Restless Legs Syndrome (RLS) Discussion Board

Yes Ann I've been noticing that many here are on combinations of drugs. I find that interesting and will discuss it with my doc. I think I recall reading that you are a patient of Dr. B in CA. If you don't mind , are you? I sensed at our first meeting that my new doc is not a proponent of opioids. N...

That's interesting Beth...thanks for sharing! The Dilaudid scares me so I'll try to avoid that one. You're getting by on 75mg of pregabalin and I'm at 200mg again tonight and probably up to 250mg the next two nights. Never heard of nabilone but will look into that and probably mention it to my doc. ...

Beth, what meds are you on now? Have you used Pregabalin before? Thanks Steve! I'll take that to my doc when I see him on May 1. Results last night, night #18, were pretty much the same as the night before with about 1/2 hour less sleep at bedtime. Tonight I'll bump to 200mg and hope there is a nota...

Legs, I cannot find Brieka anywhere I've searched in the U.S. I'm guessing that my withdrawal from Requip might be over. If not, I won't really know since I've started on Lyrica. Last night was my 16th night without Requip and, for the 2nd night, I took 100mg of Lyrica at 2100. I actually went to be...

Thanks Steve for that info! I'll discuss this with the doc when I see him in a few weeks.

Jim

When I I met my new doc on Tues he said he had two drugs in mind for me, Horizant and Lyrica. He left for a few minutes, returned and said my insurance didn't cover Horizant and, without insurance, the cost would be near $1000/month. He said Lyrica would work just fine and we went from there. I shou...

Thanks Holland for all that info. Big help to me! Last night was #14 w/o Requip and I upped the Lyrica to 100mg. That was interesting! I took the dose at 2100, ent to the recliner and by 2130 my legs were moving. The difference this time was that the sensation came on slower than normal and, when th...

Thanks Legs for your comments! I took the first 50mg dose at 2030 last night, not sleepy but tried to sleep from 2200. At 2300 the leg movements began and I tried to wait it out but got up at 2330. AS I mentioned in last post, it seemed that movements were worse but they also disappeared about 0400 ...

That's encouraging Legs! When I left the neurologist with the new rx I was excited. It's now middle of the night and nothing's changed with the 50mg dose. In fact, unless it's my imagination, my legs seem a little worse tonight. I got absolutely no drowsiness from the Lyrica. The doc said if no impr...

Holland I found your reply and just sent you another. Thanks! I don't mind if we do it here but just thought it might be more appropriate in private....your choice.

Jim

Last night was #13 off requip. Symptoms same with rls movements from 2230-0600 this morning. The difference today was that I went to bed and slept 0600-0900, to the loo and then back to bed and dozed til 1030. Then, the best part, I fell asleep in my recliner from 1200-1315 and that hasn't happened ...

Holland, low-dose DA and less augmentation.....that is certainly good to hear! Can you point me to where I might read up on that?

Also, I sent you a private message. Have you seen it?

Jim

RIKKU9, are you still around? I've been reading about your struggles in a couple of threads and it's been nearly a year since your last post (that I can find). I'm going through pretty much what you did when you went 'cold turkey' and I'm hoping that you finally landed in a good spot and have figure...

My 12th night is under my belt and it was pretty much what has become the norm. I was up all night mostly walking but had some rest while sitting on a high barstool. In this position I can feel the urge to move but the urges are not as strong . I get so tired I almost have to strap myself to the sto...

Legs and arms moving all night but sitting on the high bar stool with my legs hanging down worked surprisingly well to nearly eliminate movement. I never could sit in the recliner. Movements nearly gone about 0530. I vaped and went to bed sleeping right away til 0730. Up for the obligatory pit stop ...