Restless Legs Syndrome (RLS) Discussion Board

Hazel, sorry you had to go through that. Many of us have had similar situations. You were right, it is an older tricyclic AD and is NOT good for RLS. It may be good for sleeping, but not for RLS. In many ways, RLS is not a sleep disorder, it is a movement disorder. It may keep us from sleeping, but ...

No experience with specific multi-vitamins, but exercise is a known contributor. I have to maintain a certain level or my RLS gets worse. If I go beyond that level, however, it also gets worse. Fine line for me.

Ann

Becat I am not trying to compare it's just I haven't seen much of anyone posting about a 24/7 thing and it seems everyone is in some form of treatment and yet they are still having problems. I'll add to what becat said. People come here only in time of need. There are only few of us that hang aroun...

[/quote] So what your saying here is that everyone on here is having trouble with their meds cuz seems to me they have a come and go situation when they are on their meds. Like the rls breaks through their med. I guess im not understanding too much about it. Because I see a lot of ppl talking about ...

Jan, it must be frustrating to have had so little success in treating your RLS to date. In terms of frequency, there are many ways a person can be affected by RLS. becat posted recently that it is characterized by how often you have it - intermittant or daily - and how much time you have it when you...

Agreed, Sara. Hopefully Kittykat can print out this information and take it with her. It's much more effective to have information printed from the We Move organization or the RLS Foundation than just telling your doctor you heard it from a bunch of people on a message board .

Ann

I looked at your album earlier before I saw this post. Nice work! We have several artists aboard. Neph doesn't post much these days - his RLS is under control - he carves jade. becat does very cool Christmas trees specialized for her clients. Jan does guilts. I'm a photographer and stained glass art...

In the FAQ of this site, they say that it can be in any part of the body:

http://www.restlesslegs.org/faq.html#8

We Move also says it can be in other body parts and mentions the feet:

http://www.wemove.org/rls/rls.html

Ann

I'm woke tonight at 4 AM after not really falling into a deeper sleep to begin with and some RLS on top of it; I think my problems started because of two things. The first was that the DH and I 'scheduled' a romantic encounter, as I have to work sex around medications and sleep times, etc. It's not ...

becat, time to edit this to "900"! I had a difficult night tonight and came down to waste some time while I waited for my legs to calm down. I just happened to glance at the counter and it was 900! I just looked a couple of days ago and it was 887. The rate is sure fast and furious since those ads s...

Joined: 28 Oct 2004 Posts: 660 Location: Chicago Posted: Sun Jul 24, 2005 8:08 pm Post subject: Welcome All Newcomers -------------------------------------------------------------------------------- Welcome! Over time, there have been some very good posts that are great for newcomers to read. I noti...

If you can get him to change his mind and you haven't already had a difficult time, please try Requip (ropinerole) or Mirapex (pramipexole) (not sure the brand name in Europe). Sinemet is no longer consdered a good first choice among the dopamine agonists because such a high percentage of people get...

Ann, I saw my name mentioned in your post and I don't understand for what reason. Do I have to take any action? Is it my brainfog not understanding you? Anyway, probably not important. Corrie No, not important. Just mentioned that I couldn't remember exactly what DR B says about the number of peopl...

Clara, maybe becat will remember better, but I seem to remember from the RLS conference last year that the link is from Parkinson's to RLS, not the other way. If you have RLS, you will not have a greater chance of getting Parkinson's. but if you have Parkinson's you are more likely to get RLS than t...

Donna, I'm going to be presumptous and offer a little tip from many other people's experience with the dopamine agonists, or DAs. I'm not a doctor, but so many people have had the same experience here that I am compelled to write this definitively rather than as a suggestion . Please, please stay at...