Restless Legs Syndrome (RLS) Discussion Board

It maxed out my insurance monthly co-pay for the 15 months that I used it, before I augmented on it as well. The only benefit that I feel that I got out of it was that during the days that I had them on my shoulders, the patches were visible when I ran . The patch would invariably prompt a question ...

The opioids quickly address the RLS and PLMD, just like a dopamine agonist probably did when you first tried one. But opioids do not cause augmentation and most of us stay on the same low dose for years without any need to increase the dose. Opioids help with sleep for some and aggravate the situati...

Tuesday, February 11 Welcome to goberland, who had struggled with RLS for most of goberland's adult life. goberland is currently in the process of switching from one dopamine agonist medication to another. It is not going well and therefore is eager to get input from other RLS sufferers. Please post...

My life is pretty much over, and I can't stop thinking about just cutting to the chase. stockton2malone2, many if not most of us have been where you are today. There IS hope and a way out of this. First, are you still taking Alprazalom? One of the side effects of it is the mental state that you des...

Tuesday, February 11 Welcome to Didjit, who has had RLS since adolescence, 40+ years along with PLMD and REMD. Very little medication has any effect and then only partially treats it part of the time. The difficulty with sleep has ruined memory, limits energy, and as a result it undermines Didjit's ...

If you haven't already participated in the public comments to the US HHS task force for modifying the CDC opioid guidelines, please do so NOW!!! Every voice counts on this matter. Don't rely upon others. You can even have your comments signed as Anonymous. There are currently almost 1300 comments (b...

Monday, February 11

Welcome to

BruceWiebe47, who has RLS and wants to know about meds he is taking. And he can't sleep well.

If you will post a note telling us about the meds and asking any other questions that you have, we should be able to answer your questions.

Sunday, February 10 Welcome to MarianneK, whose RLS has been a difficulty for years but lately it’s been unbearable. She needs some relief and hopefully will find information here. You have come to the right place for information on RLS. If you will post a note telling us what you have been doing to...

That is one of the greatest challenges that we face when discussing RLS with our family, friends and doctors. Because there are no similar experiences, there simply are no words that convey what RLS feels like. If they have RLS, they know what it feels like and don't need to be told. If they don't, ...

Sunday, February 10

Welcome to

Knowmore, who is here to learn for family friend.

Please post a note asking whatever questions that you have so that we can hopefully provide the answers that you seek.

Does the Brain Iron Deficiency, and genetic predisposition findings rule out other chemical contributors, like bromine? I read that a variety of chemicals contribute to RLS; e.g. tannins, caffeine, etc. So it's a sincere question. Top First we need to remember that RLS is a relatively new condition...

zeefy, one of the settings for the software that runs the discussion board is that it decides that after no activity for 30 minutes while composing a note, that you must have left and forgot about your note. Because this issue has arisen before, I will change that setting to allow an hour of inactiv...

Chemically, bromine is very similar to the chlorine chemicals used in swimming pools. Bromine is a little bit heavier, which is why it is used in your hot tub. Bromine lasts longer at the higher temperatures. Our noses are extremely sensitive to both chlorine and bromine gas. The acrid smell you des...

Thursday, February 7

Welcome to

creepycrawly, who RLS is awful and runs life. creepycrawly wants to find tips, share learnings and recently got off Ropinirole.

If you will post a note telling us a bit about what you are doing to manage, we would be happy to start sharing with you.

Thursday, February 7 Welcome to Shermccormick, whose RLS has been a source of many sleepless, awful nights. It’s frustrating to find a health provider that understands. And once she did, the government has decided they know best about her disease. Very frustrating right now. Please post a note telli...