Search found 64 matches

by Caitrin
Sat Oct 06, 2018 6:16 pm
Forum: General Topics: RLS
Topic: refractory rls and psoriasis relationship
Replies: 7
Views: 1739

refractory rls and psoriasis relationship

I would like to know if anyone with refractory RLS has experienced psoriasis or other neuro dermatological conditions. Interestingly I developed this condition a year ago and it has worsened. I also have a swollen, painful right ankle and doctor says it is arthritis. I had Reiter's syndrome when I w...
by Caitrin
Tue Sep 18, 2018 6:34 pm
Forum: Augmentation
Topic: A question about dopamine agonist withdrawal
Replies: 5
Views: 11250

Re: A question about dopamine agonist withdrawal

I have been postponing making an appointment with the quality care centers at Mass General or Yale in Connecticut because of husband's serious illness and hospitalizations this past year but am now prepared to contact one of these centers which are only a five hour drive from our home. It has been d...
by Caitrin
Mon Sep 17, 2018 2:56 pm
Forum: Augmentation
Topic: A question about dopamine agonist withdrawal
Replies: 5
Views: 11250

Re: A question about dopamine agonist withdrawal

After taking 1 mg. of physician's samples of Neupro patch for a few days I had relief of my RLS but after a week I awwkened with jerky legs. I added another 1 mg. patch and suffered severe urinary retention, itchy sores at application site and other body parts and slight memory lapse. This was not a...
by Caitrin
Mon Aug 20, 2018 8:34 pm
Forum: Prescription Medications
Topic: Neupro
Replies: 20
Views: 2445

Re: Neupro

Well, I am now 24 hours on Neupro 2 mg. and leg jerking free as well as drowsiness. I rechecked my samples and there are enough for two weeks and I have decided to continue the Neupro while rethinking the Sinemet. It is good not to have daytime WED. Regarding the patent on Neupro I thought it expire...
by Caitrin
Mon Aug 20, 2018 2:55 pm
Forum: Prescription Medications
Topic: Neupro
Replies: 20
Views: 2445

Re: Neupro

Steve, Sorry for the confusion. I omitted that I was experiencing some edema as a side effect. I also experienced drowsiness and still am today. I am not alert today and a bit confused. Having taken into consideration the fact that this DA causes these unusual side effects as well as augmentation an...
by Caitrin
Mon Aug 20, 2018 1:39 pm
Forum: Prescription Medications
Topic: Neupro
Replies: 20
Views: 2445

Re: Neupro

I began augmenting on Sinemet in January of this year, from one 50/200 mg tablet once daily for 20 years to two 25/100 tabs/day and finally to 3 tablets/day. I decided to try a DA and yesterday tried a Neupro 2 mg patch my new neurologist had given me. I took it at 4 p.m. yesterday and all day/night...
by Caitrin
Mon Feb 12, 2018 8:01 pm
Forum: Augmentation
Topic: Tramadol while tapering Sinemet
Replies: 14
Views: 10311

Re: Tramadol while tapering Sinemet

Any thoughts on the Neupro patch? I was given samples by a neurologist and have read the leaflet on side effects. The one that disturbs me most is that the it could raise one's blood pressure and I am currently taking two BP meds. I am still taking carbidopa/levodopa, one and one-half 50-200/day. I ...
by Caitrin
Tue Jan 30, 2018 6:09 pm
Forum: Augmentation
Topic: Tramadol while tapering Sinemet
Replies: 14
Views: 10311

Re: Tramadol while tapering Sinemet

Thank you both for your input. I did take ZYRTEC while on tramadol but it did not help with the itching. I too tried decreasing and then back to the usual dose and the itching increased. I may try taking it once more. Can you tell me what the newer generation antihistamine is? I did take another opi...
by Caitrin
Mon Jan 29, 2018 9:01 pm
Forum: Augmentation
Topic: Tramadol while tapering Sinemet
Replies: 14
Views: 10311

Re: Tramadol while tapering Sinemet

Tramadol caused such intense itching I went back to the Sinemet until I see my primary Wednesday. My entire body itched 24/7 and I was miserable. So I took 1/12 50-200mg. tablet Sinemet last night. I think my doctor mentioned Mirapex two weeks ago and will ask her for a script thinking the change in...
by Caitrin
Fri Jan 26, 2018 3:54 pm
Forum: Prescription Medications
Topic: Carbidopa/levodopa withdrawal symptoms
Replies: 9
Views: 2102

Re: Carbidopa/levodopa withdrawal symptoms

My husband continues to give me a 50 ml. tramadol each day until I see my primary next Tuesday. He has lived through this terrible disease with me for 30+ years. He had an ileostomy late Sept. and was in hospital 9 weeks. He is able to drive me to doctors' appointments. Soon he will have his left hi...
by Caitrin
Thu Jan 25, 2018 2:00 pm
Forum: Augmentation
Topic: Tramadol while tapering Sinemet
Replies: 14
Views: 10311

Re: Tramadol while tapering Sinemet

Thank you for sharing your experiences with Tramadol. I have an appointment with my primary next week and will bring her info on Tramadol as well as augmentation with Sinemet. She like most other doctors know nothing about RLS except that it exists. I did not think I had augmentation with Sinemet, t...
by Caitrin
Tue Jan 23, 2018 5:46 pm
Forum: Augmentation
Topic: Tramadol while tapering Sinemet
Replies: 14
Views: 10311

Tramadol while tapering Sinemet

My husband gave me one of his 50 ml. Tramadol last night and I did not need my usual dosage of Sinemet. I'm wondering if our primary might prescribe the Tramadol for my RLS thus eliminating the high dosage of Sinemet which I had recently increased after being in bed for one week. I had previously re...
by Caitrin
Mon Jan 22, 2018 12:55 pm
Forum: Prescription Medications
Topic: Carbidopa/levodopa withdrawal symptoms
Replies: 9
Views: 2102

Re: Carbidopa/levodopa withdrawal symptoms

Three weeks ago was bedridden with acute bronchitis and due to long periods of inactivity increased my usual once daily 50/250 ml. carbidopa/levodopa to half pill in a.m. and then another in afternoon for a total of two/day. Now that I am feeling a bit better and can be on my feet half the day I can...
by Caitrin
Sun Dec 04, 2016 3:30 pm
Forum: Prescription Medications
Topic: RLS symptoms increase post surgery
Replies: 3
Views: 1052

Re: RLS symptoms increase post surgery

Thank you for your input and it appears we are on the same page. I recall now that several years ago I underwent another surgery and was not taking an L-dopa, only oxycodone for several days without any RLS symptoms. Last night I took only oxycodone 5 mg at bedtime and another 5 mg approx. 5 hrs. la...
by Caitrin
Sat Dec 03, 2016 6:47 pm
Forum: Prescription Medications
Topic: RLS symptoms increase post surgery
Replies: 3
Views: 1052

RLS symptoms increase post surgery

Two weeks ago I underwent surgery and was in hospital 3 days. Was given my meds, Sinemet and Gabapentin, as well as 10 mg Oxycodone every 4 to6 hours. I am now taking the RLS meds earlier in the day as well as at night together with 5 mg Oxycodone which my doctor told me I no longer need. I have sev...