Search found 25 matches
- Wed Jul 09, 2014 12:56 pm
- Forum: Just Joined?
- Topic: Severe RLS/WED for over 20 years
- Replies: 3
- Views: 784
Severe RLS/WED for over 20 years
I was diagnosed in my mid 20's. My doctor sent me to a sleep specialist who prescribed Mirapex. It was miraculous! The miracle lasted for years for me, though I was gradually increasing my dose. By the time I hit my late 30's, I was at maximum dose of Mirapex, taking 1800mg gabapentin and Klonopin (...
- Wed Jul 09, 2014 12:29 pm
- Forum: Physical Treatments
- Topic: Newly Approved Device - available in US
- Replies: 47
- Views: 23227
Re: Newly Approved Device - available in US
I am in the severe category and it would not work for me. Using a vibrating massager anywhere on me can trigger my legs. I've often dreamed of a device that could provide a deep muscle massage - it would have the large balls inside that rotate and press into the muscle, like a massage chair, only f...
- Tue Jul 08, 2014 1:41 pm
- Forum: Physical Treatments
- Topic: Newly Approved Device - available in US
- Replies: 47
- Views: 23227
Re: Newly Approved Device - available in US
I am in the severe category and it would not work for me. Using a vibrating massager anywhere on me can trigger my legs. I've often dreamed of a device that could provide a deep muscle massage - it would have the large balls inside that rotate and press into the muscle, like a massage chair, only fo...
- Tue Jul 08, 2014 1:30 pm
- Forum: Physical Treatments
- Topic: Please Read 25 Years of Research Pays Off
- Replies: 12
- Views: 11157
Re: Please Read 25 Years of Research Pays Off
Were the ones recommended once a day taken in the morning or evening?
- Tue Jul 08, 2014 1:23 pm
- Forum: Physical Treatments
- Topic: Sleep position
- Replies: 34
- Views: 14200
Re: Sleep position
I have had to go to sleep on my stomach for years. If my legs are quiet, lying on my back will get them going in minutes, guaranteed. So I lie on my stomach. If only one leg is bothering me, I stretch that one flat and crook the other. If it's both, I have to stretch both out and lie flat on my stom...
- Tue Jul 08, 2014 1:09 pm
- Forum: Non-prescription Medicines, Supplements, Diet
- Topic: Low Carb High Good Fat Diet
- Replies: 11
- Views: 5616
Re: Low Carb High Good Fat Diet
Last year I went on Atkins for the first time and lost about 70lbs. I went off it gradually in late summer. My legs were better through the fall and early winter, then started getting worse again. I recently had to increase my meds. I have also gained back almost all the weight. I didn't equate my s...
- Thu Sep 19, 2013 1:04 pm
- Forum: General Topics: RLS
- Topic: Who is your favorite doctor?
- Replies: 149
- Views: 141415
Re: WED/RLS doctors
Dr. Valley, Kettering Medical Center Sleep Disorders Clinic, Dayton, OH
- Thu Sep 19, 2013 12:57 pm
- Forum: General Topics: RLS
- Topic: Relief when you are sick
- Replies: 5
- Views: 882
Relief when you are sick
Hello all. Like most of you here, I have WED/RLS 24/7 without meds. I am on Mirapex, .75 mg/day. I avoid caffiene and eat a lot of meat for the iron. My symptoms have been getting worse lately, so I figure I'm beginning to augment. It's going to be tough, as I don't have insurance and don't even hav...
- Mon Sep 16, 2013 1:48 am
- Forum: General Topics: RLS
- Topic: A Statagy for Fixing Me - My Visit to a RLS/Apnea Guru
- Replies: 528
- Views: 63548
Re: A Statagy for Fixing Me - My Visit to a RLS/Apnea Guru
Hello everyone. I'm new here. Eefall, I read your saga with intense interest. I am 49 years old. I have had RLS/WED for over 20 years. At first it was occasional, but then it became severe, every night. My doctor referred me to a specialist, who put me on Mirapex, .125mg. It was a miracle! No side e...
- Sun Sep 08, 2013 10:16 pm
- Forum: Prescription Medications
- Topic: Changing Drugs
- Replies: 34
- Views: 4485
Re: Changing Drugs
I haven't combined those two drugs myself. I have taken Mirapex and Neurontin together. I was taking the max of Mirapex a few years ago, and had to go on what they call a "drug holiday". I stopped all meds except my thyroid and neurontin for 2 weeks )HORRIBLE experience!). Then I went on R...