Search found 1284 matches

by stjohnh
Sat Jul 17, 2021 2:54 pm
Forum: Prescription Medications
Topic: My Story and Dilemma
Replies: 30
Views: 5613

Re: My Story and Dilemma

A couple of items: 1) Regarding opioids - a post from Beth, "Most opioids for most of us here on the board who post about it cause alertness that makes sleep very difficult. Your methadone may be causing the same problem wih you - do you feel a sudden bizarre alertness 1-2 hours after taking it, ev...
by stjohnh
Sat Jul 17, 2021 2:44 pm
Forum: Prescription Medications
Topic: My Story and Dilemma
Replies: 30
Views: 5613

Re: My Story and Dilemma

If my insurance does not cover the cost of iron infusions, and from what I've read this is likely, what is the out-of-pocket cost of the infusions? I need two infusions, correct? And do I have a 50% chance that the iron infusions will do me any good? If the infusions are effective, how often are th...
by stjohnh
Fri Jul 16, 2021 11:55 pm
Forum: Augmentation
Topic: Medication?
Replies: 7
Views: 6514

Re: Medication?

This is working very good 1800 Gabapentin 2 mg Neupro patch. 0.125 pramipexole. Was tapering off Neupro but this is working great Should I enjoy or be scared of augmentation? After reducing Neupro to 2 mg skin problems are much less but the Gabapentin and reduced Neupro did not control so added .01...
by stjohnh
Fri Jul 16, 2021 8:49 pm
Forum: Prescription Medications
Topic: My Story and Dilemma
Replies: 30
Views: 5613

Re: My Story and Dilemma

...Currently recovering from hand and foot orthopedic surgeries, I recently visited a new neurologist in Denver for my restless leg. Iron was discussed. Here are my ferrous levels over the years: 7-14-21: 87 ng/ml (measured after breakfast with a 325mg ferrous sulfate supplement) 5-17-21: 47 ng/ml ...
by stjohnh
Fri Jul 16, 2021 12:46 am
Forum: Prescription Medications
Topic: Conflicts with Ciprofloxacin and Metronidazole?
Replies: 1
Views: 1584

Re: Conflicts with Ciprofloxacin and Metronidazole?

These drugs have not been mentioned on this board as having caused problems with RLS, so if someone has had problems, they haven't posted about it. You may be the first to have noticed a new interaction with these drugs. OTOH, you may be augmeting on the ropinirole. How much do you take? Symptoms st...
by stjohnh
Wed Jul 07, 2021 12:15 am
Forum: Just Joined?
Topic: Been a long time
Replies: 7
Views: 3079

Re: Been a long time

... I gave up after not tolerating ropinirole and finding no relief from others including lyrica and neurontin. Now that I am reading more, the more I do not want anymore of the "dopamine drugs". I want opioids and/or xanax. I know they work. ... Reasonable sentiments under the circumstances, but I...
by stjohnh
Sun Jun 20, 2021 12:29 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Melatonin added to the mix
Replies: 40
Views: 30601

Re: I stopped zopiclone and modafinil by starting melatonin

... Final Benefit: My circadian schedule has stopped sliding. I can't tell you how huge this is. I have been losing a battle with medication-induced sliding daytimes since I started hydromorphone in 2010. "Sliding daytimes" might qualify as Non-24-hour Circadian Disorder... Beth, In addition to my ...
by stjohnh
Sat Jun 19, 2021 10:17 pm
Forum: Prescription Medications
Topic: marijuana please?
Replies: 17
Views: 9292

Re: marijuana please?

Hi Brenda, to revert to your original question about cannabis, I wonder if kratom might prove more effective for you. So far as I am aware, it can be ordered by post in the US from a variety of suppliers. More generally, I agree with the posters who suggest that your neupro dose is high and may be ...
by stjohnh
Sat Jun 19, 2021 4:35 pm
Forum: General Topics: RLS
Topic: Short-Term Disability Question
Replies: 2
Views: 3357

Re: Short-Term Disability Question

I don't know about short term disability.

I have a friend whose brother was an airline pilot, got RLS and was unable to do his job. He is on long term disability due to RLS.
by stjohnh
Fri Jun 18, 2021 1:39 pm
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 200
Views: 92857

Re: 1st post after 24 years of RLS

I used dipyridamole for few months several years ago before I started on IV iron, it did indeed help, mostly with improved feeling of well being. Hard to describe, but it definitely helped. You may have to try taking different doses of the drug. I found that the best dose was lower than the sample r...
by stjohnh
Thu Jun 17, 2021 1:49 am
Forum: General Topics: RLS
Topic: Published Research - General Sleep and RLS (WED)
Replies: 534
Views: 391943

Re: Published Research - General Sleep and RLS (WED)

https://scholar.google.com/scholar?as_ylo=2021&q=%22restless+leg%22&hl=en&as_sdt=0,34#d=gs_qabs&u=%23p%3DQ2pzQg-S5dkJ Developing a biomarker for restless leg syndrome using genome wide DNA methylation data I don’t have access to the full paper. Would love ❤️ t anyone could give their opinion. I cou...
by stjohnh
Thu Jun 10, 2021 11:56 pm
Forum: Augmentation
Topic: After augmentation
Replies: 4
Views: 7104

Re: After augmentation

Does anyone know if once you recover from augmentation are your RLS symthoms prepanently worse than they were before you started the drug? Said another way, can these drugs cause permanet damage and permanently make your symthoms worse than they ever were? Thanks Well, generally once a person that ...
by stjohnh
Thu Jun 10, 2021 9:30 pm
Forum: Just Joined?
Topic: A silent sufferer!
Replies: 6
Views: 2600

Re: A silent sufferer!

Hi Indirani, I am happy you found us and am sorry you are having trouble with your RLS. It has been a few years since I have been in Hyderabad. I used to go on a yearly medical mission trip with some of my church members, providing free medical care to Dalits. I have many fond memories of India and ...
by stjohnh
Tue Jun 08, 2021 2:19 pm
Forum: Just Joined?
Topic: New Comer with 20 years of RLS
Replies: 6
Views: 2585

Re: New Comer with 20 years of RLS

Thanks Holland for your feedback. I never had legs jumps while awake at all but during sleep my wife observed that I was having full body jerks, couple of times in an hour. I just have my lab results: 1. Ferritin: 24.55 ng/mL Reference Value: Adult Male: 20 - 250 ng/mL 2. Serum Iron: 97 Reference V...
by stjohnh
Tue Jun 08, 2021 1:46 am
Forum: Prescription Medications
Topic: marijuana please?
Replies: 17
Views: 9292

Re: marijuana please?

Hi Brenda. I'm glad you found us but sorry you are having troubles. Lots of people on this forum have tried marijuana, and quite a few use it here (me included). However, THC (that is how I will refer to marijuana) does NOT do much for urge-to-move (jumpy legs in the evening). It is however one of t...