Restless Legs Syndrome (RLS) Discussion Board

I have an appointment with my sleep consultant in two weeks. I have not seen her since April when she took me off mirapexin (pramipexole). I had been on it for 10 years and with augmentation my daily dose was over 1.5mg. She prescribed Lyrica (pregabalin) to help with coming off mirapexin to a total...

We will all be watching this space - post 16th Dec - with great interest. You have my huge respect and gratitude for taking this exciting decision. I can't wait to hear how you get on. Best of luck.

Yankiwi, I was thinking of you today - I was telling my husband about your very interesting comments a little while ago about the NZ no fault compensation system - and I log in here and see your so sad post about your husband - can only imagine how you must be feeling. My heart is with you. Rachel

Hi Rebecca, Just in relation to coming off OxyContin, this might also be a factor. I took this for my rls in the summer. Incidentally, I found that it required 30mg to completely still my legs (torso, arms etc) and it may be that your use of 20mg was just not enough. I decided to come off OxyContin ...

When I emailed Dr Buchfuhrer, that was one of the options I was considering - pramipexole alternated with an opioid - but he was very unenthusiastic about it - he said that although he did it in some cases 'it does take a higher level of expertise to figure out how to accomplish this rotation and th...

At least you know where you are going now, leggo. And as you say - 2 birds 1 stone. Views, without wanting to wander down the potentially divisive road of politics, I can greatly sympathize with your anxieties about recent developments and must say that being left out of family celebrations, however...

Just in case it doesn't last - I will bear your practice in mind - it ties in with another post about intensive exercise as a means of managing symptoms.

Oh Ann, I am really sorry to hear things still not good with you. I hope they start to improve.
Thank you all for your good wishes. At some stage I will start my own thread to post my experiences - rather than constantly hi-jacking other peoples'.

Poor you; you really have it hard. I don't like the sound of those biting bugs at all - mine is still at the crawling bug stage and I fervently hope it remains there. I started on neupro after augmenting on pramipexole but I had quite a long period (about 4 months) of no dopamine agonist after stopp...

Do you mean that you need to use dumbells/push-ups - during 'bad bad' - for temporary relief of symptoms - I mean just while you are doing the exercise - or does it have a more lasting effect? My foam rolling experience only occurred once - I never used the foam roller again while I had symptoms in ...

Dear Badnights, thank you so much for your post about my 'alerting'. By coincidence, I came to the same conclusion regarding the problems with sleep deprivation and about a week ago I resorted to taking some of the Lyrica (pregabalin) tablets I have left over from the summer, noting that a number of...

Thank you very much for taking the time to set out your exercises so carefully. I too have had a feeling that my problems were founded in my lower back - at least when just the legs are affected - it's different when symptoms are in arms and torso. I will give your exercises a try. Thanks again.

Yes; I have a similar recollection of Dr. Earley's webinar.

It just keeps getting worse! Well done for the protest march but bloody bad luck to drop the precious methadone half. It is very interesting though to hear you on pramipexole and methadone. I knew you took the two but not exactly why. Also, if you don't mind my asking, how much gabapentin did you ta...

Wow, it sounds very scary although top marks to your house which aside from riding earthquakes well also sounds very picturesque.