Restless Legs Syndrome (RLS) Discussion Board

We are always hopeful for some improvement with continued research.
However, at present, I don't believe there is a miracle cure for RLS

Friday 22 March 2024 Welcome today to Chris25 who has had RLS for 2 years. Seen local family and neurologist doctors and no answers. It's not good that none of your doctors have been able to help. Have you been provided with any treatment. You need to have your Ferritin Serum level tested, a blood t...

20 March 2024 Welcome today to Squirrel who is constantly tired. Bedtime sucks. Squirrell hates driving anywhere because of havng to sit and sitting on the commuter bus to get to work is dreadful. RLS seems to affect all aspects of life. Have you had your Ferritin Serum checked and do you know the e...

14 March 2024 Welcome to rskidmore who was diagnosed with RLS after 4 trips to the emergency room. Due to living in a small town, none of the ER personnel had observed a person experiencing RLS. Each time, rskidmore was given a prescribed sleep aide and went home. It wasn't until after expressing to...

My apologies. I was thinking of the 20+ that is often accepted as normal. Your ferritin is of course 44.

Your doctor has accepted that 20 is normal. We know that an rls sufferer needs to be up around 100. You could show him the Mayo Algorithm in my signature, in particular the section near the top where it refers to this and to the benefits of iron therapy.

Nor me.

Sunday 10 March 2024 Welcome today to Watermannz9 whose Restless legs have caused little sleep each night. Some nights the pain to almost unbearable. Lack of sleep is what drives many RLS sufferers to initially seek help and remains a challenge for many. If you will make a post giving details of you...

8 March 2024 Welcome today to Stephen who has been long suffering with RLS. Taking Gapabpentin with no relief. What’s next? Is Gabapentin the only medication you are taking to treat your rls symptoms? Sometimes it needs to be supplemented with another medication. Have you had your Ferritin Serum che...

Melatonin did nothing for me.

Well... You got rid of your rls symptoms with .5mg ropinerole and found some peace. When desperate we feel we'd do anything. Ropinerole actually works better if taken before (perhaps an hour) the time symptoms would be expected rather than when they are active. If done this way is it possible that t...

I hope you have a seamless switch from the Gabapentin to the Pregabaline. Good luck on your journey.

7 March 2024 Welcome today to PaulaWesterlund who is 88 and very sleep deprived, hence dragging in the daytime. Thinking now she is experiencing augmentation, since the restlessness begins 5 minutes after laying down at night after taking 50mgs. of ropinerole. So has to get up and become a Nightwalk...

I only ever sleep on my right side. A neck condition prevents otherwise. I was diagnosed with sleep apnea about 4 years ago.
As regards moisture, I have no idea. I don't use water with my cpap and my apneas are very low. At diagnosis they were 20 and using the cpap are around 1.

Tuesday 5 March 2023

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KALB0333 who wants to keep up to date with current research and funding and individual experiences. To share information. To share opinions.

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