Restless Legs Syndrome (RLS) Discussion Board

I started to ask the very first question above and figured that the poster had no idea why the doc said that. I REALLY want to know if there are any studies...I surely haven't seen any! I bet a lot of it is just personal experience. Which shouldn't be discarded lightly. Even though I fully agree th...

I wish I had some suggestions - hopefully someone else will. That is a long time to be awake - I imagine you'd really like to reduce that!

I have another update to my long slow taper off Ropinirole: at the 4 month mark, I am down to 1/3 of my original dose (0.5mg out of 1.5mg). Am also taking Gabapentin 400mg. I drop down every 19 days or so, and things are going pretty well! Most nights are very manageable-especially compared to last...

I was told my doctor that going straight from augmented Pramipaxole to opioids may require escalating does of opioids and/or more opioids to control symptoms. The rationale is that the by not taking a drug holiday the dopamine system never has a chance to return to baseline. When I hear this sort o...

I was told my doctor that going straight from augmented Pramipaxole to opioids may require escalating does of opioids and/or more opioids to control symptoms. The rationale is that the by not taking a drug holiday the dopamine system never has a chance to return to baseline. Hmmm - that is interest...

I'm sorry for the late reply, but I've had a lot going on and can finally get back on here and wanted to update you on the methadone. Turns out I did sleep well with the methadone and it did well for preventing the rls to act up, but I had to fight to stay awake all day and would find myself fallin...

Surgery itself can be the trigger, Donna. Many theories, but they don't really know why.

But a quick internet search suggests toradol is associated with increased symptoms!

The only I know about is that it affects Northern European ethnicities the most, and east Asian the least...that was years ago.

Stainless wrote: ↑

Fri Jan 13, 2023 4:49 pm

It's really helping me sleep on what otherwise would have been rough nights. Not very torn on whether to continue. Getting to sleep isn't such a wrestling match with my legs. Slept thru the night last night! A $60 pump dispenser might last a month.

That seems awesome to me!

Surgery often does make symptoms worse. Since this isn't surgery, I don't think it would be the same. But, just a guess.

Interesting, Rick. Which specialist did you see that said receptors permanently damaged? I think Dr Ondo was working on this...but I may be remembering incorrectly.

Thank you!

Hi jblackburn67. It is almost impossible to switch without the help of an opioid if you are augmented. It may cover symptoms later (it doesn't always do that for those who have augmented), but gabapentin cannot cover the symptoms as you cut back the ropinerole. It usually take between 5 days and sev...

That was a very good movie.

I was nowhere close to your 30 years, but meditated regularly for about ten or so years (I also swam about a mile 5 days a week, and am sure that they worked together to change my life). Losing that practice has made my life so much more chaotic. It was slow, but over time I've become more reactive,...