Restless Legs Syndrome (RLS) Discussion Board

Thursday, June 27

Welcome to

M5austin, who wants to share information on RLS and monitor government policy.

Please post a note telling us a bit about what you do to manage your RLS and asking any questions that you have.

If you don't get access soon, give the office a call. They will be happy to help you out.

Previous studies found a correlation between cardiovascular disease (CVD) and RLS, particularly in women. This extension to that previous study found that the risk of CVD was almost eliminated by effective treatment of the RLS. https://academic.oup.com/sleep/article-abstract/42/Supplement_1/A268/545...

Wednesday, June 26 Welcome to jacy5, who can't stay still long enough to go to sleep. jacy has to walk then starts having leg cramps, then gets anxious and can't concentrate and the list just goes on. jacy has been taking Pramipexole and the doctors keep wanting to change to Requip, which does not h...

Tuesday, June 25 Welcome to kimberlywm, who has become disabled due to her RLS. She is a teacher and has not been able to work, drive or function on a daily basis. Along with the RLS, she has chronic insomnia at the same time. She has become a prisoner of her illness. On a side note, she has even wo...

Tuesday, June 25 Welcome to LRenery, who is the fourth of a line of women in her family to have RLS; she has had it in her legs, arms and now shoulder blades (betw them) since she was 10. It had been occasional until she went on Requip and suffered TERRIBLE augmentation. Now she is using opioids to ...

Maybe if you showed a copy of this paper to the doctor at the pain clinic, they would rethink their position.

https://www.mayoclinicproceedings.org/a ... X/fulltext

Monday, June 24 Welcome to Tystix, who has struggled with RLS for years. No matter the treatment, augmentation returns. Then frustration and depression make life a challenge. Please post a note telling us about the meds that you have augmented on. There are treatments for those of us who have been t...

This supports the failure of advances in rls understanding as there are zealots over neurology, iron, dopamine and circulation that ignore the physical and microbiome aspects, and ultimately more practical solutions. Top I very much disagree with this statement. First, RLS research has been going o...

Sunday, June 23 Welcome to Trisilex, who has severe RLS and it is disrupting life. Trisilex has found that Opioids are the only thing that works and NEEDS an alternative because Trisilex's doctor will not prescribe them. The alternatives are iron therapy (oral and IV), dopamine agonists and glutamat...

Here is another publication by Dr Ferre on Adeonsine. The full article is not available, but the free first page is half of what was written. He also adds to the sequence in which the various transmitter/receptors work. The importance is that he postulates that DAs and gabapentin both work through t...

Saturday, June 22 Welcome to Sueguz53, who started having symptoms when she was a teenager. It came and went during younger years but became really bad about 5years ago. Please post a note telling us what you are currently doing to manage your RLS so that we can offer you some suggestions for improv...

Saturday, June 22 Welcome to Janetbo, who has a cold and is taking medications that increase her symptoms. Usually she can manage by avoiding medications, caffeine, etc. She wants to see if she can find help for managing when she has a respiratory infection. The problem is the Bendryl that is in you...

Friday, June 21

Welcome to

Doreen, who cannot travel by plane as her RLS makes it impossible.

Please post a note so that we can offer you some work arounds that make traveling by air possible.

Friday, June 21 Welcome to LisaAnn27, whose RLS has put a stop to her normal life. She dreads waking up in the morning and especially going to sleep at night. She needs help and advice. Please post a note telling us what you are doing to manage your RLS so that we can offer you some specific suggest...