Restless Legs Syndrome (RLS) Discussion Board

MikeS-ditto to responses so far: I would strongly encourage you to contact the nearest RLS Quality Care Center: https://www.rls.org/treatment/quality-care-centers It is worth the travel time and expense you can spare; this is your health after all. And it is enormously helpful to find a doctor who c...

Hey Icantsleep—your frustration makes perfect sense. What you’ve described is a complete RLS Kafkaesque hell, which probably feels so hard to bear. It’s truly an awful place to be. Having myself augmented twice from Requip and Mirapex, I have much empathy and compassion for you. I hope your appointm...

Hey walkerwear—just wondering if you and your spouse have been to Mayo yet? Was/is his appointment in Rochester or one of their other sites? I ask because I went to the sleep clinic in Rochester. I was there more than 2 hours: half hour with a nurse for vitals, current meds, etc, then over one and a...

Given my not-so-long use of kratom, I nonetheless have found out how much the “strength” of a strain or batch can vary. For most of the year+ I’ve been taking kratom, I’ve used red bornea from the same vendor. Until recently, 2-3 grams taken 1.5 hours before bed was just right for my RLS symptoms (i...

Hey Icantsleep—very sorry to read the hell you’re going through!! Absolutely god awful describes it very clearly & my empathy goes out to you. Just writing to say hang in there, that’s there’s someone out here in RLS land tonight sending good energy your way, and I very much hope your night is a lit...

Thanks for your reply. My family doctor does not really know about RLS, and I don’t think the local sleep doctors do either. I also have sleep apnea, diagnosed after a sleep study about 7 years ago, but I don’t think that doc knows anything about RLS. So I am thinking of asking her for a referral t...

ViewsAskew wrote:Truly makes my mind a crazy place. Lucid dreaming, frequent awakenings, hot flashes and have to cool off before I can sleep, etc.

ViewsAskew-you describe me & and my head on any given night-with or without DAs or opioids

I was unaware how problematic augmentation would be I am generally terrified when thinking about what few options I have to combat my severe RLS I am currently unable to care for my children (this was already a slight challenge ) Basically, I need all the help and support I can get , and will gladl...

I would give up a lot to be able to sleep 8 hr a night. OMG—so with you on that! Reading this thread because I’ve an appointment this Tuesday with a specialist in San Diego and reading up on people’s experiences with methadone. My current cocktail is a DA (Neupro), oxy, and Horizant ER. I’ve been p...

Hey Taco Bill—I was very relieved when I saw you had posted today; I was checking everyday hoping to see something from you. While I’m very saddened to read how wretched things seem and feel right now, I’m encouraged you’re helping yourself by sharing and that you shared with an amazing emotional ho...

Frunobulax wrote:I can't believe that we ignore all this research in our way of life (and most of all in our health system).

Right?!?

Bridgercan, I wonder if the IV iron simply couldn't overcome the augmentation. If you had not been augmenting, maybe you would have noticed a benefit. Did the infusions affect your ferritin concentration at all? Hmm-perhaps. I began augmenting May 2018, went cold turkey off pramixepole early June a...

Fascinating discussion and research. Pardon the pun, but my gut says we’re getting closer to uncovering what the links between the gut microbiome, BID, and RLS symptoms are. My gut also agrees with the hypothesis? theory? DAs somehow are damaging to the gut biome and are what lead in some way to aug...

I’m game, as I like to write too, and a foodie to boot. Though my spouse is the better cook, I do enjoy cooking when it’s time for me to pinch hit on whipping up dinner. Plus I need all the inspiration I can get to eat better and sidestep my big food RLS triggers (sugar, salt, and processed food) wi...

You’re welcome, Views. And thank you for the time, effort, and care you give to the forum as moderator! I’ve gain much insight and have regularly been moved by your posts. I am grateful to you and to all who participate here. This community has helped me understand and come to terms with a very baff...