Search found 439 matches

by Frunobulax
Tue Mar 19, 2024 11:25 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Melatonin added to the mix
Replies: 42
Views: 32541

Re: Melatonin added to the mix

I've tried taking melatonin and it does nothing for me...I've tried different doses 1-MG up 5-MG and it seems to make my RLS worse.. My sleep doc says it can happen that melatonin production is impaired, but it's fairly rare. I'm among these people apparently as melatonin helps me. But this also im...
by Frunobulax
Tue Mar 19, 2024 12:14 am
Forum: General Topics: RLS
Topic: ANTHRAX VACCINES / LINKED TO RLS?
Replies: 5
Views: 299

Re: ANTHRAX VACCINES / LINKED TO RLS?

I'm guessing we have no Veterans on this site that had ANTHRAX VACCINATIONS during their military service? If anyone has had these vaccinations I'd appreciate a response..I'm just trying to figure out where this RLS/PLMD/OSA came from, something caused it. In many cases RLS will come from a combina...
by Frunobulax
Sun Mar 17, 2024 8:01 pm
Forum: Prescription Medications
Topic: Abilify
Replies: 10
Views: 219

Re: Abilify

BTW I found no studies but at least a blog entry that seemed to reasonably explain why Abilify works differently at low doses: https://thoughtbroadcast.com/2011/09/13/how-abilify-works-and-why-it-matters/ Low dose abilify (around 1mg/d) might actually be worth a try for RLS, because it seems to stab...
by Frunobulax
Fri Mar 15, 2024 2:35 pm
Forum: Prescription Medications
Topic: Abilify
Replies: 10
Views: 219

Abilify

There are a few hits regarding abilify in this forum -- which of you have taken Abilify and in which doses? Specifically, has anyone been on low dose Abilify? Background is that low-dose Abilify is pretty much the only drug that seems to work for ME/CFS, where people take Abilify around 1mg/d as opp...
by Frunobulax
Wed Mar 13, 2024 10:12 pm
Forum: Prescription Medications
Topic: Methadone causing Sleep Apnea?
Replies: 16
Views: 508

Re: Methadone causing Sleep Apnea?

Hey all, thanks for taking the time to review my post. I am a 38m and have had RLS since my early 20s. I have been through the gamut of medications and the opiate class has been the most helpful, with methadone providing 90% symptom relief. While I’m thankful for this, two problems have emerged: ex...
by Frunobulax
Wed Mar 13, 2024 10:09 pm
Forum: Prescription Medications
Topic: REQUIP DOSING GUIDELINES
Replies: 3
Views: 120

Re: REQUIP DOSING GUIDELINES

The maximum dose for Requip is 4mg/day, but the experts prefer it to be limited to no more than 2mg/day. Buchfuhrers book (that I believe to be one of the best resources on drugs out there) even recommends 1mg/d as maximum. @buglegs As with other dopamine agonists, Requip will work in fairly small ...
by Frunobulax
Wed Mar 13, 2024 8:38 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Use of Potassium Citrate for RLS
Replies: 6
Views: 6669

Re: Use of Potassium Citrate for RLS

So I read it. And don't like it at all. Red flags: First, it was not randomized and placebo controlled, but the study says "randomized" but never elaborates what exactly was randomized. (There was no control group, so how did they randomize patients?) Second, no word on any drugs the patients were t...
by Frunobulax
Mon Mar 11, 2024 8:50 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: STUDY: NEAR-INFRARED LIGHT DECREASES RLS SYMPTOMS
Replies: 12
Views: 404

Re: STUDY: NEAR-INFRARED LIGHT DECREASES RLS SYMPTOMS

830 NM LIGHT-EMITTING DIODE (LED) PHOTOTHERAPY SIGNIFICANTLY REDUCED RETURN-TO-PLAY IN INJURED UNIVERSITY ATHLETES: A PILOT STUDY John Foley,corresponding author David B Vasily, Jeanna Bradle, Catharine Rudio, and R Glen Calderhead I will not rule out the possibility of any therapy, including near ...
by Frunobulax
Sun Mar 10, 2024 12:34 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: STUDY: NEAR-INFRARED LIGHT DECREASES RLS SYMPTOMS
Replies: 12
Views: 404

Re: STUDY: NEAR-INFRARED LIGHT DECREASES RLS SYMPTOMS

Because heals at a cellular level by enlivening chromosomes, there is literally no medical or physical condition that it can't help. And I'm sure you can back up this claim using scientific, peer reviewed studies? I do not doubt that it will help certain conditions, but to me this claim sounds like...
by Frunobulax
Sun Mar 10, 2024 9:08 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: STUDY: NEAR-INFRARED LIGHT DECREASES RLS SYMPTOMS
Replies: 12
Views: 404

Re: STUDY: NEAR-INFRARED LIGHT DECREASES RLS SYMPTOMS

Because heals at a cellular level by enlivening chromosomes, there is literally no medical or physical condition that it can't help. And I'm sure you can back up this claim using scientific, peer reviewed studies? I do not doubt that it will help certain conditions, but to me this claim sounds like...
by Frunobulax
Fri Mar 08, 2024 12:26 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: 2 STUDIES: Yoga produced significant improvement in RLS symptoms and severity
Replies: 15
Views: 639

Re: 2 STUDIES: Yoga produced significant improvement in RLS symptoms and severity

I just find it curious that people on medication keep popping onto this board to pick the scientific studies apart. [...] The people on this board are telling me that their RLS is extreme and the only solution is medication. That's another way of saying that my RLS wasn't extreme because natural re...
by Frunobulax
Fri Mar 08, 2024 8:19 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Melatonin added to the mix
Replies: 42
Views: 32541

Re: Melatonin added to the mix

I'm curious if those of you who have reported success with smaller doses are still having good results with no worsening of RLS. Where are you finding lower dose tabs? I just checked Costco and see nothing but 5mg dose. Maybe someone else knows more, I only know that there must be different brands ...
by Frunobulax
Fri Mar 08, 2024 8:04 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: STUDY: Vitamin D Lessens the Severity of Restless Legs
Replies: 7
Views: 192

Re: STUDY: Vitamin D Lessens the Severity of Restless Legs

True, too high doses are dangerous. Unfortunately we don't really know where the cutoff is. There are only case reports, to my knowledge there isn't a single study linking high vitamin D intake with negative effects. And a lot of these cases are, um, a bit of a stretch. I remember researching cases ...
by Frunobulax
Thu Mar 07, 2024 9:03 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: STUDY: Vitamin D Lessens the Severity of Restless Legs
Replies: 7
Views: 192

Re: STUDY: Vitamin D Lessens the Severity of Restless Legs

Our study identified an association between vitamin D deficiency and RLS. Consequently, vitamin D deficiency should be considered in the management of RLS. [...] The serum VitD level is generally lower in patients with RLS than in healthy people, and lower serum VitD level is associated with more s...
by Frunobulax
Thu Mar 07, 2024 8:55 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: 2 STUDIES: Yoga produced significant improvement in RLS symptoms and severity
Replies: 15
Views: 639

Re: 2 STUDIES: Yoga produced significant improvement in RLS symptoms and severity

That's great. But this is the Non-prescription Medicines, Supplements, Diet board, for people that want to avoid taking medications. Not sure I like that wording. Many people who have to take drugs look for nonpharma interventions. As they should, because drugs typically come with a hefty pricetag ...