Search found 71 matches

by squirmy
Tue Apr 19, 2005 12:48 pm
Forum: Just Joined?
Topic: Augmentation??
Replies: 4
Views: 1409

the first couple weeks on Sinemet I was able to sleep like a rock, but yes symptoms now occur in the a.m. and sometimes throughout the day. So I take an extra Sinemet when this occurs...but only if I can't stand it anymore, because I have heard that too high of doses can make things worse. I have on...
by squirmy
Mon Apr 11, 2005 2:06 pm
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: I think I have RLS... Please help!
Replies: 1
Views: 4611

Sounds like you might have RLS... symptoms and decriptions vary greatly. You should see a neurologist for a diagnosis. My rheumatologist was very familiar with RLS, but from what I have heard most general docs, and even rhemy's aren't. Good luck to you, Tina
by squirmy
Mon Apr 11, 2005 1:52 pm
Forum: General Topics: RLS
Topic: How many of you are overweight with RLS? Thyroid problems?
Replies: 28
Views: 9276

reply to overweight

Very interesting, I was going to ask the same type of question today. I am overweight, started gaining quickly about 5 years ago. I have borderline thyroid imbalance and they test it every few months. I have Lupus and when I was inactive during a flare, the RLS kicked in big time. Without going into...
by squirmy
Fri Apr 08, 2005 1:26 pm
Forum: General Topics: RLS
Topic: can blood drawn triggered daytime RLS?
Replies: 7
Views: 2490

can blood drawn triggered daytime RLS?

I had blood drawn yesterday morning, as usual they had trouble getting a vein, and I had fasted for 12 hours so I got pale and dizzy. I just get that way sometimes, when they take blood, like I'm going to faint. The tests are just monitoring tests because I have SLE, with RLS. Then, when I got home ...
by squirmy
Tue Apr 05, 2005 8:00 pm
Forum: General Topics: RLS
Topic: Where's Your Pain?
Replies: 27
Views: 8802

reply

Even during a bad RLS night, I try to describe the sensations to myself and still have trouble, but I will try. It occurs in both legs, but at the onset, I feel achiness in my right knee. I just get comfortable and on the verge of sleep and wamo, here we go again! For years I only experienced what I...
by squirmy
Tue Apr 05, 2005 12:41 pm
Forum: Just Joined?
Topic: NEW MEMBERS AND CURRENT MEMBERS PLEASE HELP
Replies: 81
Views: 37611

will respond here, can't find in gen. topics

My RLS became severe last fall. The strange creepy crawly sensations and movement with stabbing would keep me up all night. I would still be moving and pacing when the alarm would go off. My general doc had no clue. I was having othe problems and finally after seeing a Rheumatologist I was diagnosed...
by squirmy
Thu Mar 31, 2005 2:22 pm
Forum: Just Joined?
Topic: ATTENTION: ON-LINE SURVEY (interim report)
Replies: 23
Views: 12092

can't open survey site

I only get a "Thank you for taking the RLS survey" when I try to go to the site listed.

I would very much like to participate. Any suggestions? Tina (Squirmy)
by squirmy
Wed Mar 16, 2005 2:30 pm
Forum: Just Joined?
Topic: Sinemet is working!
Replies: 0
Views: 1343

Sinemet is working!

Just wanted to let you all know that I started taking Sinemet (carbidopa & levodopa) about two weeks ago and it has been a great relief. I actually am comfy all night long for about a week straight now. I was on Neurontin for about three months, with some improvement, but then the symptoms came ...
by squirmy
Thu Mar 10, 2005 3:51 pm
Forum: Just Joined?
Topic: disability benefits
Replies: 2
Views: 1362

disability benefits

I have been unable to work for about 4 months due to SLE and RLS. I have the SLE under control, but still struggle with the right meds for RLS. I think it is horrible that SS disability does not recognize RLS as disabling. At this point it is by far more disabling than my SLE. I can get benefit help...
by squirmy
Thu Mar 10, 2005 3:42 pm
Forum: Just Joined?
Topic: RLS?/Young Onset Parkinsons Relationship?
Replies: 9
Views: 2505

eyes

have you been seen by an eye doctor? I have recurring episcleritis. Are your eyes blood red at times? I was recently diagnosed with SLE, as well as, RLS. Very dry eyes are one of my many symptoms. The outer layers of the eye skin are actually cracked due to the dryness. Steroid drops can temporarily...
by squirmy
Thu Jan 13, 2005 4:21 am
Forum: Just Joined?
Topic: RLS and Lupus
Replies: 11
Views: 4085

RLS and Lupus

I have recently been diagnosed with both RLS and Lupus. The RLS nightly torture finally caused me to insist on a referral from my family doctor to a rheumatologist. I had seen 2 doctors who told me I probably had strange allergies. I didn't buy it, and when I described the symptoms to a rheumatologi...