Search found 561 matches

by legsbestill
Tue Feb 07, 2017 8:48 pm
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: 5 years with RLS and now pregnant
Replies: 8
Views: 14588

Re: 5 years with RLS and now pregnant

It would be well worth getting the book Steve mentions. If nothing else, you can show it to your medical care providers and it will illustrate how serious you are about this condition. I would also second Beth's suggestions and reaffirm that you CAN do it. It might be worth emailing Dr Buchfuhrer to...
by legsbestill
Tue Feb 07, 2017 8:12 pm
Forum: Physical Treatments
Topic: A trick to help with car travel
Replies: 13
Views: 8469

Re: A trick to help with car travel

Interesting ... now that I think about it, that is true for me too.
by legsbestill
Tue Feb 07, 2017 8:09 pm
Forum: Prescription Medications
Topic: Ropinerole withdrawal, oxycodone, & LDN
Replies: 53
Views: 7939

Re: Ropinerole withdrawal, oxycodone, & LDN

You have been through a lot recently, Beth, and that might also be affecting your sleep. If I had access to 'medical marijuana' I would give it a go, approaching with some caution if unsure of strain, given its capacity to induce/exacerbate depression if the THC is high and the CDB low. I read recen...
by legsbestill
Mon Feb 06, 2017 10:34 am
Forum: Prescription Medications
Topic: Infusion Update
Replies: 84
Views: 16296

Re: Infusion Update

Dreams are free! And can be uplifting! Goals enable us - even when we don't meet them. I really hope you meet yours tonight and you are sleeping soundly while I type. Ironically, I have been on rls drugs since about 2004 also but for me pramipexole worked so well that I refused to face up to the fac...
by legsbestill
Sun Feb 05, 2017 10:28 pm
Forum: Prescription Medications
Topic: Trials and tribulations with opioids
Replies: 61
Views: 9610

Re: Trials and tribulations with opioids

Hi David, How are you getting on? I hope things have improved for you.
by legsbestill
Sun Feb 05, 2017 6:06 pm
Forum: Prescription Medications
Topic: Infusion Update
Replies: 84
Views: 16296

Re: Infusion Update

Maybe that's why the pregabalin doesn't work so well for me any more - I have reduced my dose of OxyContin right down to just one 5mg tablet - so the sweet spot of opiate and pregabalin isn't there ... I think you are far more advanced in the learning process. I tried taking about 3-4g of kratom las...
by legsbestill
Sun Feb 05, 2017 5:58 pm
Forum: Just Joined?
Topic: Hello from TeriShelly
Replies: 23
Views: 4468

Re: Hello from TeriShelly

Although I would like to distance myself from any conduct that is not strictly lawful, I would point out that an individual known well to the current poster, who resides in another country, quite close to the UK, where kratom may not be legal (the individual is not keen to be advised catagorically a...
by legsbestill
Sun Feb 05, 2017 12:47 am
Forum: Prescription Medications
Topic: Infusion Update
Replies: 84
Views: 16296

Re: Infusion Update

Am keeping fingers crossed for you. How much kratom do you take? I am finding the opposite of you - it helps with the urge to move (which is quite subdued for me at the moment) but I am getting very little sleep was wondering if a higher dose would help with that.
by legsbestill
Sun Feb 05, 2017 12:38 am
Forum: Just Joined?
Topic: Hello from TeriShelly
Replies: 23
Views: 4468

Re: Hello from TeriShelly

So sorry that you have this miserable condition TeriShelly. You are definitely in the right place and seem to have picked up a lot of information in your year of 'lurking'. You already seem to know more than your doctor! I have recently started taking kratom and really like the fact that it can be t...
by legsbestill
Sat Feb 04, 2017 12:04 am
Forum: Prescription Medications
Topic: Ropinerole withdrawal, oxycodone, & LDN
Replies: 53
Views: 7939

Re: Ropinerole withdrawal, oxycodone, & LDN

Every night is like that for me at the moment. I have practically no symptoms for the first part of the night but lie wide awake listening to audiobooks and doing puzzles (which used to be a surefire way for me to get to sleep). About 3.30 to 4.00 pm I might drift off briefly but mild symptoms start...
by legsbestill
Fri Feb 03, 2017 11:48 pm
Forum: Prescription Medications
Topic: Infusion Update
Replies: 84
Views: 16296

Re: Infusion Update

Wonderful news. V pleased for you. Long may it last.
by legsbestill
Thu Feb 02, 2017 10:50 pm
Forum: Prescription Medications
Topic: Ropinerole withdrawal, oxycodone, & LDN
Replies: 53
Views: 7939

Re: Ropinerole withdrawal, oxycodone, & LDN

So sorry to hear that Madmom ... not about David Tenant I mean but about the false dawn. I hope you get a good night tonight and David puts in another appearance ...
by legsbestill
Thu Feb 02, 2017 10:40 pm
Forum: Prescription Medications
Topic: Improved symptoms - what now?
Replies: 43
Views: 4991

Re: Improved symptoms - what now?

Yes the gazelle comment also made me laugh but with a degree of rueful recognition. I too perform the leaps - in a non-gazelle manner - from time to time.
by legsbestill
Thu Feb 02, 2017 10:22 pm
Forum: Prescription Medications
Topic: Effectiveness of Gabapentin/Neurontin Over Time
Replies: 22
Views: 3259

Re: Effectiveness of Gabapentin/Neurontin Over Time

I laughed so loud at the pink lady apple comment that husband wanted to know why and he also roared with laughter. Well done for following through on pink impulse - I would love to be called funky. Also for making the comment at your surgery. It was p*** poor of them. After my second child was born,...
by legsbestill
Thu Feb 02, 2017 12:21 am
Forum: Prescription Medications
Topic: Effectiveness of Gabapentin/Neurontin Over Time
Replies: 22
Views: 3259

Re: Effectiveness of Gabapentin/Neurontin Over Time

Go Polar Bear! I LOVE the idea of pink/purple. I hope you are delighted with the results.

I had surge of adrenaline myself reading your experiences earlier in the day. How bloody dare they do that to you - mess you around and waste your time. Life is difficult enough with a condition like this ...