Search found 2390 matches

by debbluebird
Wed Jul 31, 2013 2:04 am
Forum: General Topics: RLS
Topic: Roller Coaster Ride
Replies: 141
Views: 19582

Re: Roller Coaster Ride

This has been a very strange week. I stopped the Mirapex a week ago. It hasn't been too bad because I had also stopped the splenda. Today I realized that I was still getting some aspartame in my system from the "no sugar" Metamucil. My husband and I just totally forgot about that. He mixes...
by debbluebird
Tue Jul 30, 2013 8:21 pm
Forum: General Topics: RLS
Topic: A Statagy for Fixing Me - My Visit to a RLS/Apnea Guru
Replies: 528
Views: 63645

Re: A Statagy for Fixing Me - My Visit to a RLS/Apnea Guru

Thank goodness you are alright. I have wondered about you and your driving before. With all of the drugs that we take I don't know if any of us should be driving. Two days ago I decided to take one Gabapentin 300 mg. I thought maybe I might sleep some more. I remembered how sleepy it makes you when ...
by debbluebird
Sun Jul 28, 2013 11:01 pm
Forum: General Topics: RLS
Topic: A Statagy for Fixing Me - My Visit to a RLS/Apnea Guru
Replies: 528
Views: 63645

Re: A Statagy for Fixing Me - My Visit to a RLS/Apnea Guru

We feel your pain, for sure. Hope it will start to get better soon.
by debbluebird
Sat Jul 27, 2013 1:36 pm
Forum: General Topics: RLS
Topic: Roller Coaster Ride
Replies: 141
Views: 19582

Re: Roller Coaster Ride

I've stopped cold turkey before. This time I took 1/2 tab which is .0625 mg. for several days, then nothing but Methadone. It hasn't been any worse that it was before. In fact it's easier than with the splenda. I'm able to go to sleep without any trouble. I have to take a methadone during the night....
by debbluebird
Fri Jul 26, 2013 2:43 pm
Forum: General Topics: RLS
Topic: Roller Coaster Ride
Replies: 141
Views: 19582

Re: Roller Coaster Ride

For me I believe the worst is over. I'm sleeping fairly good. Only a few symptoms of WED/PLMD What is left is just waiting for my appt. I did stop my Mirapex. Last dose was on Sunday. Before that I only took a 1/2 tab. I only take 0.125 mg anyway. I figured what was the point. It is such a small amo...
by debbluebird
Fri Jul 26, 2013 2:25 pm
Forum: General Topics: RLS
Topic: A Statagy for Fixing Me - My Visit to a RLS/Apnea Guru
Replies: 528
Views: 63645

Re: A Statagy for Fixing Me - My Visit to a RLS/Apnea Guru

Try to remember that there is an end to this nightmare. and believe it or not you will get through it. Try and stay focused toward the goal. I don't understand why they didn't put you up somewhere while you went through the withdrawal period. Your body is going through a cleansing to get all of the ...
by debbluebird
Thu Jul 25, 2013 4:40 pm
Forum: Prescription Medications
Topic: WARNING: DRUGS TO AVOID FOR RLS/PLMD PATIENTS
Replies: 61
Views: 56632

Re: WARNING: DRUGS TO AVOID FOR RLS/PLMD PATIENTS

Please add:

Aspartame
Splenda


I have found that these both make my WED/PLMD worse. I am able to reduce my meds when not taking these in. They can be hidden in food that say "no sugar"
by debbluebird
Wed Jul 24, 2013 9:00 pm
Forum: General Topics: RLS
Topic: Roller Coaster Ride
Replies: 141
Views: 19582

Re: Roller Coaster Ride

You never know when you life is going to take a turn. I received my health insurance and it is affective Aug 1. I called and made an appt. with the Orthopedic surgeon for Aug 15. I am so relieved. At first we thought there would be another waiting period, but I called today and found out otherwise. ...
by debbluebird
Wed Jul 24, 2013 6:32 pm
Forum: General Topics: RLS
Topic: A Statagy for Fixing Me - My Visit to a RLS/Apnea Guru
Replies: 528
Views: 63645

Re: A Statagy for Fixing Me - My Visit to a RLS/Apnea Guru

Great news about getting the return of your over payment. Funny how things happen.
by debbluebird
Tue Jul 23, 2013 2:58 pm
Forum: General Topics: RLS
Topic: Anyone having trouble with Splenda causeing increase in WED
Replies: 18
Views: 2085

Re: Anyone having trouble with Splenda causeing increase in

I am convinced that splenda caused increased WED/PLMD. I've had three nights now of sleep. Also I don't know if I said how much splenda I had. I was drinking three to four liters of soda stream a day and I had made ice cream with splenda. I love ice cream. I also noticed that it didn't take as long ...
by debbluebird
Tue Jul 23, 2013 1:09 am
Forum: General Topics: RLS
Topic: Anyone having trouble with Splenda causeing increase in WED
Replies: 18
Views: 2085

Re: Anyone having trouble with Splenda causeing increase in

I posted on my other thread. I slept about 8 hours last night. No WED/PLMD at all. Now this afternoon I had a little bit, but it was also time for my Methadone. I will see what happens tonight.
by debbluebird
Mon Jul 22, 2013 2:35 pm
Forum: General Topics: RLS
Topic: Roller Coaster Ride
Replies: 141
Views: 19582

Re: Roller Coaster Ride

You are not going to believe the night I had last night. First I will say that I only had one feeling of my WED/PLMD and decided to take my Methadone early. Especially because of the last few days. Then no other symptoms. I went to bed around 10pm. Up to the bathroom around 2 am. Was awake for awhil...
by debbluebird
Sun Jul 21, 2013 8:29 am
Forum: General Topics: RLS
Topic: A Statagy for Fixing Me - My Visit to a RLS/Apnea Guru
Replies: 528
Views: 63645

Re: A Statagy for Fixing Me - My Visit to a RLS/Apnea Guru

I just got up for the rest of the night. I feel guilty telling you that I got 2 1/2 hours. It's going on 2:30 am now This is my new reality. I think I'm on your old schedule, when you used to get up to go to work. My WED wasn't quite as bad during the day yesterday. I was hopeful that I might sleep ...
by debbluebird
Sun Jul 21, 2013 12:54 am
Forum: General Topics: RLS
Topic: A Statagy for Fixing Me - My Visit to a RLS/Apnea Guru
Replies: 528
Views: 63645

Re: A Statagy for Fixing Me - My Visit to a RLS/Apnea Guru

No one understands this unless they have it. It's just too hard for them to comprehend. I guess because it doesn't make sense. "Just take a nap." "Why can't you sleep?" "Everyone sleeps." People just give me a blank look when I try and explain it. I don't really try any...