totally agree with this. I have had WED/RLS for decades and each year it gets worse. I have had a heart attack, 11 years after that had another stent in my heart. I have fibro, really bad. And arthritis, both types. I haven't slept for more than 3 hours at time for years. I could go on and on but ...

Thanks for the information about the book. I'll check Amazon.com. That is where I usually get my books. I got the results from my bone scan, negative. No bone cancer etc. And my sed rate dropped from 58 to 49. i really think it is the arthritis, fibro and WED. Thats enough to give anyone pain. Plus ...

Thanks Mary, I only sleep 2 or 3 hours at a time also. I don't know if this is because of pain or what. Of course, as we age we don't sleep well. Even people with out WED/RLS don't sleep well. I have never heard of kratom. I will do some research on it. Thanks for your email.......Wish you peace and...

I have tried neurontin and it did nothing for me, so the doctor took me off it....Sometimes I would just like to SCREAM. I'm 77 and I am tired of dealing with this. And no one realizes what I'm dealing with. I think mainly the pain is fibro and arthritis. I've been diagnosed with both. But I certain...

Hi Beth: I think the doctor has taken the right path. I think once he gets all the results of these tests he has scheduled, then he will go from there. He has suggested changing my Mirapex. Only thing is the Neupro Patch and Horizant have the same side effects as Mirapex. "One Day At a Time&quo...

Thank you, aveerik; I was a little anxious about having the bone scan done, as I have to lie very still for about an hour as a camera goes over my body. It would be impossible for me to lie still that long. As anyone with WED/RLS would know. So I called the doctor (you wouldn't think I would have to...

0.25 mg twice a day and I did tell him about the compulsions. He has had a sonagram done checking for a blood clot in my leg (where I have pain). Did blood work. Sed rate was high---58 --should have been below 30. Has rechecked the sed rate, don't have results yet. Also I am having a whole body bone...

Robin: As to asking the Dr. for samples. I don't know where you live, I am here in West Virginia, USA. I used to always get samples from my doctors when I could. I don't know why but it is now hard to get samples... The doctors don't seem to have them as much as they used too. Also, when I used to g...

I'm so appreciative of your posts. Yes, I have 2 of Dr. B's books plus a couple other books on WED/RLS. That was a good idea, Ann, about creating a goal for my Dr.'s appt. Really my problem isn't just the WED/RLS, since I have multiple ailments, arthritis, fibro., heart, high blood pressure, high ch...

No, I don't take anyone with me. My husband will take me but I don't want him to go into the examining room with me. I don't want him there when they weigh me. LOL as if he didn't know how fat I am. And he doesn't understand my condition anyway. I alway make notes also, so I won't forget anything. S...

Thanks Beth: I am experiencing compulsive behaviors, and I think the weight gain may be due to compulsive overeating. I have taken neurontin before and after checking with my pharmacy, Horizant is a long acting neurontin and the neurontin didn't help when I took it. The co pay for the Neupro Patch i...