Restless Legs Syndrome (RLS) Discussion Board

I got my serum ferritin results last week and my iron had remained pretty much level. It was 66 and the last test (just before I started the iron patches) was also in the mid 60s - of course I have misplaced the note I made of the result. I am disappointed but at least it hadn't gone down. I am pret...

Can you say what strain of cannabis you are taking, QyX? I looked at the tedtalk you linked and one thing that leaped out was the effect of the slight change in strain on the autistic kids - one strain worked like a miracle and a different one made no impact at all. None of the four strains of canna...

I have been using patches for about 2 months and just yesterday went for a serum ferritin test. It was 68 before I started so will be interested to see what it is now. I get the results next week and will post then.

Overall feeling much better... feeling more like myself? That is exactly how I felt when I finally eliminated pramipexole. Could not believe just what an effect it had had on my personality until I was off it. Well done. It is truly torture getting off it ... but so worth it. Things can only get be...

Holland, I hope things have settled down and you have returned to 'normal' you. I suspect that Beth may be correct that aggravating the hip may have irritated your rls. It could also be the reduction/elimination of kratom. I definitely find an appreciable - though not excruciating - increase in my r...

Yes; I have had the same experience. If I had to work I could keep going and get through surprisingly technical stuff even with virtually no sleep night after night. Just occasionally it would catch up with me, however, and I did have the humiliating experience of falling asleep in a small meeting r...

Please tell us what iron supplement you were taking. I would love to get my serum ferritin to over 100.

Unlike you, Beth, I have the sort of mundane mind that will accept instructions from the side of a packet. I hadn’t even considered what dose to take and have now ordered (at a fairly hefty price tag - though cheap at the price - how often have I used that justification? - if it helps resolve the le...

My sleep consultant had me on pregabalin when I was withdrawing from pramipexole but unfortunately it did nothing for my symptoms at the time. She totally ignored my plight when I was without sleep for nearly 3 months after coming off pramipexole even though I contacted her several times. I now wish...

Good luck Julie. I think it was your posts that first introduced me to kratom - I had never heard of it before and it has been a life saver for me over the last two and a half years. I don't rely on it solely but I don't know what I would do without it either. Thank you for your informative and enco...

Yes, cold turkey from 3.5mg sounds pretty severe. He does have a lot of experience getting people off d/as but I presume he always gives them opioids to assist. Your experience of reducing from 5 to 3.5 without dreadful symptoms mirrors my own in the early stages of withdrawing from pramipexole but ...

If you have to discontinue kratom it might be worth starting to reduce now as there may be a slight withdrawal issue, especially as you have been taking it for so long. Your rls might be slightly exacerbated during the withdrawal process. I would have thought a dopamine agonist for a few weeks would...

What iron supplementation are you taking? I have heard that iron bisglycinate (aka 'gentle iron') is less severe from a constipation point of view. Never heard of that perineum pressing solution before - it's inspired - so obvious - like slicing bread before selling it - obvious and yet elusive unti...

That is AMAZING news, Holland. It has made my day to read this. I found that there is a slight withdrawal process with kratom - even when dose is quite low - predominantly flu-like symptoms, a low mood, perhaps some elevated anxiety and some increased rls - but usually it doesn't last too long with ...

Betty, I would definitely email Dr. Buchfuhrer and outline all the drugs you are taking and the plan of your GP. I don't know for sure but I would have thought that pregabalin will not provide adequate cover while you are withdrawing from ropinerole, even if you take long breaks at each stage of the...