Search found 1284 matches

by stjohnh
Fri May 10, 2019 1:50 pm
Forum: Just Joined?
Topic: New here, just diagnosed but not sure it really is RLS...
Replies: 30
Views: 3549

Re: New here, just diagnosed but not sure it really is RLS...

Hey all, I know several of you have already spent way too much of your time responding to my posts and concerns, but I would really love to hear your thoughts on my last post about the diagnosis and the treatment plan. Any insight is very much welcome. Mostly sounds reasonable. Only a couple of qui...
by stjohnh
Fri May 10, 2019 1:50 am
Forum: Just Joined?
Topic: New Member
Replies: 12
Views: 919

Re: New Member

Thanks Holland! My ferritin level is 58. Do you think the oral iron will help? Well, that is in the maybe range. Iron is cheap and easy to try, so you definitely should take it for at least two months. 65mg iron (as 325mg Ferrous Sulfate) +500 mg vit C on empty stomach daily. Also, your doc will in...
by stjohnh
Thu May 09, 2019 1:05 am
Forum: General Topics: RLS
Topic: RLS remission - why?
Replies: 7
Views: 1074

Re: RLS remission - why?

Welcome to the RLS forum community Dr. Hoskme ! You will find, or have already found, that the members of this board represent a considerable body of knowledge, experience and compassion. RLS is notoriously fickle. For reasons that are unclear, consistent responses to medications or other treatments...
by stjohnh
Wed May 08, 2019 8:10 pm
Forum: Just Joined?
Topic: New Member
Replies: 12
Views: 919

Re: New Member

Hi. I just joined this week. I've had RLS for a few years... He agreed and the results showed me to be in the "low/normal range." The doctor suggested I take 325 mg of iron per day. Has anyone gone this route, increased their iron level sufficiently enough to stop the Pramipexole? ... Hello wkpalle...
by stjohnh
Wed May 08, 2019 6:45 pm
Forum: Prescription Medications
Topic: Rotating Meds
Replies: 23
Views: 1316

Re: Rotating Meds

I never tried rotating meds, but several who post on this board do, with varying success as I recall. I had my best results (prior to my iron infusions) with low doses of multiple meds. For you that might look like ropinirole 1/2 of a 0.25 mg tablet, continue clonazepam and Lyrica, add low doses of ...
by stjohnh
Wed May 08, 2019 2:33 pm
Forum: Prescription Medications
Topic: Cannabis
Replies: 180
Views: 28693

Re: Cannabis

Thanks for the info. For me, the several strains I tried all seemed to work about the same, but none had very low CBD content. I don't remember any worsening urge to move symptoms with any of them, either inhaled or eaten.
by stjohnh
Tue May 07, 2019 9:53 pm
Forum: Prescription Medications
Topic: pramipexole and thinning of my finger nails
Replies: 5
Views: 421

Re: pramipexole and thinning of my finger nails

Hi stathamiaura, Welcome to the RLS community. You will find lots of people with lots of experience with the problems, treatment, and difficulties that result from Restless Legs Syndrome. Plenty who get it as far as understanding how horrible life can get if you have severe RLS. I haven't heard of n...
by stjohnh
Sun May 05, 2019 1:53 pm
Forum: Prescription Medications
Topic: How should I taper of my 1 mg of ropinirole?
Replies: 2
Views: 461

Re: How should I taper of my 1 mg of ropinirole?

No need to taper. Just stop it. Higher doses are more of a problem for people with RLS. Since you probably don't have RLS, you shouldn't have any withdrawal problems from just stopping it.
by stjohnh
Sat May 04, 2019 1:01 am
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 93
Views: 14964

Re: Experience with Injectafer?

Well, I am now about 6 months post Injectafer infusions. I got over the speed bumps of whooping cough and shingles. I continue with frequent colds, the downside of having a 3 year old and 4 year old grandson and granddaughter around frequently. RLS remains 95% controlled. I occasionally get a mild u...
by stjohnh
Fri May 03, 2019 4:34 pm
Forum: General Topics: RLS
Topic: Very Tired
Replies: 90
Views: 6926

Re: Very Tired

When I was on multiple meds at multiple times, I set out a day's dosing at a time. I tried to be very careful about skipping doses (usually caused poor sleep or jumpy legs) or extra doses (zombie like next day). I took particular care as I was well aware that some days my brain was so goofy that mis...
by stjohnh
Fri May 03, 2019 4:29 pm
Forum: Prescription Medications
Topic: IRLS Study group and iron IVs
Replies: 13
Views: 3415

Re: IRLS Study group and iron IVs

The IRLSSG guidelines for US are Injectafer 750mg then repeated 5-7days later (1500mg total).
by stjohnh
Thu May 02, 2019 1:59 pm
Forum: Augmentation
Topic: Is this really my new "normal"?
Replies: 17
Views: 14356

Re: Is this really my new "normal"?

It has now been 4 days and I am very close to giving up and taking some of the pramipexole. I think I have slept maybe 5 hours in the last 48 hours. My GP is being very difficult about even reading the RLS literature, wants to refer me to a neuro before any other treatment options are considered, a...
by stjohnh
Tue Apr 30, 2019 10:44 pm
Forum: Prescription Medications
Topic: Doctors in Seattle?
Replies: 2
Views: 386

Re: Doctors in Seattle?

Hi annski, Welcome to the RLS online community. Lots of great folks here to help out. I'm no where near Seattle, so I can't give you a doc's name. The DEA tracks a doctor's narcotic prescriptions and puts pressure in a number of ways on the doc or the doc's employer if the number of narcotic RXs get...
by stjohnh
Tue Apr 30, 2019 1:30 pm
Forum: Prescription Medications
Topic: Anyone ever been told trazadone caused their RLS?...
Replies: 10
Views: 938

Re: Anyone ever been told trazadone caused their RLS?...

Trazadone can cause RLS symptoms because it has central antihistaminergic properties. All drugs who have such effects can cause and worsen RLS symptoms which is the reason why so many antidepressants are problematic for RLS patients and those who have a vulnerability to develop such symptoms. While...
by stjohnh
Tue Apr 30, 2019 3:54 am
Forum: Augmentation
Topic: How long before I should worry about augmentation?...
Replies: 13
Views: 9241

Re: How long before I should worry about augmentation?...

Usually ropinirole works well and quickly for people with mild RLS. It can sometimes be used as a sort of diagnostic test, since nearly everybody with mild RLS gets good relief. The fact that you have only had slight relief suggests, as do your symptoms, that there is some other problem, not RLS. Ch...