Restless Legs Syndrome (RLS) Discussion Board

I went back to college at age 52 along with our youngest son. What fun! When I was in my last semester, age 56, we took Wilderness Survival. One of the most useful classes we took. But it involved a winter sleepover in a snow shelter we had to erect. We snowshoed into a spot not far from home up off...

Wow! I don't blame you Betty. We've had some similar experiences too. On our last family camping trip with all 5 kids, we couldn't find a camp site in Yellowstone so had to go outside the park to a KOA. The spot was out in a field and there was no shelter from the wind. We got the kids fed, in the d...

That is quite a vivid description! I think I would like to try camping in New Zealand.

That's a thought. I have been on opioids off and on since thyroid cancer in 2004. There have been seasons of pain throughout those years. I had shingles in my ear causing Ramsay Hunt Syndrome, knee issues and back issues. I will need to bring this up with my PA at the pain management. She has become...

I will give that a try. I do have Ropinirole on hand. Thanks! Thanks!

I find that in the past few weeks that I am only able to sleep for 1 hour at a time. I used to get maybe 2-3 hours. The only meds I am on are oxycodone and OxyContin CR at bedtime. I take iron & magnesium. My ferritin level was 80 last April and we are hoping to get it over 100. I see a sleep do...

Sinemet is also known as Carbidopa/levodopa. It is a dopamine agonist. I have augmented on all the others but as long as I just use this occasionally I seem to be ok.

I am aware of bears, we live in a high population bear area. When I get really nervous is when we camp in Glacier National Park, which is about 4 hours away. There are grizzlies there! The last time I slept in a tent in Glacier was about 16 years ago. I'm not sure I could do that again. We're hoping...

I too sometimes wonder what I did to bring on this awful syndrome but my daughter and my husband reassure me that this is not how God works. I too am a Christian and if it weren't for my faith, I would have lost what little sanity I have left. I identify with you leaving the house with a hydrocodone...

I'm thinking we will get a roomy enough tent for a chair and camp table so I can do crosswords by lantern light. I don't want to give up camping so I'll make it as comfy as possible.

My husband and I are thinking of going camping. We just gave our pop-up tent trailer to one of our sons because it didn't meet our needs anymore. That said, it will be a while until we save up enough to purchase a travel trailer and we are considering going back to the tent camping we did years ago....

I had an unusual phone call the other day from my primary care doctor's nurse practitioner that I see for non RLS issues. I still hadn't gotten into a local sleep doctor and needed a refill on my Ropinirole so I saw her. We had a discussion about RLS and I explained to her what Dr. Poceta had sugges...

Yes! My husband & I flew to Hawaii, a 6 hour flight, in May and I didn't worry about deep vein thrombosis because I was pretty active. Usually I keep reminding myself to wiggle and move my legs but not this time. It is good to find humor with this beast.

I had a similar experience this week. I saw the nurse practitioner that I have seen in the past but haven't talked about RLS. I had to talk about it this time because I had no more refills on my Ropinerole from Dr. Poceta in CA. She knew about DA's and ferritin levels. I explained that Dr. Poceta wa...

EdSoFlo, I find your post really interesting as I take an OxyContin CR 15mg at bedtime and 1 oxycodone 7.5 at midday. This barely takes care of the rls. I usually take the night time dose around 8pm and wake up twice during the night. 4:30am is when I awaken with severe rls in my legs and hip pain. ...