Search found 25 matches

by KDecker1612
Wed Jul 09, 2014 12:56 pm
Forum: Just Joined?
Topic: Severe RLS/WED for over 20 years
Replies: 3
Views: 784

Severe RLS/WED for over 20 years

I was diagnosed in my mid 20's. My doctor sent me to a sleep specialist who prescribed Mirapex. It was miraculous! The miracle lasted for years for me, though I was gradually increasing my dose. By the time I hit my late 30's, I was at maximum dose of Mirapex, taking 1800mg gabapentin and Klonopin (...
by KDecker1612
Wed Jul 09, 2014 12:29 pm
Forum: Physical Treatments
Topic: Newly Approved Device - available in US
Replies: 47
Views: 23227

Re: Newly Approved Device - available in US

I am in the severe category and it would not work for me. Using a vibrating massager anywhere on me can trigger my legs. I've often dreamed of a device that could provide a deep muscle massage - it would have the large balls inside that rotate and press into the muscle, like a massage chair, only f...
by KDecker1612
Tue Jul 08, 2014 1:41 pm
Forum: Physical Treatments
Topic: Newly Approved Device - available in US
Replies: 47
Views: 23227

Re: Newly Approved Device - available in US

I am in the severe category and it would not work for me. Using a vibrating massager anywhere on me can trigger my legs. I've often dreamed of a device that could provide a deep muscle massage - it would have the large balls inside that rotate and press into the muscle, like a massage chair, only fo...
by KDecker1612
Tue Jul 08, 2014 1:30 pm
Forum: Physical Treatments
Topic: Please Read 25 Years of Research Pays Off
Replies: 12
Views: 11157

Re: Please Read 25 Years of Research Pays Off

Were the ones recommended once a day taken in the morning or evening?
by KDecker1612
Tue Jul 08, 2014 1:23 pm
Forum: Physical Treatments
Topic: Sleep position
Replies: 34
Views: 14200

Re: Sleep position

I have had to go to sleep on my stomach for years. If my legs are quiet, lying on my back will get them going in minutes, guaranteed. So I lie on my stomach. If only one leg is bothering me, I stretch that one flat and crook the other. If it's both, I have to stretch both out and lie flat on my stom...
by KDecker1612
Tue Jul 08, 2014 1:09 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Low Carb High Good Fat Diet
Replies: 11
Views: 5616

Re: Low Carb High Good Fat Diet

Last year I went on Atkins for the first time and lost about 70lbs. I went off it gradually in late summer. My legs were better through the fall and early winter, then started getting worse again. I recently had to increase my meds. I have also gained back almost all the weight. I didn't equate my s...
by KDecker1612
Thu Sep 19, 2013 1:04 pm
Forum: General Topics: RLS
Topic: Who is your favorite doctor?
Replies: 149
Views: 141415

Re: WED/RLS doctors

Dr. Valley, Kettering Medical Center Sleep Disorders Clinic, Dayton, OH
by KDecker1612
Thu Sep 19, 2013 12:57 pm
Forum: General Topics: RLS
Topic: Relief when you are sick
Replies: 5
Views: 882

Relief when you are sick

Hello all. Like most of you here, I have WED/RLS 24/7 without meds. I am on Mirapex, .75 mg/day. I avoid caffiene and eat a lot of meat for the iron. My symptoms have been getting worse lately, so I figure I'm beginning to augment. It's going to be tough, as I don't have insurance and don't even hav...
by KDecker1612
Mon Sep 16, 2013 1:48 am
Forum: General Topics: RLS
Topic: A Statagy for Fixing Me - My Visit to a RLS/Apnea Guru
Replies: 528
Views: 63548

Re: A Statagy for Fixing Me - My Visit to a RLS/Apnea Guru

Hello everyone. I'm new here. Eefall, I read your saga with intense interest. I am 49 years old. I have had RLS/WED for over 20 years. At first it was occasional, but then it became severe, every night. My doctor referred me to a specialist, who put me on Mirapex, .125mg. It was a miracle! No side e...
by KDecker1612
Sun Sep 08, 2013 10:16 pm
Forum: Prescription Medications
Topic: Changing Drugs
Replies: 34
Views: 4485

Re: Changing Drugs

I haven't combined those two drugs myself. I have taken Mirapex and Neurontin together. I was taking the max of Mirapex a few years ago, and had to go on what they call a "drug holiday". I stopped all meds except my thyroid and neurontin for 2 weeks )HORRIBLE experience!). Then I went on R...