Search found 222 matches
- Sun Jul 08, 2018 7:06 am
- Forum: Physical Treatments
- Topic: Latest on TENS Unit Use for Nighttime Symptoms
- Replies: 52
- Views: 27073
Re: Latest on TENS Unit Use for Nighttime Symptoms
Before I knew my diagnosis, I just knew my sleep was incredibly fragmented, that I changed positions constantly, and my bed covers looked like there had been a wrestling match in it overnight. After I was diagnosed I became more aware, realizing that when I woke "changing positions" I was ...
- Sat Jun 30, 2018 10:45 am
- Forum: Physical Treatments
- Topic: Latest on TENS Unit Use for Nighttime Symptoms
- Replies: 52
- Views: 27073
Update on TENS Unit Use for Nighttime Symptoms
Looks like those neurons aren't totally gone yet. In late December life took a turn when family members were in a bad auto accident and I was staying out of state for 3 months to help during the early stages of their recovery. The stress of the situation was high - it was my job to be the strong one...
- Wed Jun 27, 2018 10:58 am
- Forum: Augmentation
- Topic: Brain chemistry or pathways and dopamine agonists
- Replies: 5
- Views: 5003
Re: Brain chemistry or pathways and dopamine agonists
I looked around a bit on the PubMed site to see if I could find any related studies. Admittedly didn't spend a lot of time, but the only related topics I could find were about DAWS (Dopamine Agonist Withdrawal Syndrome) and one mentioned that a small percentage of people have a continued need for th...
- Sat Jun 16, 2018 9:02 am
- Forum: Just Joined?
- Topic: Hello from Kentucky
- Replies: 8
- Views: 1628
Re: Hello from Kentucky
I hear Seattle is a beautiful place. I'm in southern California. About the TENS, most pharmacies sell them and I've seen some gadgets where the pads snap on I think. Maybe not the most economical version, but may be worth it for a trial and a trip. It seemed to me the effect is accumulative, so gett...
- Thu Jun 14, 2018 8:43 am
- Forum: Just Joined?
- Topic: Hello from Kentucky
- Replies: 8
- Views: 1628
Re: Hello from Kentucky
I put the electrodes on my lower back (buttocks) as prescribed for low back pain. The sensations seem to interrupt some of the signals as they pass through that area. I've don't have a lot of experience with putting the electrodes on the affected areas, but putting the patches on my legs and feet pu...
- Sat Jun 09, 2018 9:23 am
- Forum: Just Joined?
- Topic: Hello from Kentucky
- Replies: 8
- Views: 1628
Re: Hello from Kentucky
You might want to give using a TENS Unit a try. Some don't find it helpful. I do. Enough that I've been able to be off meds for about 7 years now. If you decide to try it, I would suggest getting just a cheap one to try it out as it will do as much as the high end ones with all the bells and whistle...
- Wed May 30, 2018 9:53 am
- Forum: Just Joined?
- Topic: Introducing myself
- Replies: 35
- Views: 6144
Re: Introducing myself
I am not knowledgeable enough about the specifics of weaning to have a meaningful opinion about your doctor's prescribed schedule. I do have firsthand knowledge with stopping abruptly and it causing neurological issues that turned out to be permanent. Your doc may prefer to err on the side of cautio...
- Sun Apr 15, 2018 5:33 am
- Forum: Non-prescription Medicines, Supplements, Diet
- Topic: Light Bulb Moment Regarding Advising Iron
- Replies: 1
- Views: 1406
Light Bulb Moment Regarding Advising Iron
A discussion today caused me to rethink my ever-ready advice to check one's ferritin level and take iron to get it up. Not once did it cross my mind to include a disclaimer. A 60 yo acquaintance with MSA, or Multiple Systems Atrophy, was just diagnosed with Thalassemia. It is a hereditary blood diso...
- Mon Apr 09, 2018 6:46 am
- Forum: Just Joined?
- Topic: Just joined
- Replies: 18
- Views: 3593
Re: Just joined
Hi. Glad you found your way here. Some of the people here are so very informed on the options for treatment and generous in sharing. Agreeing with all those expressing concern over your dosage of medication. When people are on a low dose, stopping may not be a problem. But at your dose, I'd recommen...
- Mon Mar 12, 2018 4:28 am
- Forum: General Topics: RLS
- Topic: Medication Side Effect Statistics
- Replies: 11
- Views: 2357
Re: Medication Side Effect Statistics
I've always been fearful of strong meds so have tried to avoid opioids. Shoot, I took one dose of a muscle relaxer and the feeling it gave me scared me so I didn't take any more. However, the hellish years I spent augmenting on dopamine meds with none of my doctors figuring it out, and the torture o...
- Fri Mar 09, 2018 5:42 am
- Forum: Just Joined?
- Topic: Toddler with possible RLS
- Replies: 11
- Views: 2602
Re: Toddler with possible RLS
I am so sorry to hear your child is going through this - that's got to be so hard on you. I would encourage you to seek more than one perspective on managing your child's symptoms. There is an advantage to having a pediatric specialist such as a neurologist, also an advantage to having a sleep speci...
- Sun Jan 21, 2018 5:40 am
- Forum: Just Joined?
- Topic: Not sure if this is RLS or not
- Replies: 19
- Views: 3959
Re: Not sure if this is RLS or not
My first thought is to wonder if you are on any meds that this could be a side effect of. And if you've had any blood tests to see if you have any deficiencies in anything pertinent to muscle and/or nerve function.
- Mon Dec 04, 2017 8:20 pm
- Forum: Physical Treatments
- Topic: Latest on TENS Unit Use for Nighttime Symptoms
- Replies: 52
- Views: 27073
Re: Latest on TENS Unit Use for Nighttime Symptoms
My first TENS Unit prescribed by the doctor for low back pain was an Empi brand. Next one was a freebie from an online "friend" on a CPAP forum. Don't remember the brand. Current one is a Tens 7000 that I spotted on Craigslist for 10 bucks. I have seen no difference in their effectiveness ...
- Thu Nov 30, 2017 2:11 pm
- Forum: Physical Treatments
- Topic: Latest on TENS Unit Use for Nighttime Symptoms
- Replies: 52
- Views: 27073
Re: Latest on TENS Unit Use for Nighttime Symptoms
Badnights, your comments are interesting. Always been fascinated by this neuro stuff. I hope you're right about having rewired myself. It's certainly not been a quick fix. I remember when my mom had a stroke years ago, the doctors wanted to cut her therapy off because there's usually not many gains ...
- Tue Nov 28, 2017 5:54 pm
- Forum: Everything Else...just no RLS!
- Topic: Is it Only Me ?
- Replies: 33
- Views: 25575
Re: Is it Only Me ?
Your sensitivity to the suggested changes is understandable to me. I find myself pretty emotional at little things that may not have been such a big deal if there weren't already underlying concerns about how things have been going in the relationship. I'd like to tell you to just be open and say ex...