Search found 275 matches
- Wed Apr 06, 2022 2:32 pm
- Forum: Prescription Medications
- Topic: Has anyone tried buprenorphine?
- Replies: 54
- Views: 11165
Has anyone tried buprenorphine?
BBC has a video on RLS today. Most is common knowledge on this website. But one woman who described severe RLS like I suffer from, says in the end she got complete relief from buprenorphine. I looked it up and found it similar to methadone which I doubt a doctor in Florida would prescribe. Just curi...
- Fri Apr 01, 2022 2:54 pm
- Forum: Non-prescription Medicines, Supplements, Diet
- Topic: %Saturation running high after supplemental iron. problem? Solution?
- Replies: 8
- Views: 7722
Re: %Saturation running high after supplemental iron. problem? Solution?
My most recent iron checks show Ferritin at 135 and %SAT at 41. My GP keeps ordering an iron profile that shows iron at 122 ug/dL, binding of 296 and UIBC of 174 mg/dL. I took oral iron religiously for over a year at the recommended levels and with C. I hated it. Like giving a kid caster oil. It bro...
- Thu Mar 31, 2022 10:04 am
- Forum: Prescription Medications
- Topic: How are you doing on Horizant?
- Replies: 5
- Views: 2444
Re: How are you doing on Horizant?
Thx for the replies. I'm currently on 2 mg Clonazepam and 300 mg pregabalin. I have some ropinirole I was going to try occasionally but a seminar by the Harvard doctor made me think going on and off was not a good idea. So I'm thinking of taking 1/2 mg. a day and see how that goes. My doctor doesn't...
- Wed Mar 30, 2022 3:36 pm
- Forum: Prescription Medications
- Topic: How are you doing on Horizant?
- Replies: 5
- Views: 2444
How are you doing on Horizant?
I see generic Horizant will not be available until after June 10, 2029. It's about the only drug I've not tried for RLS, mostly because of cost but also I thought it was a patch, which does not appeal to me since I'm in the water all the time. I'm not sure how much my Medicare drug plan would cover,...
- Sat Mar 26, 2022 5:06 pm
- Forum: Prescription Medications
- Topic: Clonazepam CAUSING/aggravating RLS ????
- Replies: 2
- Views: 1704
Re: Clonazepam CAUSING/aggravating RLS ????
I've been on Clonazepam for over 25 years. I have lifelong RLS. Took a year off Clonazepam eight years ago and it was a disaster. My doctor advised me to go back on after the worst year of my life on DAs. After that Clonazepam no longer gave me the undisturbed, RLS pain free sleep. I always thrashed...
- Tue Mar 15, 2022 3:30 pm
- Forum: Prescription Medications
- Topic: Quality Care Centers
- Replies: 10
- Views: 2000
Re: Quality Care Centers
I am really looking for a plan, not a prescription I can't get filled. Or give IV iron a try. I'd stay somewhere for a week or whatever to give it a try. At 65 I'm very worried about what this will be like when I'm 80. My neurologist will prescribe anything he is allowed to in Florida. I saw a secon...
- Sun Mar 13, 2022 8:11 pm
- Forum: Prescription Medications
- Topic: Quality Care Centers
- Replies: 10
- Views: 2000
Re: Quality Care Centers
Steve, thanks for the leads. That's exactly what I'm looking for. Badnights I have been prescribed Tylenol with Codeine and it makes me so constipated I can't imagine opioids but I have no experience with Methadone, etc. Living in Florida with our state government, I doubt very seriously I could get...
- Fri Mar 11, 2022 3:45 pm
- Forum: Prescription Medications
- Topic: Quality Care Centers
- Replies: 10
- Views: 2000
Re: Quality Care Centers
Thank you badnights but after 65 years in Florida, I think I'll finish up here. I live in Paradise in spite of the crazies. I guess I'll try Atlanta next but I read they don't do IV Iron, and I think that I think is my last shot at real relief. And that is a real shot in the dark. Right now I'm tryi...
- Mon Mar 07, 2022 5:28 pm
- Forum: Prescription Medications
- Topic: Quality Care Centers
- Replies: 10
- Views: 2000
Quality Care Centers
I finally got in a position where I could drive 2 days from Florida to Baltimore and see a Quality Care Center specialist at John Hopkins. They are no longer accepting out of state patients because of prescriptions. I have searched Florida, spent thousands and found nothing. I've seen 3 neurologists...
- Thu Feb 10, 2022 12:06 am
- Forum: Prescription Medications
- Topic: Clonazepam and Doctors
- Replies: 42
- Views: 14510
Re: Clonazepam and Doctors
I hope you find a way out. Let us know.
- Fri Dec 17, 2021 8:06 pm
- Forum: Prescription Medications
- Topic: Carbidopa-Levodopa
- Replies: 6
- Views: 2265
Re: Carbidopa-Levodopa
My experience of taking C-L 1 day was 2 days of borderline hallucinations. Not like being sedated or high but like an out of body experience. I can’t even remember how the RLS reacted. I got off Clonazepam over 6 months using Gabapentin which was hell. Maybe my sights were too high but I did not fee...
- Tue Nov 16, 2021 6:22 pm
- Forum: Non-prescription Medicines, Supplements, Diet
- Topic: Iron supplementation Timimg
- Replies: 7
- Views: 7438
Re: Iron supplementation Timimg
I religiously took the recommended Iron and C for well over a year. Never heard of the evening thing. I found it hard on my empty stomach. I saw no improvement of symptoms and (unscientific) had less after I quit. I would have a hard time convincing myself to do it again.
- Tue Nov 16, 2021 6:03 pm
- Forum: Non-prescription Medicines, Supplements, Diet
- Topic: I have reduced my symptoms by 90% and couldn't be happier!
- Replies: 4
- Views: 6720
Re: I have reduced my symptoms by 90% and couldn't be happier!
Glad you are doing so well. We are the same age and I have had RLS since I was a kid. It went from a major annoyance (my whole life) to a painful daily ritual when I got off 2 mg Clonazepam and tried everything else ending up on Requip. It worked like a miracle until in a few when weeks it didn’t. M...
- Fri Oct 15, 2021 10:10 pm
- Forum: Physical Treatments
- Topic: Exercise and RLS
- Replies: 8
- Views: 11609
Re: Exercise and RLS
I have recently found something that does work for me. I have been getting up in the middle of the night and walking around for decades but recently started doing squats every few steps as I make my way around the house. Once back in bed I seem to drift off relatively quickly. My main restlessness, ...
- Sat Oct 02, 2021 4:20 pm
- Forum: Physical Treatments
- Topic: Exercise and RLS
- Replies: 8
- Views: 11609
Re: Exercise and RLS
I was never a natural but ran 15 miles a week for over 30 years. When I retired I did elliptical and weight training. Now since COVID I have turned into a couch potato. It has gotten worse over the long term but I never thought working out changed the RLS.