Restless Legs Syndrome (RLS) Discussion Board

FUZ_MIND, I know you don't want to go 'cold turkey' so I don't suggest it but I'll just tell u a little of my experience. I was where u are but after about 5 years on ropinirole prescribed by a GP who had no knowledge of RLS. I just blindly took it, unknowingly augmenting and not thinking about a Ne...

Last night was my 6th night on the Horizant/Temazepam combo. As I wrote before, the first 3 nights were very good with roughly 6-8 hours sleep; some with a bathroom trip in the middle of the night but getting back to sleep and waking with an alarm from a deep sleep. That was difficult knowing I migh...

Finally got back in to see my neuro last Monday. I took log I've been keeping and we had a long talk. At first he wanted to stop the Horizant and put me on Tramadol which he said would take care of the RLS movements. I told him that though I have not been sleeping well at all, the Horizant has prett...

Good point Ann!

I agree but it can't be any worse than going cold turkey off Requip.

Jim

I've taken Lyrica for about 15 nights, 8 nights at 250mg. The last 2 nights I got about 6 hours sleep. I'm not sure now that I shouldn't have tried the Lyrica for a longer period. My neuro "loves" Horizant so that's where we went next. Horizant for 24 nights, the last 7 nights at 1200mg. A...

Second night 1200mg not particularly good. Dosed at 1840, to bed at 220 without the usual "dopey" feeling from the Horizant. My arms started moving at 2300 and I got up and to my chair at 2330. Watched TV with mild and intermittent arm and leg movement 'til about 0200 when I started noddin...

I appreciate all the comments about "sleep hygiene" and I agree. My goal is 7-8 hours uninterrupted sleep with maybe one trip to the loo. The next time I get to see my neuro I'll be trying to pin him down on his goals for me. Last night was 1200mg Horizant and I got about 6 hours sleep in ...

Ann, I agree and I may have misunderstood my doc. My girlfriend, now fiancee, told me the same thing. I don't believe my neuro was suggesting that waking at the same approx. time daily has anything to do with improvement or cessation of RLS symptoms. He would probably, and I'll soon find out, be all...

Beth, I'm fortunate here since, being retired, every day is a weekend day for me. When I do get to sleep, I'm not usually keen to immediately jump out of bed when I wake. I have set an alarm a few times recently but it's not my habit. Still, my neuro insists that it's more important that I wake at a...

Day #5 at 900mg was a repeat of day 4 in that I went to be with no rls, couldn't sleep so got up after an hour or so. Immediately after getting up and sitting in the recliner the leg movement started. It took some walking and then some stretching before I got back to sleep an hour and a half later. ...

Well Legs I guess I'm still a potential member of the 'club' after last night. Horizant at 1700, to bed at 0030. No RlS but couldn't get to sleep so got up and went to my recliner. Immediately, the legs started moving when I went from bed to chair. Now THAT is a first...usually it's the reverse. So ...

Legs, I am aware that I'll be quite fortunate to end up with Horizant or any other med to suffice as my ONLY med. Hope springs eternal! Last night was #3 at 900mg Horizant. What a great night it was! I took the dose more than an hour earlier at 1715. I had slight 'buzzing' in my legs at 2030 but tha...

Thanks for that explanation Ann! After 11 nights on 600mg Horizant I saw my neurologist and he bumped me to 900mg. His instructions are to use 900mg for 4 nights and if no significant improvement to bump again to 1200mg. After 2 nights at 900mg I expect I'll soon be at 1200 as there has been little,...

Thanks to everyone for your thoughts and for your recipes! It's all very interesting. I've experimented a little with some brownies, unk which strain or how much weed was in them as they were made by a friend. I got a good lecture by the friend as well as the mmj doc who wrote my rx a couple of year...