Restless Legs Syndrome (RLS) Discussion Board

I agree Ann, it is unconscionable and I wish the bad doctors out there had to walk, or in our case not walk a mile in our shoes but hold still, no stretching allowed. My husband is working a call shift today so I cant be taking care of my kids with no sleep. How horrible of her. Just got home from U...

I really wonder about that too. It sucks having Kaiser in that they are your insurance and your provider. I am so mad I can't understand how a doctor can be so heartless. I worked for doctors for years, and their egos often interfere with following the Hippocratic oath. I am off for a bad night, I c...

I asked my doctor for a referral to a sleep specialist and her reply was she is referring me to a neurologist. She seems to think it is okay to have such sleep deprivation that I hallucinate. I am switching doctors on Monday but have Kaiser so my hands are mostly tied about seeing specialist. I don'...

Thanks PB. Be happy to snore, I think it at least means you are sleeping right? I am so very disenchanted with my medical care right now. The Mirapex is causing my already low bp to go even lower, her solution is to put me back on requip which I did not tolerate at all. Its weird, although I slept l...

Eefall I for some reason missed your post but it was great so thank you. I will try to stay of couch but I have to move so much that I can't stay in bed when my husband is home and symptoms are bad. Our master bedroom is downstairs, our 2 kids have rooms upstairs and we have a bonus room with an unc...

I am still taking the western reserve stuff although I still have some really bad nights and get no sleep at all. I am also taking vit d, vit b12, iron, calcium, magnesium, and Mirapex. Oh and trazadone for sleep which is a joke. I bet it would work great if I wasn't having such WED symptoms. I real...

Thanks Ann, that helps a lot. Luckily I don't get any real symptoms during the day, and with his schedule 24 on 48 off and yeah the kids are back in school we managed to "connect" this morning:) I feel a lot better. I know what you mean by that look in their eyes, breaks your heart. He hat...

Hi Corynski, I talked to my sister in law last night, she is the one that was paralyzed a year ago in motorcycle accident, sent home on 22 rx's, and now on only medical marijuana. She is going to have me try some oil that has helped with her muscle spasms and it seems she also has WED which she didn...

Not sure if low bp is at all to blame, it has always been low, just not this low. Still waiting for heart monitor results. It figures I slept okay last night and was looking forward to my husband coming home this morning and of course he gets a call shift so won't be home til tomorrow morning. I wil...

Thanks Polar Bear I don't think its a libido issue, its like sensory over load to have him touch me. Normally when we go to bed I read, he puts his hand on my shoulder and falls asleep. Last time he did that it not only made me physically anxious because I felt I certainly can't move if his hand is ...

I have such a great husband but I know this WED cant be understood by someone who has never had it. I have been staying on couch because I don't want to keep him up. He is a fire fighter and gets very little sleep while at work for his 24 hour shift so I want him to get all the sleep he can while at...

The side effects I am getting from Mirapex are nausea, dizziness, and lack of appetite. This combined with my low bp and heart rate make me very lethargic, well that and lack of sleep. One thing I have figured out is that if I am really active during the day I can count on severe WED symptoms with a...

Thanks Polar Bear, I would love to go to S. Cal so will check into seeing Dr. B. We have some great hospitals and medical schools in Portland Oregon and in Seattle area so will look into that.

Beth I found your previous post about sativa vs indica. I wonder if that was the deal with my success and my failure the two times I tried it. Now I can I ask my friend for the sativa strain and try it again. I would be thrilled to have marijuana side effects as opposed to Mirapex side effects.

Where is Dr B located? At this point I am willing to fly to the moon, on second night of no sleep, I even took 2 Mirapax. I can take up to 4 but don't want to do to side effects. It has always been in my arms I think, and I think the arms are more unbearable then the legs. Off to air box my arms unt...