Restless Legs Syndrome (RLS) Discussion Board

Hi Missy, I hope you've found some other info by now. There is a "sticky" on RLS and kids in the Special Populations section. It has links to most of the information we have. m Hope this helps you some. It must be very hard for her, and for you to have to watch her going through this. Growing pains ...

Hi Jenne! I am one that had a hard time, and only after 7 months. Some people breeze through as you know; hopefully you will, too. If you decide to do it, there is a wonderful benzo board that supports people through the process. I couldn't have done it without them. They really helped me make good ...

Hi Susie. Glad you find something worthwhile here. Yes, there are many posts so it can be difficult to find what you want. The search function can help if you know a specific term to look for, but not if you don't! We did create some sticky posts in many of the topics. For example, in the New To RLS...

This can be a problem with any drug that changes the "normal" chemical balance in your brain. Many ppl have a problem with Neurontin and weight gain. Mirapex and Requip can also cause weight gain, but certainly don't in everyone. If you have daily RLS, I would see if the doctor will prescribe one of...

Barb, for anyone that does not need drugs daily, one of the best dopamine drugs is Sinemet. It should not be used daily because it can cause problems, but for use 3-4 times a week, it is great. You can get generic, and it works MUCH faster than Mirapex. Hope that helps some. Also, check out the stic...

Randy, I think I do remember this from before. In my opinion, if it works, use it. The reason some doctors don't like it these days include: 1. It has a horribly long halflife. For many people, this means that they are foggy and drugged the next day. For many, it just makes them feel horrid th next ...

Foggy, I had severe PLMD for years without much RLS at all. While not many of us have this problem, it does happen.

Ann

Yeah, me neither. About 50% of people have no problems stopping it. The rest of us have from minor to major problems. The docs don't really acknowledge this. Because of the war on drugs, we have to go through all kinds of ^$%# to get opioids, but boy, we sure can get benzos! At one point, I had tema...

It does come in wafers that can be cut up more easily, but my doctor wrote out the script wrong, and I didn't want to deal with it. You can also have your pharmacist make a suspension liquid of it (I didn't try that) and the administer is by cc's, or you can start cutting them into little, itty, bit...

Laura, I had nightmarish experience with K, but not like mich! I can tell you what I learned about withdrawal, hopefully this will help. If you have been taking a benzo for a month or less, you can probably stop quickly without problems. To ensure you don't, talk to your doctor just in case. Few peo...

I sure don't know a lot, but here's what I think I know . When we have RLS, a ferritin level of less than 50 is considered low. So, even though yours is 38, which might be fine with someone who doesn't have RLS, it is low. It could be that the prior tests either didn't test for this, or that no one ...

Penguin, that must be so frustrating, though. It is great that they are listening (and how horrible if they weren't???), but you (and Jannie, too), have really had a tough time finding something that really works. I know how hard it is to "just" have the creepy feelings for days on end, but pain tha...

Keep it up everyone! These are great. We need Randy to hop over here, too. He has an interesting sense of humor! I'll compile them all together and send them to Dr B early next week.

Ann

Hey Smikette, welcome to the group. You know, you are absolutely right. All these other things going on? They absolutely can make RLS much worse. Hormones? yep! Drugs for depression? yep! Stress? yep! Even the foods we eat and the beverages we consume can make RLS worse. The good news is that you ma...

Hi Nini, Are you in the US, Europe, or Australia? If so, each of those areas has a "local" support group. They could really help you with a lot. Also, in this section there are two "sticky" posts. The first one will answer many of your questions. The second one had many links to other sites that can...