Search found 645 matches

by ksxroads
Wed Jul 26, 2006 9:20 pm
Forum: Everything Else...just no RLS!
Topic: abc primetime tonight
Replies: 13
Views: 6294

Lynne, did some searching and here is what I found... Kleine-Levin Syndrome (KLS) is a rare complex neurological disorder characterized by periods of excessive amounts of sleep and altered behavior. The disorder strikes adolescents primarily. At the onset of an episode the patient becomes progressiv...
by ksxroads
Wed Jul 26, 2006 9:14 pm
Forum: Help for Relationships
Topic: Separation anxiety
Replies: 71
Views: 47539

(((((((((((((BIG HUG))))))))))))))))))

**************Positive Thoughts and Energy************

Keeping you and the family in my thoughts and prayers. Please keep us posted and know that we are all patiently waiting to hear from you!

Love Hazel
by ksxroads
Wed Jul 26, 2006 7:34 pm
Forum: General Topics: RLS
Topic: New to RLS..... Alot of Questions
Replies: 8
Views: 2144

Dear Ann, So sorry that you are going through all of this. It does sound as if your doctor is making every attempt to find out what is wrong. Wish it would happen sooner than later, yet I hope it helps to know that we are here for you should you need us. So glad you posted, if you hadn't, I wouldn't...
by ksxroads
Wed Jul 26, 2006 7:28 pm
Forum: General Topics: RLS
Topic: Some days you row, others you float...
Replies: 78
Views: 24323

Thanks Ann. Certainly can empathise and understand your choices. Myself I have been on the iron therapy @ four months, and so far there is no noticeable difference in the RLS sensations. Can so relate to job, family, life in general... I have some serious concerns about my current GP, yet the time i...
by ksxroads
Wed Jul 26, 2006 7:14 pm
Forum: General Topics: RLS
Topic: Upcoming Appointments
Replies: 23
Views: 4972

Dee and others **************Fairy Dust too************* and some ***********Positive Energy**************** It really sparkles on you Dear Miss Penquin! Ridgerunner, I am so glad to hear that you have a dr who is willing to work with you and others to manage their RLS in the best way suited to each...
by ksxroads
Wed Jul 26, 2006 7:06 pm
Forum: Just Joined?
Topic: restless arms?
Replies: 20
Views: 6018

Dear mitodd, I have experienced RLS in all parts of my body (except for my nose*big grin*), primarily it is my legs and arms, sometimes facial. Brandy is right, DAs do cause augmentation, worsening of rls sensations, experiencing rls in areas not normally affected. Use the search option at the top o...
by ksxroads
Wed Jul 26, 2006 4:43 pm
Forum: General Topics: RLS
Topic: Some days you row, others you float...
Replies: 78
Views: 24323

Lately I have had to get out the This Too Shall Pass motto quite often... yet I have to admit it is better than a year ago. Today I can say if I can make it another fifteen minutes... last year it was if I can make it another second... hahahaha Looks like some of us could use a good relaxing float t...
by ksxroads
Wed Jul 26, 2006 2:36 pm
Forum: General Topics: RLS
Topic: Having a bad, bad day
Replies: 14
Views: 3404

Dear Em, Mustering up as many ******************Positive Thoughts of Energy**************** and hurling them northward, may take a tad longer as the wind is out of the north, but I'll keep bellowing them forth. Hope it helps to know that I am keeping you in my thoughts and prayers. It is hard to exp...
by ksxroads
Wed Jul 26, 2006 2:26 pm
Forum: General Topics: RLS
Topic: Foot Pain
Replies: 17
Views: 4654

Dear Brandy, It may be that it is indirectly related to the unmanaged RLS/PLMD. When we are not able to achieve quality restorative sleep, have continuous pain, our bodies pain signals can be heightened. During sleep I know that I flex my feet alot as DH has told me, so it is possible that is a cont...
by ksxroads
Tue Jul 25, 2006 3:52 pm
Forum: Just Joined?
Topic: HI! I'm new here!
Replies: 8
Views: 2257

Dear Neelia, You have found a great site for information which may help your doctor find an affective treatment for your RLS. Review the sticky posts in New to RLS in particular the Mayo Clinic Algorithm which lists medications used to treat RLS. It was helpful for me to read the list of medications...
by ksxroads
Mon Jul 24, 2006 9:12 pm
Forum: General Topics: RLS
Topic: commercial
Replies: 24
Views: 5533

Ahhhhhhhhhhh Dear Penquin, I so agree, and while it is iimportant to raise RLS education and awareness... these commercials can make me frustrated when others say have you heard about the RLS medication! ((((BIG HUG)))))) Glad to hear from you, hope to see you in other forums!

Love Hazey
by ksxroads
Fri Jul 21, 2006 8:24 pm
Forum: General Topics: RLS
Topic: My secret that I've never told anyone.
Replies: 31
Views: 8103

Ray, Please check in and let us know how things went. Had my follow up appt with the GP who manages my RLS treatment (8 months now), I left his office feeling so frustrated - I should have just let the anger come on up... He had a medical student shadowing him, and in the discussions I realize that ...
by ksxroads
Fri Jul 21, 2006 8:16 pm
Forum: Prescription Medications
Topic: REQUIP Argh#@*&^%!!!
Replies: 33
Views: 11125

Hello Stacey, rella, sleepless, EM, Ann and you too! How are things going? Hopefully you are all experiencing a fairly pain free day and night! ***********Positive Thoughts of Energy************* Stacey, We are glad to have you with us to share your experiences, every one is unique and what helps on...
by ksxroads
Fri Jul 21, 2006 8:11 pm
Forum: Prescription Medications
Topic: requip is killing me
Replies: 17
Views: 6651

Dear WDF - There are about 20% of RLS sufferers who do not tolerate the DA's, I am one of them. Truly thankful you suffered no major injury while on Requip, that would have been horrid! Hopefully you are finding information and alternative therapies which are helping you manage your health care. ***...
by ksxroads
Fri Jul 21, 2006 8:07 pm
Forum: Prescription Medications
Topic: Zofran and Tramadol
Replies: 7
Views: 2579

I carry one of those cards myself. Also gave the dr who is monitoring my RLS treatment a print out of medications for my records. Hopefully someone would look at it if there is ever an emergency medical situation!

Hazey