Search found 40 matches

by SleepyBhamster
Tue Sep 22, 2020 3:43 pm
Forum: Prescription Medications
Topic: Has anyone arranged iron infusions on your own? How?
Replies: 4
Views: 354

Has anyone arranged iron infusions on your own? How?

I'm at the end of my rope. Don't know how to go about arranging to get iron infusions since my PCP and now my new neurologist won't order them. I'm feeling beaten whereas before I had felt well-armed with all the knowledge I had gained from joining the RLS Foundation. I am going to try contacting In...
by SleepyBhamster
Tue Sep 22, 2020 5:25 am
Forum: Physical Treatments
Topic: BEST MATTRESS FOR RLS
Replies: 11
Views: 820

Re: BEST MATTRESS FOR RLS

Did you ever get your mattress? The funny thing for me is that 3 years ago my husband and I splurged and got 2 adjustable twin XL beds from a local mattress store where they make the mattresses themselves. Bought them because I was--and still am--going through a lot of back/hip pain. Unfortunately t...
by SleepyBhamster
Tue Sep 22, 2020 3:13 am
Forum: Prescription Medications
Topic: Iron infusions--is this note to doctor too harsh?
Replies: 3
Views: 405

Re: Iron infusions--is this note to doctor too harsh?

Gee, I had an appointment tomorrow with a different neurologist but assumed he wouldn't be as good as this one, so I cancelled it. I think I will add to my note: "Are you telling me that no neurologist here at UAB who works with RLS patients sends them for iron infusions? If that is the case, then U...
by SleepyBhamster
Tue Sep 22, 2020 12:27 am
Forum: Prescription Medications
Topic: Iron infusions--is this note to doctor too harsh?
Replies: 3
Views: 405

Iron infusions--is this note to doctor too harsh?

I spent a long time composing a note to my new neurologist begging her to send me for an infusion so that I might possibly be better in time for a planned road trip in a few weeks. Very disappointed in her response that they have very few people who need iron infusions and she has no channel to get ...
by SleepyBhamster
Mon Sep 21, 2020 6:59 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: A few questions about iron tablets
Replies: 18
Views: 1052

Re: A few questions about iron tablets

Yes, I found it quite perplexing: the evening of the day I was SO happy to meet the new doctor, I didn't sleep at all. And the night after being completely traumatized by that crazy woman from the RLS group, I slept 11+ hours. But I DO know that to celebrate meeting that doctor, I had quite a few co...
by SleepyBhamster
Mon Sep 21, 2020 6:51 pm
Forum: Just Joined?
Topic: Hello from Newbie in Birmingham, AL
Replies: 8
Views: 578

Re: Hello from Newbie in Birmingham, AL

Thanks for your emails, Steve and Ann! I just sent a rather passionate plea to my doctor to beg her to try me on an iron IV, wondering why I needed to suffer another 1-3 months before trying. Told her I'd pay out of pocket if necessary because I'm that desperate. UAB has a great patient portal and s...
by SleepyBhamster
Mon Sep 21, 2020 4:40 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: A few questions about iron tablets
Replies: 18
Views: 1052

Re: A few questions about iron tablets

Thanks, Steve and Holland, While saving and printing out the article you linked above, Holland, I realized that this is the very article that got me banned and blocked from a Facebook RLS group. It's a long story and had me quite quite upset yesterday, but I had had no sleep for 2 days in a row and ...
by SleepyBhamster
Sun Sep 20, 2020 11:35 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: A few questions about iron tablets
Replies: 18
Views: 1052

A few questions about iron tablets

I'm relatively new to RLS. In March, my rheumatologist prescribed Requip for me, but while it worked great at first, I just couldn't find a dosage that didn't leave me completely groggy the next day. It was either sleep at night and be groggy all the next day, or don't take it and have restless legs...
by SleepyBhamster
Sun Sep 20, 2020 10:29 am
Forum: Just Joined?
Topic: Hello from Newbie in Birmingham, AL
Replies: 8
Views: 578

Re: Hello from Newbie in Birmingham, AL

Saw the neurologist on Friday and was quite delighted with her. She's a young woman, really interested in RLS and has taken part in research about it. I didn't understand much of what she was trying to show me, but she has been studying some kind of RLS connection to the spinal cord. Also "Restless ...
by SleepyBhamster
Mon Sep 14, 2020 10:58 pm
Forum: Just Joined?
Topic: Hello from Newbie in Birmingham, AL
Replies: 8
Views: 578

Hello from Newbie in Birmingham, AL

I joined the RLS Foundation several weeks ago but forgot all about the Discussion Board, so this is my first time on it. I have my first appt. with a neurologist this Friday so have my fingers crossed I can quickly be set up for some iron infusions. Last week I got my PCP to take my iron levels but ...