Restless Legs Syndrome (RLS) Discussion Board

Thanks, Nadia, I spent a week crossfererencing any doctor from this list to my insurance and then to my primary care physician's group. Only 2 of the doctors listed are in that group. I got the appointment in February. Then I called every doctor that was in my insurance, but not in my primary care's...

Carol, I'm also in Chicago and am waiting 4 months to see a neuro that specialized in RLS (after "firing" the one who didn't and totally screwed up my meds). Just waiting for sleep to come tonight so am scrolling through old posts and saw this. Have you found any relief from any of the other posts h...

Same here. I'm not sure who it's more unnerving for, me or my partner . When you have to jump up out of the bed immediately after it gives the wrong impression! Good thing we're together for the long haul and he knows it's not about him. One thing that helps me it to have sex earlier in the day. Now...

We're getting closer to having drugs developed with us in mind. If anyone ends up on this trial, let us know how it goes. I'm excited that RLS is starting to be researched as forethought and not as afterthought.

We just bought a memory foam mattress last week. After a week, I'd say we're both much happier. I'm not sure it makes me sleep better, but I know that he doesn't feel my movements nearly as much, so I am more comfortable being there. It was expensive, but it was worth it. Supposedly they last for 20...

It sounds like you've been through the proverbial wringer. My thoughts are with you. Here is a link to a site that lists all drugs that are used and the usual dosages. I use this info when I see my primary care doctor, while I await a in the distance appointment with a new neurologist. The website i...

Hi Ann (Hi Lyn), it's Jan You seem to be pretty intelligent and you seem to know quite a bit about how the nervous system works. Since RLS can be hereditary and some RLS patients eventually are diagnosed with fibromyalgia, do you supppose that fibro can also be inherited? Thanks for your answer in ...

I also do this, as did my grandmother and and does my mother. I only do it when the RLS is active, though. For me, it stops the need to move the legs and it stops the electricity feeling. When that doesn't work anymore, then I start walking.

Ann

Thanks again. I was on that page, but didn't see the link. Guess I was looking for a big heading that said REGISTER HERE!!!! I'm planning on registering in the morning. It will be great to meet you and any others that are there.

Becat I appreciate the link. . .goes to show what a little searching on my own would have done . I'm surprised no one was that interested in the topic, especially as several people have indicated additions. Well, it's my guess that no one knows what they are really doing by playing with these neurot...

I'd like to go to the conference - if I book a flight right now, it's not too expensive. But I can't see anywhere on this site to register!!! If anyone knows how, please let me know. I don't want to book my flight until I know that I can register.

Ann

I was reading the "My RLS Mountain" posts from the last couple of days and I started thinking (dangerous, I know!). I used to be a smoker and have struggled with weight since I was a child. I absolutely use food (specifically sugar and fat) the way someone else might use drugs or alcohol: to self-me...

Hi Pete, thanks for the welcome. Glad to be here. I read your post and wanted to add some thoughts. Mirapex caused considerable augmentation for me. Then it caused rebound. Then it quit working on the PLMs, but still worked on the RLS. When I started tapering off (at .75 mg), the RLS was often 24/7 ...

Hi Lyn, thanks for the welcome. I had some difficulty with the Mirapex immediately. The first night I took it, and every other time I had to increase it, I had an entire night of lucid dreaming. Now, I know some people actually want to do this, but I am not one of them! I also had severe augmentatio...

I've heard several RLS sufferers say that when they cut out carbs and sugar they get better. So, since candida and sugar are linked, it would make sense. Related to that, I was wondering if there's a neurotranmitter link in some way. For me, sugar is like alcohol to an alcoholic. I've been using it ...