Search found 14405 matches

by ViewsAskew
Sun Jan 22, 2023 9:27 pm
Forum: Prescription Medications
Topic: Opioid Tolerance
Replies: 18
Views: 10017

Re: Opioid Tolerance

I was told my doctor that going straight from augmented Pramipaxole to opioids may require escalating does of opioids and/or more opioids to control symptoms. The rationale is that the by not taking a drug holiday the dopamine system never has a chance to return to baseline. Hmmm - that is interest...
by ViewsAskew
Sun Jan 22, 2023 12:12 am
Forum: Prescription Medications
Topic: Methodone
Replies: 23
Views: 6196

Re: Methodone

I'm sorry for the late reply, but I've had a lot going on and can finally get back on here and wanted to update you on the methadone. Turns out I did sleep well with the methadone and it did well for preventing the rls to act up, but I had to fight to stay awake all day and would find myself fallin...
by ViewsAskew
Sun Jan 22, 2023 12:09 am
Forum: Prescription Medications
Topic: Meds after dental surgery triggering RLS
Replies: 2
Views: 673

Re: Meds after dental surgery triggering RLS

Surgery itself can be the trigger, Donna. Many theories, but they don't really know why.

But a quick internet search suggests toradol is associated with increased symptoms!
by ViewsAskew
Wed Jan 18, 2023 8:51 pm
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Racial Subgroup and Ethnicity
Replies: 6
Views: 3987

Re: Racial Subgroup and Ethnicity

The only I know about is that it affects Northern European ethnicities the most, and east Asian the least...that was years ago.
by ViewsAskew
Sat Jan 14, 2023 8:41 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: CBD infused cooling gel
Replies: 10
Views: 4145

Re: CBD infused cooling gel

Stainless wrote:
Fri Jan 13, 2023 4:49 pm
It's really helping me sleep on what otherwise would have been rough nights. Not very torn on whether to continue. Getting to sleep isn't such a wrestling match with my legs. Slept thru the night last night! A $60 pump dispenser might last a month.
That seems awesome to me!
by ViewsAskew
Sat Jan 14, 2023 8:41 am
Forum: Just Joined?
Topic: RLS and bladder spasm treatment using PTNS
Replies: 3
Views: 3383

Re: RLS and bladder spasm treatment using PTNS

Surgery often does make symptoms worse. Since this isn't surgery, I don't think it would be the same. But, just a guess.
by ViewsAskew
Tue Jan 03, 2023 7:01 pm
Forum: Prescription Medications
Topic: RLS treatment at Mayo Clinic in Jacksonville, Florida
Replies: 1
Views: 683

Re: RLS treatment at Mayo Clinic in Jacksonville, Florida

Interesting, Rick. Which specialist did you see that said receptors permanently damaged? I think Dr Ondo was working on this...but I may be remembering incorrectly.
by ViewsAskew
Sun Nov 13, 2022 7:33 pm
Forum: Just Joined?
Topic: Weaning off Ropinirole
Replies: 15
Views: 6224

Re: Weaning off Ropinirole

Hi jblackburn67. It is almost impossible to switch without the help of an opioid if you are augmented. It may cover symptoms later (it doesn't always do that for those who have augmented), but gabapentin cannot cover the symptoms as you cut back the ropinerole. It usually take between 5 days and sev...
by ViewsAskew
Fri Nov 04, 2022 5:58 am
Forum: General Topics: RLS
Topic: Article on Medical Gaslighting in the NYTimes
Replies: 4
Views: 4489

Re: Article on Medical Gaslighting in the NYTimes

That was a very good movie.
by ViewsAskew
Thu Nov 03, 2022 6:57 am
Forum: Help for Relationships
Topic: For Anyone Who Thinks RLS is a Joke
Replies: 29
Views: 43947

Re: For Anyone Who Thinks RLS is a Joke

I was nowhere close to your 30 years, but meditated regularly for about ten or so years (I also swam about a mile 5 days a week, and am sure that they worked together to change my life). Losing that practice has made my life so much more chaotic. It was slow, but over time I've become more reactive,...
by ViewsAskew
Mon Oct 31, 2022 10:53 pm
Forum: General Topics: RLS
Topic: Frustrated with it all!
Replies: 13
Views: 9201

Re: Frustrated with it all!

And crap, I didn't realize Dr B is 70. OMG. What will we all do?? He's such a life-saver!! I mentioned that to Dr Winkleman recently when we talked about the RLS opioid study they are doing - what was I going to do when DR B retires?????? Move to a new state???? What a freaking mess this can be.
by ViewsAskew
Mon Oct 31, 2022 10:48 pm
Forum: Augmentation
Topic: Is augmentation permanent??
Replies: 13
Views: 7488

Re: Is augmentation permanent??

So evidently rapid augmentation, and permanent augmentation, is not unusual. And yet, and yet, STILL the medical establishment is convinced augmentation can only occur if you've been on high doses for years. So much education of medical providers is still needed. It really needs to happen in Medica...
by ViewsAskew
Fri Oct 28, 2022 10:30 pm
Forum: Augmentation
Topic: Is augmentation permanent??
Replies: 13
Views: 7488

Re: Is augmentation permanent??

Beth, that is "interesting" that you augmented in just 4 months because so did I, and not at a very high dose. Anybody else out there who augmented quickly and didn't revert to their pre-DA condition? Maybe it's a thing. It was for me, too. We know of at least a handful of people here who didn't re...
by ViewsAskew
Thu Oct 27, 2022 5:34 am
Forum: General Topics: RLS
Topic: PLMD
Replies: 15
Views: 8800

Re: PLMD

Oops.. I meant to say that people who play racket sports have less Alzheimer's and less dementia than people who play other sports I had been playing pickleball last summer until I injured my hip. Maybe I need to get back to it. If only I could figure out what was causing the hip problem, darn it.