Search found 113 matches
- Sat Jul 16, 2005 3:04 pm
- Forum: Just Joined?
- Topic: RLS since 11 yrs. old
- Replies: 4
- Views: 1762
Lynnie, I'm not worried about the gambling part, but compulsive shopping could be a problem! No, actually it's mainly the augmentation and general crappy feeling of having so many drugs on board that I dislike. We must always balance the side effects with the great results we can get from various me...
- Fri Jul 15, 2005 4:18 pm
- Forum: Prescription Medications
- Topic: Something Disturbing I Just Found Re: Dopamine Agonists
- Replies: 7
- Views: 3722
Mirapex
Laurie, I'm a bit worried about increasing my .125 mg Mirapex dose (as it's no longer very effective) for a variety of reasons, this new study included. That would be just lovely, becoming even more of a compulsive shopper/eater! Good for you, being well informed and prepared when discussing treatme...
- Fri Jul 15, 2005 4:14 pm
- Forum: Prescription Medications
- Topic: Mirapex & Wellbutrin XL
- Replies: 10
- Views: 5479
Mirapex
Susan, I've been on .125 mg of Mirapex for over a year with great results for the first 12 months (6ish hrs of uninterrupted sleep). The last several months it has lost much of it's effectiveness and the RLS is again ruling my nights. I'm hesitant to increase the dose due to side effects and new stu...
- Fri Jul 15, 2005 4:03 pm
- Forum: Just Joined?
- Topic: RLS since 11 yrs. old
- Replies: 4
- Views: 1762
Hey Lynnie, I followed pretty much the same path as you, had RLS as long as I can remember, finally diagnosed about 10 years ago and started on a benzodiazapine which worked for a while. I've been on Mirapex over a year now, .125 mg, 1-2 hours before bed. It WAS a wonder drug for nearly a year, but ...
- Thu Jun 30, 2005 7:45 pm
- Forum: General Topics: RLS
- Topic: I NEED TO VENT
- Replies: 5
- Views: 1898
Aspertame/Nutrasweet
Sara, Fascinating info on aspertame, I'll have to do some research on that. I did a search on this site because I recently noticed my RLS would kick in if I had an afternoon Diet Coke (pretty rare that I drink soda). I generally don't eat fake sugars, much preferring the real stuff! I've also notice...
- Thu May 05, 2005 9:14 pm
- Forum: Just Joined?
- Topic: RLS and Iron supplements
- Replies: 2
- Views: 992
More Iron Info
Having ferritin (iron) levels checked is useful, but unfortunately taking supplements doesn't necessarily decrease or stop RLS. My ferritin levels are on the low end of the "normal" scale so I tried 3 months of high dose supplements per my doctor. Not only did it not affect my RLS, it did not increa...
- Thu May 05, 2005 8:57 pm
- Forum: General Topics: RLS
- Topic: feeling really terrible
- Replies: 35
- Views: 11738
Barb, Have you done any research on Thoracic Outlet Syndrome? It's a wild guess on my part, but some of your symptoms match. Check out this link for more info - the Symptoms page might be a good place to start: m A Google search will turn up a mess of links too. Hope you find answers and relief soon...
- Tue May 03, 2005 11:33 pm
- Forum: Physical Treatments
- Topic: Menopause and RLS???
- Replies: 5
- Views: 3748
RLS & Hormones
Heck yah, they're related in my case! My RLS kicks up a serious notch right before and during my period. Since secondary RLS happens for some women during pregnancy, I'd guess that's another hormonal connection. My iron is on the low end of the scale, but taking supplements for 3 months did nothing ...
- Thu Apr 28, 2005 4:18 pm
- Forum: Prescription Medications
- Topic: codeine
- Replies: 5
- Views: 3238
Opiods
Yes, they work wonderfully for me. I only take them for severe knee pain, maybe once a week, but if taken in the evening I sleep beautifully. I also take a low dose of Mirapex which works for awhile. The problem, of course, is their addictive properties and the unwillingness of docs to prescribe the...
- Thu Apr 21, 2005 4:53 pm
- Forum: Prescription Medications
- Topic: How does Miramax make you feel?
- Replies: 5
- Views: 3833
Mirapex
Hey there Love Child, I've been on .5 mg Mirapex for almost a year now with decent results. I take it 1-2 hours before bed and can usually get 5-6 hours of half decent sleep. It makes me feel sleepy, no other side effects. I do ocaisionally increase the dose to 1.0 mg if I haven't slept in awhile. I...
- Thu Oct 14, 2004 4:05 pm
- Forum: General Topics: RLS
- Topic: Chocolate Denial
- Replies: 3
- Views: 2069
Chocolate Denial
Ok, I know chocolate has caffeine and can be an RLS trigger, but it's never been a problem for me in the past - and I LOVE chocolate, especially dark. So yesterday afternoon I purchased this lovely bar of organic dark chocolate, 97% cacao, and proceeded to savor it, bite by bite. Those of you who ar...
- Thu Oct 14, 2004 3:47 pm
- Forum: General Topics: RLS
- Topic: Altitude/elevation affecting RLS symptoms
- Replies: 16
- Views: 9355
Pete, Sorry to go totally off topic, but what part Switzerland? My family is from Neuchatel and St. Prex (close to Geneva), and most still live there. I've been back many times over the years, but not close to yearly! Interesting thoughts on altitude - living at sea level I've never had this issue. ...
- Thu Oct 14, 2004 3:39 pm
- Forum: Just Joined?
- Topic: Self-diagnosed
- Replies: 169
- Views: 48622
Most excellent, finding a neuro you can work with (and teach!). I'm happy for you, Jumpy. Regarding a new thread, YES, PLEASE! For me it would be nice to see threads that relate to specific people titled so they're easily identifiable (Heron's Story, whatever), and hopefully the responses would stay...
- Tue Oct 12, 2004 5:36 pm
- Forum: Prescription Medications
- Topic: My RLS Mountain....
- Replies: 183
- Views: 51822
Brady, Wow, not sure how to respond except with empathy. I've never had an addiction problem, so can't relate on those terms, but the dilema seems impossible. The risk a doctor takes in prescribing narcotics to an ex-addict seems too great to take. I'm not being judgemental, I'm just wondering how y...
- Tue Oct 12, 2004 4:20 pm
- Forum: Just Joined?
- Topic: slightly shocked
- Replies: 2
- Views: 1942
Welcome Guest, You are giving your son a gift, just by being aware of RLS, and believing it is more than growing pains. He may have PLMD, Periodic Limb Movement Disorder which could explain the kicking/twitching. Educate yourself as much as you can prior to seeing your doc/ped - many doctors are not...