Restless Legs Syndrome (RLS) Discussion Board

Thursday, December 12 Welcome to perchi, who wakes in the night and wondered what everyone else does. We all have something that each of us uses to kill time until we can get back to sleep. Some walk, others read or play games, etc. If you post a note I am sure that you will get a multitude of diffe...

My Mirapex dose is 0.25mg and I augmented first on mirapex, then on Neupro and went back on Mirapex because I was about to do an interstate move, so I had to wait until I got in with a new doctor before starting opioids. As for clonazepam, I take a 1mg Quick Dissolving Tablet and learned that I have...

Wednesday, December 11 Welcome to henrydavidthoreau, who has had RLS for about 20 years and always thought it was associated with sertraline. She takes DA meds and id curious to know more about RLS. Experience strong symptoms immediately if she doesn't take her DA meds every night. Please post a not...

I also have UARS and have used an auto CPAP for it for years even though my AHI has always been below 10. However, not that I am on an opioid, my neurologist keeps asking me if I am continuing to use my CPAP and if I am checking the results each day. I reassure her that I do. I don't know how much t...

Tuesday, December 10 Welcome to kshowen, who has had RLS since childhood. It affects her quality of life (lack of sleep, social barriers, travel barriers, depression, etc). She has refractory RLS; many medications tried; they work for a while, then a new med needs to be tried, so on and so on. Pleas...

I have never had the issues that you mention with gabapentin, but then I have only been to 1200mg/day. You did not say what time of day that you take your methadone. Many doctors advise you to take it at bedtime thinking that it has sedative qualities. I found exactly the opposite. Methadone added t...

Monday, December 9

Welcome to

irazig, who has suffered with RLS & is seeking ways to control it.

Please post a note telling us a bit about your symptoms and what you are currently doing to manage them so that we can know where to start with our suggestions.

Monday, December 9

Welcome to

Carolynbtt, who has RLS and wants to keep up with treatment developments.

You can get an idea of the latest research by looking at our General Topics Forum's Published Research discussion.

The general guidance is that caffeine can be a trigger for RLS. It isn't that way for everyone, but it happens frequently enough to make it something that should be on the top of the list of things to avoid until you figure out otherwise.

Friday, December 6 Welcome to js1589, who has had RLS and PLMS for about two years, controlled at the present time through medication overseen by a neurologist. JS is concerned about augmentation and how to deal with that. RLS is a maddening condition, and it's important to understand more about it ...

Friday, December 6 Welcome to jqrestless, who is experiencing augmentation and can't find relief. Please post a note telling us which dopamine agonist is causing your augmentation, your current dose and what instructions you have been given. That way we can offer some suggestions on how to survive w...

Thursday, December 5 Welcome to SCHNIBBLER1, whose RLS keeps her awake at night. Sometimes when she is sitting for prolonged times it'll also kick in. She is currently doing Physical Therapy for it and it's helping. Please let us know what sort of therapy that you are doing and whether you are getti...

Thursday, December 5 Welcome to Starkloph, who has had RLS for several years and it is getting worse. Stark dreads each night due to not knowing if it will be easy to sleep or not. Most nights it is not. Stark cannot sit for long before the RLS starts up and so is looking for possible ways to minimi...

Wednesday, December 4 Welcome to T-Rich, who has had severe RLS for approximately 5 years and has tried almost everything with varying results. Most of us have found that it takes some experimentation to find our individual treatment plan. If you will tell us what you have tried, what works and what...

Monday, December 2

Welcome to

mkarp, who can't sleep due to aches during rest and leg drags while walking.

Please post a note telling us if you have officially been diagnosed with RLS and what you are doing to manage the symptoms