Search found 103 matches

by pamhb
Mon Sep 25, 2017 3:34 am
Forum: General Topics: RLS
Topic: reflections on a bad trip to the RLS specialist
Replies: 22
Views: 3861

Re: reflections on a bad trip to the RLS specialist

Polar Bear, I feel your pain. Your description of your nights is exactly how I spent mine, for most of this summer. By the end of August, I was at wit's end, was sinking further into depression, and wondering how I was going to manage living out the rest of my life. My happy result, as people will k...
by pamhb
Sun Sep 24, 2017 6:13 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Food Triggers and Vascular Dilation
Replies: 20
Views: 6861

Food Triggers and Vascular Dilation

Like many of us, I have been struggling to identify and understand my food triggers. Triggers that I am fairly certain of are: 2% milk, ice cream, honey, chocolate. Triggers that are on my strong possibility list are: cheese, certain fresh fruits (not yet identified), black licorice, MSG, processed ...
by pamhb
Wed Sep 20, 2017 1:02 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Another year of relief (Low-oxalate diet)
Replies: 130
Views: 7743922

Re: Another year of relief

So I cautiously began the oxalate diet by taking out high oxalate foods and limiting moderate oxalate foods. No spectacular results, but I wasn't really expecting anything right off the bat. Yesterday I re-introduced dairy, which I haven't eaten in about a year. I had a small glass of milk around no...
by pamhb
Tue Sep 19, 2017 3:52 am
Forum: Physical Treatments
Topic: Scratch and Carry Technique
Replies: 8
Views: 3269

Re: Scratch and Carry Technique

I don't have any increase in symptoms when I do it. So it appears that a quick rule of thumb may be that if this results in increased discomfort, don't "poke the bear" !
by pamhb
Mon Sep 18, 2017 6:45 pm
Forum: Prescription Medications
Topic: lorazepam and RLS
Replies: 11
Views: 1815

Re: lorazepam and RLS

I have been on Clonazepam for 2 months. My primary care doctor prescribed it to see if it would calm my rls. It makes me sleepy but I still wake up about 1 1/2 hours later with restless legs. I'm going back in to see him because he said he has other "tricks in his bag" to try. We have rul...
by pamhb
Mon Sep 18, 2017 6:17 pm
Forum: Prescription Medications
Topic: lorazepam and RLS
Replies: 11
Views: 1815

Re: lorazepam and RLS

Clonazepam was, for many years, my very best friend. It has always been a secondary drug for me -- I would use it in conjunction with another drug, such as mirapex, to smooth out the ups and downs of my symptoms, and to control symptoms when I travelled. When I was going through a period of wild sym...
by pamhb
Mon Sep 18, 2017 5:50 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Another year of relief (Low-oxalate diet)
Replies: 130
Views: 7743922

Re: Another year of relief

I think that the whole issue of food-related triggers is the most perplexing and the most frustrating for all of us. As a group, we know that something is triggering our bad nights, which is not present on our good nights. The problem is that what we identify as potential triggers is so disparate an...
by pamhb
Mon Sep 18, 2017 5:28 pm
Forum: Physical Treatments
Topic: Scratch and Carry Technique
Replies: 8
Views: 3269

Re: Scratch and Carry Technique

This truly is a personalized disease....
by pamhb
Sat Sep 16, 2017 6:34 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Another year of relief (Low-oxalate diet)
Replies: 130
Views: 7743922

Re: Another year of relief

Interesting. I have felt for a while now that my triggers consist of a peculiar group of foods, but that it was very difficult to sort out the culprits without a laborious and difficult elimination and re-introduction process. For example, I began to feel that fresh fruit is an issue, but I couldn't...
by pamhb
Wed Sep 13, 2017 11:24 pm
Forum: Physical Treatments
Topic: tv & radio to sleep?
Replies: 5
Views: 4786

Re: tv & radio to sleep?

I listen at a low level to political news on YouTube, when I'm trying to make up some extra sleep between 6 am and 10 am. It distracts my mind from the fact that it's 6 am and I've only have 3.5 hours of sleep; it lets me know that I've actually slept (I can't remember what anyone said), and it acts...
by pamhb
Wed Sep 13, 2017 11:17 pm
Forum: Physical Treatments
Topic: Scratch and Carry Technique
Replies: 8
Views: 3269

Re: Scratch and Carry Technique

I've tried it a couple of times now, with reasonable success. If my attack is quite bad, it doesn't help much. If my RLS is at the simmer stage rather than full boil, it works quite well. I can usually get back to sleep for another hour or so (which is awesome in my world).
by pamhb
Mon Sep 11, 2017 7:51 pm
Forum: Physical Treatments
Topic: Massage sticks & foam rollers, trigger points
Replies: 6
Views: 3032

Re: Massage sticks & foam rollers, trigger points

I found this interesting article on the treatment of trigger points for RLS. They call it the "Restful Legs Recipe". While I am way beyond the point of being able to release my trigger points with simple compression techniques, it does show the same trigger point areas that I find to be in...
by pamhb
Mon Sep 11, 2017 6:49 pm
Forum: Augmentation
Topic: Seeking sleep months after going off Mirapex
Replies: 10
Views: 3801

Re: Seeking sleep months after going off Mirapex

That makes sense about the Sativex. If it's a product that consists of cannabis extracts rather than a synthetic derivative, it would need to be removed from the controlled substances list in order for the FDA to give its approval. It's approved by Health Canada here in Canada, but likely because we...
by pamhb
Mon Sep 11, 2017 6:01 pm
Forum: Augmentation
Topic: Seeking sleep months after going off Mirapex
Replies: 10
Views: 3801

Re: Seeking sleep months after going off Mirapex

I just saw him last month. I asked what my status would be with him; he said he was simply a medical consult for me, and that I wouldn't see him again unless some further advice was required. So I don't anticipate talking to him again unless his original advice quits working. Sorry to hear that Ohio...
by pamhb
Mon Sep 11, 2017 4:57 pm
Forum: Augmentation
Topic: Seeking sleep months after going off Mirapex
Replies: 10
Views: 3801

Re: Seeking sleep months after going off Mirapex

Hey there. I have been in a similar position for the past year. I was on dopamine agents for about 18 years, and augmented to the point where I was experiencing continuous jack knife spasms when I attempted to transition to a new medication. I ended up on a cocktail of Neupro, gabapentin, and clonaz...