Restless Legs Syndrome (RLS) Discussion Board

Thank You Ladies !!!!!!

Hey, do any of you know where I can find documentation/justification, etc. where it addresses Ferritin Levels for RLS ? I want to give it to my Primary Care Doc.

Thanks !!

Hello !!! Tonight is my last night in Baltimore !!! The last SIT test went fine ... I had a little trouble at the end, but I pushed through !!! Yesterday I had the MRI, and that was a tough one, an hour just laying there; after it was over I jumped off the table and went out into the room where Dr. ...

Thanks for that heads up about the weight gain !! I just lost 11 pounds weaning from the Clonopin !! I also forgot to mention that Dr. Earley wants me to have an IV Iron Infusion .... anyone have an experience with that ??? My SIT test tonight went much better than last night .... one more to go ton...

Totally agree with Eefall.....I just had my first visit with Dr. Earley at John Hopkins, and if you are in New Jersey, you are doing yourself a dis-service by not seeing him; he is by far the best in the field and he will help !!!

I made it to John Hopkins on Monday night before the storm hit home and now we are having a Nor easter in Baltimore !! That's okay....I'm here. I have fallen in love........with Dr. Earley !!! He is amazing !!! OMG he is so friekin' smart; the worst part was that I was so damn tired I only remember ...

Well, today is Day Six (well might as well be day 7, its almost midnight !!) of being off my medicine ..... sleep is over rated !!! I made it through the worst of it and I'm okay!!! I am averaging two to three hours sleep a night, the severity of my WED/RLS symptoms have subsided tremendously but I ...

eeeekkkkkkk peeps ....... no rest for the weary !!!! My legs started partying this afternoon and I'm thinking they want to pull another all-nighter !!! I spoke to Tiana today at JH, she said this might happen. Good thing I got some sleep last night ....

@Joanie.....had I been working, there would of been no way I could have done this. Between weaning off the medicine, which I had plenty of sleepless nights in the last month, to the past three days and four days next week, one would have to have a very, very supportive employer; which is hard to com...

UPDATE: I have finished my thirty day tapering of the Klonopin and my last dose of Mirapex was Saturday night ....... this has been an interesting journey ...... I think I have been through hell and back !!! I was awake for 62 hours straight. My RLS came back with a very angry vengeance; the only re...

Thank You !!! I will definitely keep you posted and will update everyone on how my experience with the study goes. I don't go to Baltimore until February 11th. A very close friend of mine that I've known for 30 years is participating as a non-RLS sufferer ... which I greatly appreciate !! She has se...

Has anyone on the forum participated in the Glutamate Study at John Hopkins ?? Was wondering how their experience was with this. I was accepted to participate and just started weaning off my current meds which is being monitored by Dr. Earley. I also have a scheduled appointment with him during my s...

That is great news......I will Pray for you that is it that simple !!!!!

Hi luvskermit !!! I too am fairly new to this forum and you will find that these folks are "on it" -- they are so supportive and understanding. There is a wealth of information here; take advantage of everyones experiences. We all are suffering from WED/RLS and not every treatment works fo...

I still have some .125 tabs and he gave me .5 tabs also. I was taking two of the .125 at night. One around 6:30 and one around 7:30; good idea about spreading them out - I'm going to add one more of the .125 and see how that goes. My legs are feeling good, its my sleep pattern and the waking. Well.....

Thanks Ann....I was kinda thinking the same thing.