Restless Legs Syndrome (RLS) Discussion Board

While this did not happen to me, I thought this was too important not to include in here. From the link, "We suggest that ropinirole, like all other dopaminergic agents, be used with caution in psychotic patients and those vulnerable to psychosis." Here is the link: m And in case there is a problem ...

Ah, you gotta love that lovely test. It falls into the same category as pantyhose - only a man could have invented it.

Hope you are feeling somewhat better.

Ann

Yep! We have suggestions and lots of them. First, so sorry for the dx. It is great to know what the problem is, but this disorder can be so disruptive. The way I see it, you are doing the best thing you can - learning as much as you can. Not only will doctors push specific drugs inappropriately, mos...

Hi AZ. That's a tough question to answer; we are each so different regarding what we respond to. For example, some people swear by Klonopin, other people say it doesn't do anthing. Other people love Neuronin, but it sure didn't help me. And, yet other people like to take a little of this with a litt...

Oh, Penguin. You must feel so frustrated and tired of all of this. I wish I knew what to do and say to help, but all I can offer is my concern and hope that the flare will be over soon, very soon. Jannie is right, please call your neuro in the morning.

Ann

Hi guys - welcome to both of you, but truly I am sorry you had to find us. Golfdude, I can't say I've ever heard of cholesterol drugs causing RLS, but lots of other drugs will bring it on. Could you be taking anything else? Lots of OTC things like Benadryl will cause it. You could also have a proble...

Hey, franklam, welcome to the board. You know, each of us describes RLS so differently! The best way to determine if you have it is to answer the following questions - there is no test at this time to asses if you have RLS, just these questions: Do you have a strange sensation in a body part? Does i...

tashton, so sorry no one responded. Probably none of us have gone through withdrawal from it. I do know you need to stop it slowly or you can have seizures, but I don't know anything else. I'm guessing you've found other information by now. If not, I'm sure a web search would find something. Oh, I k...

The algorithm definitely looks complicated. But, it does makes sense after you get the hang of it. I'll give you the simplified formula as I understand it. For all RLS, start here with lifestyle stuff: cut out caffeine and alcohol and nicotine; see if any foods are a trigger and stop consuming them;...

Oh, Ruby, what a tough spot to be in. Between lousy sleep and the constant fatigue from the fibro, I've honestly always been amazed at how much you accomplish. I'd be exhausted if I were you. You do a lot for many masters. Your story reminded me of my own past. About 15 years ago I was working on my...

Fates, maybe one of the reasons only Jan replied is that it is so hard to recommend a drug to someone else. They work so differently for all of us. In addition, it depends on how frequent your RLS is - one thing might work great for periodic RLS, but wouldn't work at all for daily RLS. If this isn't...

Thought that some might benefit from this being at the top.

Most people don't have any withdrawal if they take it for a month or less. After one month, some people have minor symptoms, but most don't start having withdrawal symptoms until they have been taking it for 2-3 months at the least. It really is very different for everyone. Some people take it for y...

Mirapex has completed its studies and has filed in Europe and the US for approval of Mirapex to treat RLS. The European equivalent of the FDA gave their thumbs up to it this week. m To me, the most interesting part of this article is the AMOUNT of drug that they are recommending. Up until now, docto...

Dottie, that is interestingm and it concerns me! According to a doctor on the RLS board, there is a protocol to follow when notifying a company of a problem. It sounds like your doctor did that by having you sign that letter. Maybe they don't have to do anything until they get a certain number of le...