Restless Legs Syndrome (RLS) Discussion Board

Hello there Beth I was wondering ...If you could tell me which specialist you see in Alberta?? Or if you do ?? Not sure if I have this correct :) I was going to see a doc in Alberta once too but the waiting list was of course 2.5 years and they would not take my name....I forgot his name as well :( ...

...........Before I forget I did impress the fact that I am augmenting etc
Have symptoms throughout the day
As well she said the hospital would not allow me to have any ferritin infusions cos my iron is good
But she would send me for Magnesium infusions

Hello All Well I just returned from my doc and she showed me the new information about RLS Information she receives To me it's old news Anyways it was suggested to use the Rotigotine 2 MG / 24hour patch As well as Carbamazine 200 mg tablets Just wondered about these 2? Any input would be helpful Tha...

Hi there Badnights:) Yes; it's a bit less for sure !! Well I did ask about the infusions of course and she said there's no need cos my iron is ok I did explain..but hmmm She's an amazing doc but in this dept it's not working to date I see her next week and hope and Pray things will change Totally wi...

Hi again
Here's a breakdown of my Hematology panel
Hemoglobin 129, ( Iron 17) Iron Binding (73) Iron Saturation (0.23) Ferritin (59) Am I missing anything ? [could have shared this before?]

Thanks ! for all of your help Marie Oceanwalker

Well ( *sighs ) back to the long haul of coming off the Ropinirole Went down to 4/day of 0.25 All seemed OK and then after a long while..poof it became worse again :( I didn't want to but I did go back to 5/day of 0.25 It's been a Horror Show but I guess this happens on occasion No doc listens to me...

Hello Polar Bear and YaY!!!! for not giving up and YaY!! that you did receive your stated amount of Codeine!! I am as well decreasing my Ropinirole and on 4 Ropinerole per day right now . I started with 8XRopinirole/Day This is a long process Awesome that you Did this !! I know this is difficult but...

Hello Beth and many thanks for all your important information !!!

I will look over all of this !!
...will get back to you

Sincerely,
Oceanwalker (Marie)

Ann and Betty and Everyone who answered my posts...thank you so much !! All I can do is wait until I see my doc I can assure everyone that I would NEVER be put on methadone! Always had been able to get off the Da's on my own...difficult but doable (all in time ) I never took this much Ropinirole Alw...

Thank you so much Betty I will take this information next time I see my doc

Appreciate your info !

Sincerely,
Oceanwalker


Marie

Just Curious ?
Approx how much of a daily amount of opiods does one need to take in a day to come off of a DA?
Assuming it would be for me 5-6 ( 0.25 each) slowly tapering from 8/day
Thank you

Oceanwalker


Marie

Hello Belsheart !
I am so sorry you are going through this !

All the best

Let me know how it's going ?

Sincerely,
Oceanwalker

Marie

Hi and thanks Ann:)
This is good:) Happy she does get the opiods!!
Yes it is good for Canada!

Thank you for sharing this with me and I will in turn share this with my doc

Sincerely,
Oceanwalker

Marie

Hello Steve Rustsmith.... I totally understand and get you. There's no way I could be on any type of opiod for my RLS I have not met a doc yet that believes this . Although it's true ..going on a mild opiod for a bit for help in withdrawing from the Ropinirole ..they just would not do this here in C...

Hey Views aka Ann
Thank you so very much
I will do what I am able to

Marie