Restless Legs Syndrome (RLS) Discussion Board

Hey guys, I am on methadone (10mg in morning, 5 mg in evening) and I LOVE IT!! Best coverage ever (I have symptoms 24/7) with no mood swings or other side affects. However, when I forget to take the morning pill, like this morning, and only remember because symptoms are raging, I know it will take a...

Jaybird8-

No depression issues for me. I did have nausea for first week or two. It wasn't bad and it does go away

I was lucky enough to get a nurse practitioner who worked with Dr. Allen. She used percocet and neurontin to help me taper off 3-4 mg Ropinirole (this was back when 4 mg was "ok" per FDA). I found weight gain on neurontin to be unbearable so I switched to just percocet (10-15mg/day) in 201...

Oh dear, good point! And methadone has such a long half life....who knows when it would be gone from my system. Yup, you are right. I better stick with my hot water bottle and warm baths for the break-thru symptoms. I hope my current regimen works forever but if it doesn't, I will give kratom a shot...

Thanks for keeping my hopes in check!! I even had the manufacturer calling to see if I wanted to buy a "floor model" at discount price or something. But I have symptoms day and night and didn't see how it would help me while sitting at a desk, etc. I also have, at least what I consider to ...

Thanks Mary! I have ordered it . I really appreciate someone doing all the research for me haha. I think that is a big part of why I haven't given Kratom a shot yet...seems overwhelming (what type, where to buy it, how to dose it, etc). I would love to have a "quick shot" for symptoms that...

I consider 20 minutes a quick fix!! Do you use any meds besides Kratom? I have noticed a big increase of discussion of Kratom over the last year on this board. Knowing my luck, I'll start using it in a pinch and it will get outlawed haha. Can I PM you and get details on which type/strain and where y...

What is the "kick-in" time for Kratom? Once I experience full blown symptoms, it is way too late for methadone. I try to keep a very level dose in my body (I have 24/7 symptoms) but if it sneaks up on me, as it just did during a 2 1/2 college course, I am pretty much screwed. I would love ...

It was a pain, but my doctor and pharmacy were willing to dispense 3 months worth of percocet for an overseas trip. My insurance company was the biggest hurdle!! I had to pre-pay our insurance premium for 3 months before they would cover the script. I certainly would not rely on getting opiates over...

I took 3 months worth of Percocet from the US to Germany a year ago, despite knowing that I was only allowed to take 30 days worth into the EU. I put the pills in a vitamin bottle and had a letter from my doctor and the original prescription receipt, all in my carry on bag. I just travelled to Engla...

Is hydromorphone available in the US? I do love my methadone, I know it is the gold standard, but sure would love a bottle of something that is instant release (ok, 20-30 minute release). If I screw up the timing on methadone, I am in for a hellacious 24 hours. I also don't know how it will work on ...

One of reasons I so look forward to reading this forum is exactly that, Polar Bear, we are all so supportive of each other. I am sure I have done and said things on this board which have the old timers shaking their heads but constant chronic pain can make us all a bit crazy . I have gotten so much ...

Thanks Ann, I sure am hoping. Today was a quirky day. Around 2:30pm I couldn't figure out why my legs hurt so bad. I thought I remembered taking my 10mg pill around noon, as I usually do. I thought, DANG ME!! I can't be ready for my 5mg booster already but my legs REALLY hurt!! So I counted my pills...

You are sleeping DESPITE your fear of not sleeping! That is terrific. I think you can relax now and stick with your Hydromorphone and Carbamazepine and enjoy the ride. As my journey has taught me, we have to be grateful when we find a combo that works, for however long it works. No sense in worrying...

I'm in my seventh month with Methadone. 15 mg is the sweet spot. Some days I only need 10mg but the next day I will wake up writhing. Taking 10mg at mid day and 5mg in the evening keeps me fairly symptom free and doesn't make me groggy the next day (as happens if I take it too late in the evening). ...