Restless Legs Syndrome (RLS) Discussion Board

good question

Good for you Betty!
just a tip here,
make sure your leg sensors are tight enough.

yes,i've always said it's supposed to. BUT it sometimes has worked for me. I guess like the Parkinson's meds work for some and not me. I can see the difference-less sleep when I skip the pm's. All I really care about is sleep and not the studies. Just like L-dopa, it made me worse yet they've tried ...

ritomko, for decades I was on 2 mg's of Klonopin, I was not diagnosed but my Dr had tried everything else. It did work. Then after a flare up I added Niquil,an adult dose. THat worked for gosh 15-20 years. In 2002 I got Gillium Barre' syndrome. Very weak muscles,hardley functional at all. The pain w...

I am going to contact the research people at Hopkins today. I don't know if my inability to take Mirapex will allow me to do the study or not.

It also may be too time consuming as I really need to get a job,part time.

Brenda

Yes moist heat! I take a very hot shower every day and take the shower messager to my legs and back areas. It does help for awhile anyway.

Brenda

Personally i've been on all of the Parkinson's drugs,Mirapex twice. None of them worked for me. I did start up with the RLS again after my stomach surgery..I had a very tough time of it. I complained of horrible back pain while in the hospital and that only hurt while up and arthritis in my hip flar...

m I hope this link works but the store is thesupportstore I got the beige closed toe. My husband likes his open toe cause his toe area is so wide. Also the firm control was too firm for me. I got the light. Just my experience,maybe just try using them during the day and see if you need them at night...

I do,thanks Betty. Things are better. Not perfect. I dropped the Mirapex and began Tylenol PM. I realize it's not a good med for us but in desperation I tried it again and really slept good. Of course it may be that i've been in so much pain lately, I don't know. I think between the stockings I wear...

Good luck Venus. Hopefully taking iron will help you. It seems that all of the studies point to iron being the very first thing to look at. I am having some luck with compression stockings. I ordered them off of eBay, new in the box. I wear them during the day and take them off at night. At first I ...

I was sooo tired even more tired than without it on the same amt of sleep.
BUT I slept from 9p to 4 this am. It was a better night without it---so far we'll see.

Good luck with that! Sometimes I put a "off channel" on to bore me and that helps. (on mute) when I get sleepy/bored I turn it off and roll over. BUT if I go into the living room my night is shot. Once i'm out there I can't go back to bed til around noon. Thats when I wake up early at 12 t...

I thought it would be interesting to post some of the things i've done over the years. Some worked and some didn't. I was wondering how many of my rituals anyone else has tried. Sleep hygene. I learned relaxation at bedtime. I wipe out concerns and try to have a plan for daily problems a couple of h...

I've been on Klonopin for decades. Once in awhile i'll go off of them b/c in my head I need to know i'm not addicted to anything and then theres the times when I'm having problems with my RLS even with the 3mg of Klonopin and will stop and start again. I've never had a problem going off of them. Bre...

I recieved the info packet and consent forms.

The 1st stage of the study doesn't look too bad but then theres the part you do at home with moniters on your legs and each night you must spend a hour stretching your legs in bed. I don't know if I can do that.

Brenda