Restless Legs Syndrome (RLS) Discussion Board

Thursday, August 29 Welcome to Whatsername03, for whom sleep is very difficult, traveling is miserable and she gets terrible anxiety fearing RLS symptoms while traveling. She has symptoms in her legs and arms and even gets symptoms through out the day. She will be using this resource to help find qu...

There have been issues with generic medications sometimes not being as strong as they are supposed to be. It could be that this is the situation he has experienced. The name brand product has tighter quality control than some generic manufacturers use, so you can be more confident of getting exactly...

Missy, the guidelines recommend starting with oral iron for a while since it is "safer" and less expensive. With a ferritin level of 87, it probably won't help, but it might. As for dosage, the 325mg that you doctor mentioned refers to the common size for iron sulfate pills. The iron content in that...

Thursday, August 29 Welcome to Bula2221, who has been dealing with PLMD for a few years and in the past 6 months this has “evolved” to include RLS. He is still working with his sleep doc (PA, actually) to find an effective medication regimen. If you will post a note telling us what you have tried so...

Thursday, August 29

Welcome to

foxiephoto, who is dealing with RLS and needs support and information.

We can provide both of those. If you will post a note telling us what you are doing to manage your RLS and asking any questions that you have, we will try to provide you with answers.

Thursday, August 29

Welcome to

Lynn Booras, who is miserable most of the time. And her meds caused her to go into rhabdomyolysis.

Please post a note telling about what you have and are taking for your RLS. We can probably suggest ways to safely improve your treatment.

Last week as part of the Foundation Advocacy project, I had an one-to-one, face-to-face meeting with my Congressman. I explained about my problem with finding any doctor in town who would accept patients who take opioids. He admitted that he may have played a role in that because just before I moved...

Tuesday, August 27 Welcome to Loulas, who has had RLS for many years. Dr has been guessing for years. For the past 5 nights been getting 2 to 3 hours of sleep. So Loulas wanted to see what other people do to combat this. When Loulas was around 20 ( 60 now) an old Doc said I have just the thing for y...

Tuesday, August 27 Welcome to church01, who has had RLS since 1982 and it can be pretty miserable, even with meds. There are nights with little sleep, legs twitching and jerking all night. It affects her husband's sleep due to her jumping and movement all night. The feeling of skin crawling and neve...

Sunday, August 25 Welcome to Ztrips, whose RLS keeps her up at night. There are several medications that she can't take because it activates RLS. These medications would help her anxiety and depression. She is very frustrated, tired, depressed and have lots of anxiety. She is not sleeping well eithe...

Saturday, August 24 Welcome to emberto1946, who thinks he has had RLS for most of his life and he is now almost 73 years of age. He thinks he is now at the 'augmentation' stage and is getting less than 2 hours sleep a night and lately, no sleep at all. He is desperate for some help. He has tried Med...

This isn't exactly new news to anyone with severe RLS, but at least the neurologists and psychiatrists are beginning to understand the fact that our lives are not that easy. The study looked at over 160,000 patients with RLS and other severe medical conditions. The conclusions were: This study sugge...

Saturday, August 24 Welcome to charlka, who is in RLS medication augmentation and her sledp disorder neurologist suggested this site. She is in her 2nd day of tapering off meds and is looking forward to this site for support. We would love to be able to support you since many of us have been through...

Friday, August 23 Welcome to Cleo'sRLS, who has had RLS for 65 years. She had no relief til 2007, when she started on Ropinirole. She want an opportunity to communicate with other patients and access to current medical research & user results. We can definitely provide you with both of those. You wi...

Friday, August 23

Welcome to

tjgriffin, who wants to keep up on the latest research and information about RLS.

We can definitely help with that. If you will post a note with any questions that you have, we can try to help point you in the right direction.