Restless Legs Syndrome (RLS) Discussion Board

Monday, April 8 Welcome to Beachflyernow, who has had RLS for over 30 years. Her condition worsened in 2005 and she is now on medicine but it has caused a large gain in her weight. She would be very interested to learn of any effective treatment that could possibly take the place of her medical trea...

Monday, April 8

Welcome to

twitch, who has learned to get around the symptoms and can perhaps help others with RLS...

We welcome any suggestions of new ways to address the symptoms of RLS. Please post a note and tell us more.

Beth, you interpreted our comments correctly. The show did a good job of showing what it is like to have RLS. The part that sticks out in my mind is a segment where the guy filmed himself on the couch at night and was flailing around uncontrollably with full body RLS. He said that this was unusual f...

Saturday, April 6 Welcome to annieluigi, whose RLS equals misery. She had no quality of life for years due to RLS. She is a senior and has dealt with RLS since she was in her 20's. From her mid 50's on it became a constant every night. She is old enough that she has tried it all. Started with quinin...

John, I was on the patch for 15 months after augmenting on pramipexole in a year. At the time, the patch was still new in the US and the experts were hoping that the time release nature would make it resistant to augmentation. Well, I augmented after 15 months going from the 2mg patch up to the 4mg ...

Although timing is a matter of what is most convenient to you, I think that may apply the patch shortly after getting out of the shower. Although it is waterproof and I never had one come off during the 15months that I used it, there have been a few who have had problems with it staying adhered to t...

Saturday, April 6 Welcome to tjones, who has had RLS for about 50 years. It is the worst thing ever. Nights can be bad with no or little sleep. tjones has tried most of the drugs for RLS. was on Mirapex for several years 1mg 3 times a day. Have had augmentation lately. Talked to Dr two days ago and ...

Saturday, April 6

Welcome to

Sleep375, who has RLS and wants to learn how others manage it.

Please post a note telling us about your RLS and what you are doing to manage it so that we can offer you some suggestions to discuss with your doctor.

Thursday, April 4 Welcome to Don di, whose RLS is resulting in very little sleep and being exhausted all day. Please post a note telling us what you are doing to manage your RLS and asking any questions that you have. We should be able to offer some suggestions to improve your situation so that you ...

Thursday, April 4 Welcome to dzroach, whose son has PLMD and so is looking for support groups to help him and our family with his diagnosis. For a list of support groups, take a look at the RLS Foundation's website. They also have a lot of literature on pediatric RLS and PLMD. We also have a number ...

John, in some ways, augmentation is a side effect of taking a DA. Unfortunately, it is permanent in that you will rapidly augment again if you try to go back to that DA. Some are able to switch between meds where they limit the use of that DA to no more than 3 or 4 days in a row. So recent research ...

Wednesday, April 3 Welcome to Gab821, who is 40 years old, has been suffering from RLS since a teenager, however, in the past two to three years the condition has worsen terribly and it affects Gab821's entire body (not just the legs). Episodes are very aggressive and have become intolerable. Gab821...

Wednesday, April 3 Welcome to Leecien, who worries every night about what lies ahead. Leecien gets up repeatedly as walking is the only thing that offers relief. Leecien is currently on ropinerole but is fearful of augmentation. Please post a note telling us about your dose of ropinirole so that we ...

Welcome to the group. First off, 1mg of Mirapex per day is a large dose for RLS. Although Parkinson's patients can take more than 4mg/day, the max recommended for RLS is 0.5mg and one expert even says that the limit should be 0.25mg. You description of your escalating dose sound a lot like you are e...

Monday, April 1

Welcome to

Alliekins55, who is suffering from RLS that is torture.

Please post a note telling us about what you are doing to manage your RLS so that we can offer suggestions to reduce to "torture" levels.