Restless Legs Syndrome (RLS) Discussion Board

Saturday, June 22 Welcome to Sueguz53, who started having symptoms when she was a teenager. It came and went during younger years but became really bad about 5years ago. Please post a note telling us what you are currently doing to manage your RLS so that we can offer you some suggestions for improv...

Saturday, June 22 Welcome to Janetbo, who has a cold and is taking medications that increase her symptoms. Usually she can manage by avoiding medications, caffeine, etc. She wants to see if she can find help for managing when she has a respiratory infection. The problem is the Bendryl that is in you...

Friday, June 21

Welcome to

Doreen, who cannot travel by plane as her RLS makes it impossible.

Please post a note so that we can offer you some work arounds that make traveling by air possible.

Friday, June 21 Welcome to LisaAnn27, whose RLS has put a stop to her normal life. She dreads waking up in the morning and especially going to sleep at night. She needs help and advice. Please post a note telling us what you are doing to manage your RLS so that we can offer you some specific suggest...

Friday, June 21 Welcome to madjean, who can't sit down starting early afternoon to relax or read a book. She can't sit through a movie or a play. She can't drive for more than 30 minutes at a time. She wakes up during the night even after taking medication. She has a gambling problem due to the medi...

Friday, June 21 Welcome to Lola Girl, who is 37 years old and has had RLS since age 15 but didn't get diagnosed until a few years ago. She started medications and experienced augmentation and had to really fight her doctor to acknowledge that she was experiencing problems from the medication. She no...

Not only do the opioids provide relief to movement symptoms directly rather than thru sedation, many of us experience the side effect of "alerting", where the opioid actually produces an insomnia like effect. For those of us who experience opioid induced insomnia, we have to take our meds early enou...

Tuesday, June 18 Welcome to lion1973, whose RLS has prevented lion from getting quality sleep for years. Medicines prescribed for RLS affect lion's voice -- coughing and raspy voice so lion can't take them. Please post a note telling us what meds that you have taken that cause issues with your voice...

Monday, June 17 Welcome to Phass, who us up and down all night, which causes lack of sleep, so Phass needs to fine a new medication. Please post a note telling us what you are currently taking, what you have tried and asking any questions that you have. We should be able to offer you some suggestions.

Monday, June 17 Welcome to holmesd, who has suffered with RLS since 4-5 years old. It has been maddening at times. However, now it is a daily ordeal requiring medication. holmesd knows it is a matter of finding the right information to help. You have come to the right location for info on RLS. If yo...

Monday, June 17

Welcome to

pwags, who is currently suffering with RLS that is not controlled by meds

Please post a note telling us about the meds so that we can offer some suggestions of changes that you can make that will reduce your suffering and get you more sleep.

There have been studies done by groups such as Johns Hopkins that compare the fraction of patients who augment on different DAs over extended periods of time. There are probably a few "outliers" that can go for decades, but the majority of patients will have augmented on most of the various products...

Oxycodone ER does not last as long as methadone, the half life is still only 4 to 6 hours compared to about 24 for methadone (methadone varies a lot between individuals). You should talk with your doctor about whether you need a second dose during the night or whether changing to a longer half life ...

Sunday, June 16 Welcome to pika, who twenty years ago had to go out on (temporary) disability from a teaching job as pika was falling asleep at the wheel driving home, and too to be able teach well. Getting diagnosed was a long rocky road as the school district sent pika to a psychiatrist! Eventuall...

I used to be a competition class runner and I never saw that any of my meds or RLS really had much effect. As for your oxy, it is only effective for a few hours, which would explain why it doesn't get you through the night. When given for pain, it often has to be taken at least four times a day. Tha...