Search found 103 matches

by pamhb
Fri Sep 23, 2016 8:40 pm
Forum: Physical Treatments
Topic: RLS and Increasing Circulation in Legs
Replies: 32
Views: 11696

Re: RLS and Increasing Circulation in Legs

I was able, through my doctor, to get a full copy of the journal article, "Pneumatic compression devices are an effective therapy for restless leg syndrome: a prospective, randomized, double-blinded, sham-controlled trial" by Lettieri CJ, CHEST 2009; 135:74-80. The study used an Aircast Ve...
by pamhb
Sun Sep 11, 2016 11:28 pm
Forum: Physical Treatments
Topic: Tried a girdle last night
Replies: 5
Views: 4170

Re: Tried a girdle last night

Try a Spanx (or similar shapeware) cami. I have a couple which are very tight fitting, and the equivalent of a "girdle" for the torso and upper body. Good luck!
by pamhb
Sun Sep 11, 2016 10:35 pm
Forum: Physical Treatments
Topic: RLS and Increasing Circulation in Legs
Replies: 32
Views: 11696

RLS and Increasing Circulation in Legs

I have had RLS for most of my life, and have been using dopamine agents for the last 18 years. I have gone from moderate to severe symptoms, which I believe are a result of augmentation, and which an upcoming washout will shed some light on. While I am currently on Neupro, I still have about 2 bad n...
by pamhb
Tue Jun 28, 2016 2:25 am
Forum: General Topics: RLS
Topic: Canadian Specialist
Replies: 3
Views: 768

Re: Canadian Specialist

Thanks I did a search of some of the other posts, and did see that there is a Dr. Pawluk in Edmonton that seems to be working in the field. I understand that Montplaisir in Montreal has only one clinical day a week now, so is hard to get into see -- but Dr. Moldofsky of Toronto also received quite a...
by pamhb
Sun Jun 26, 2016 9:59 pm
Forum: General Topics: RLS
Topic: Canadian Specialist
Replies: 3
Views: 768

Canadian Specialist

Hi -- I'm looking for a Canadian specialist in RLS -- any suggestions? I have gotten bogged down in the Saskatchewan health care system, shuttled from pillar to post, and am running out of hope and medications that will get my RLS back under control. I desperately need to see someone who knows what ...
by pamhb
Thu Apr 23, 2015 12:49 pm
Forum: Prescription Medications
Topic: Abdominal Spasms and change in meds
Replies: 7
Views: 889

Re: Abdominal Spasms and change in meds

Dystonia is another muscular/neurological disorder characterized by involuntary muscle contractions that cause slow repetitive movements or abnormal postures. For an interesting video on how the theories of neuroplasticity changed one man's life, see the video in this news article.

http://www.theglobeandmail.com/life/hea ... e23342494/
by pamhb
Wed Apr 22, 2015 11:58 pm
Forum: Prescription Medications
Topic: Abdominal Spasms and change in meds
Replies: 7
Views: 889

Re: Abdominal Spasms and change in meds

Apparently antihistamines interfere with the dopamine receptors, which is why they can make WED worse. I have allergies as well, so have been trying various ones out the past couple of days. Aerius seemed to have the least effect on my legs -- but like you, I've given them up entirely. I as well hav...
by pamhb
Wed Apr 22, 2015 7:47 pm
Forum: Prescription Medications
Topic: Abdominal Spasms and change in meds
Replies: 7
Views: 889

Re: Abdominal Spasms and change in meds

Yes, I think that's very close to what I experience -- it starts in my abdomen, and if I'm lying down, draws my upper torso forward and down, and my legs forward and up, so that I end up in a type of fetal position. It then loosens and the starts again. Hot shows and baths help a bit, but not enough...
by pamhb
Wed Apr 22, 2015 6:26 pm
Forum: Prescription Medications
Topic: Abdominal Spasms and change in meds
Replies: 7
Views: 889

Abdominal Spasms and change in meds

I am wondering whether anyone else is having trouble with muscles spasms which originate in the abdomen, and then spread to the torso and legs? I have had WED/PLMS for a very long time, and just went through a meds change from a combination of clonazapam and pramipexole to a combination of gabapenti...
by pamhb
Thu Jan 22, 2015 11:10 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Co-enzyme Q10
Replies: 5
Views: 3552

Re: Co-enzyme Q10

I have been reading the book "Making a Good Brain Great" by Dr. Daniel Amen. He states that the research indicates the C0Q10 may be useful in slowing the progress of Parkinson's Disease. Apparently mutations on a gene on chromosome 4 produce Parkinson's Disease (PD) -- the gene helps regul...
by pamhb
Mon Jan 19, 2015 6:20 pm
Forum: Physical Treatments
Topic: Foam Rollers
Replies: 8
Views: 4153

Re: Foam Rollers

I find a lacrosse ball to be more effective than a foam roller. My physio therapist recommended it to me as the best way to work out the knots I have in my muscles as a result of osteoarthritis in my hip and spine. I will occasionally use a foam roller to get at the muscles in my quads, but I think ...
by pamhb
Mon Jan 19, 2015 5:34 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Magnesium........does it help??
Replies: 35
Views: 12984

Re: Magnesium........does it help??

I found magnesium to be helpful -- it allowed me to reduce my medications slightly (and I will take what I can get). I found oral magnesium more effective than Epsom salts baths (but the baths were soothing, so go for it!). I can no longer remember the dosage, I just remember taking a half tablet be...
by pamhb
Mon Jan 19, 2015 5:28 pm
Forum: Just Joined?
Topic: Question on Painful RLS
Replies: 3
Views: 737

Re: Question on Painful RLS

Thanks for the replies. My symptoms have been pretty well controlled for a number of years now -- however we're still fiddling with the dosage with this recent switch to gabapentin, which makes it all more bothersome than it normally is. I really hope I don't have another disease such as neuropathy ...
by pamhb
Sat Jan 17, 2015 11:59 pm
Forum: Just Joined?
Topic: Question on Painful RLS
Replies: 3
Views: 737

Question on Painful RLS

Hi -- I'm not exactly new -- I'm an old, old member that hasn't been on the Board for a very long time. I have had RLS for a number of years now, and my symptoms have been progressing over time. When under-medicated, my symptoms affect not only my legs but also my torso and arms. I've been through a...
by pamhb
Thu Jun 19, 2008 1:19 am
Forum: Help for Relationships
Topic: Beds
Replies: 9
Views: 8304

We ended up buying a king-size bed, individual pocket springs, and a layer of memory foam. It is working well for us; my husband no longer complains about my movements. Now if only it would do something about his snoring :lol: