Restless Legs Syndrome (RLS) Discussion Board

Tuesday, February 4

Welcome to

engyte0, whose RLS has been keeping engyte0 up at night.

Please post a note telling us what you are doing to manage your RLS so that we can offer suggestions on how to get more rest.

Tuesday, Feburary 4

Welcome to

mack, who would like to swap RLS experiences with people who know about this illness. It isn't doing much good keeping to himself.

Please post a note with one of your experiences or asking any questions that you have.

Monday, February 3 Welcome to RLSlou, whose RLS destroying her life. Doctors don’t believe how severe this is for her & just prescribe meds that don’t work. The only thing that even touches her symptoms & gives her any relief is methadone but there’s such a stigma attached to it because of the opioi...

He ordered another sleep study. No also live at 8,000 ft, plus taking methadone. These contribute to the central sleep apnea. I have been having more trouble lately. If it turns out the way he thinks, I could be eligible for an implant to control the central sleep apnea. Deb, I don't know how I mis...

Monday, February 3 Welcome to pattywon, who inherited RLS from her father who has been battling it since he was in college. Her first memory of RLS related insomnia occurred when she was ~10 years old sleeping at a relative's. She is now 31 and the condition has intensified as she has aged. Among th...

Dave, thanks for your kind comments. While I was on the inside, I kept telling the staff that they were preventing me from providing care for my disabled wife and from helping others through this site and one other that I help with. I guess that when you work at a place like that, you become quite j...

Monday, February 3 Welcome to miki, whose RLS has caused her to restrict her evening activities, including movies, dining out and extended travel. She is looking for coping strategies. We can provide you with loads of coping strategies. Take a look at our forums on Physical Treatments and Non-Prescr...

Dave, I had to way a day to respond because a couple of points that you made about your history hit a bit too close to home for me. You are in excellent hands with Dr Ondo. He was my RLS doctor until I moved away from Houston a few years ago. I was on the patch during most of my time with him and he...

Sunday, February 2 Welcome to Thia M, who has suffered with RLS for 20 + years and is no 64. She is plagued by severe symptoms in her legs and my arms. She gets short unrestful sleep. She has been prescribed a plethora of medications, but nothing truly helps. The give her brain fog or interact negat...

Saturday, February 1 Welcome to Edyb, who has had RLS for several years. It affects her hands and arms too. She takes Requip which only works moderately. She is lucky to get 4 hours of sleep. Please post a note telling us what dose of Requip you are taking so that we can offer you some suggestions t...

At one point my GP said that the max dose pretty much depends upon side effects, which are specific to the individual. But he joked that anyone who was trying to get high off of it could take over 3600mg at a time and that all they would get is a long nap.

Saturday, February 1 Welcome to gracelands618, who wants to learn more about meditations. Graceland's doctor doesn’t seem to know much. Unfortunately, ignorance of RLS is something that is common among doctors. Take a look at our forum on Physical Treatments and you may find something on meditation....

Saturday, February 1

Welcome to

jjdaly4127, who needs to be able to trade info on helping alleviate the pain of RLS.

Please post a note with some of the info that you would like to trade and we can begin that process.

His regular office is in Downey, CA (Los Angeles area). His phone number there is (562) 904-1101

Thursday, January 30 Welcome to golub, who has been suffering from RLS since at least 1999 and was finally diagnosed in 2016. golub has found the RLS organization extremely helpful and encouraging, but still has a few questions. Please post a note with your questions and if we cannot answer them, we...