Restless Legs Syndrome (RLS) Discussion Board

Very nice poem....sounds like my life with Drs and meds.

Oh I meant to tell you...my WED is in my ankles and one arm. That is why so many doctors look at me like I am nuts. Half the time I get "I have never heard of it in the ankles." I was so glad for the name change mostly for that reason...WED will attack whatever place it wants and it appara...

Jakesmom..you are right about the brain. I had went back and corrected myself and put head. Either way it has to suck to be in that part of the body...I think that would be the worse place to get it. As for my doctor that was so open and caring. I loved him..really. I cried the first day I met him. ...

Jakesmom...I think the highest dose of Pramipexipole is 3 mg for WED sufferers...but it is much higher for Parkinsons patients. I am not sure why it makes any difference if the dose is for WED or Parkinsons but the dosing recommendations are much higher for Parkinsons people. I was at 3.5 mg of Pram...

ViewsAskew you are so right about the healthcare system here. It really makes no sense to me. I think the Obamacare or whatever anybody wants to call it was a good thing. It keeps insurance companies from stepping in and putting a limit on what they will pay...for instance in the case of a cancer pa...

I know he said that he was either treating somebody or he knew of somebody that it was in their head or brain. I should have put both before.. I guess there is a difference. Either way it would really suck to have painful funky feelings in your head. As I told the judge I can tell him what it feels ...

Ok I think this is how the process goes..first of all it is the Harvard Brain Bank not the John Hopkins...I always knew I would get into Harvard one day.LOL Only your brain tissue goes to the brain bank. They say that unfortunatly brain donation for research and organ donation are generally not comp...

Not sure if this is where I should put this but if it is in the wrong place maybe somebody could move it to where it belongs. This is for those that have never heard of the brain bank. I believe it is through John Hopkins. They need WED brains to do research with. They also ask for some healthy brai...

I am willing to help with anything also. I have written twice to Dr. Oz and no luck and I wrote to Ellen with no luck. Maybe if we all pick a talk show that we agree might help to get the word out and we all write at the same time...bombard them with letters and then maybe they would get a clue to h...

Yikes...drug holiday. That is a scary thought. I have been through two of them in the last 4-5 years. The first one in 2008...with a doctor that was learning and so was I. It was the worse pain and time of my life. I truly thought I was going to die during it. The doctor kept giving me stuff to take...

Thank you everbody..it is a huge relief to have that behind me. I am so thankful that I had a decent judge and he understood and believed me. That makes me feel good....so many people just think this is some silly disease and that it can't be that bad...I keep telling those same people to walk in my...

Awww Jakesmom....Huge hugs!! I know it seems like you are looking down a long dark tunnel right now and it may look like there is no light at the end of it...but there is...it just takes awhile to see it. I don't remember who said something about baths...but the tub is where I spent a lot of time wh...

I won...I get my disability. I got it due to the WED and the crappy drugs that I have to take to control it and mental issues...depression. It also says in there that I had tried to stay employeed as long as I could before I was fired. It stated that I had cut my hours back little by little over the...

Debrasuzan...I am still waiting to hear back from them. They said about a month and today is 3 weeks since the hearing. I am still crossing fingers that this judge understood what I was trying to tell him. If he denies it there is another appeal process to go through. Not sure of your age but they s...

Jakesmom...I put the patch on around 10:00 in the morning. I kind of figured that way I would have something in me all day and at night I would booster it with the Mirapex. Right now..the last 5 days.. I have not had to take any pain meds. I was taking Vocoden and Oxycodone just to make it through t...