Restless Legs Syndrome (RLS) Discussion Board

Ann, is there any chance that you could post a link to the Harvard study or can you remember the name(s) of the authors? I tried a couple of searches and did not find anything. This topic is something that is of particular interest to me since I am an MS caregiver and need to be able to stick around...

I had heard that vitamin D was required to build mylelin sheath, so I hunted all over for a reference for that. I learned that no studies I could find linked lack of D directly with myelin loss; it was assumed to be involved because of the geographic distribution of MS patients (more at high latitu...

First, I am not a doctor. I have been the spouse of an MS patient for 40 yrs. I have WED/RLS, so between the two of us we are familiar with the similarities and differences of these two conditions. My initial take on your situation is that it does not sound like MS, but then MS strikes everyone diff...

For me, driving in town does not cause problems. But if I get out onto the open roads, my legs are going to start acting up. Initially I loved cruise control because that meant my right leg did not cramp up after many hours. Now, it is a necessity so that I can regularly flex both of my legs. Intere...

Karalea, I want to reinforce what averrik said about Social Security disability. We fought through this for my wife. The first stage of review is handled by the state. The numbers we were given were that 85% of applications are turned down at this stage (so only 15% are approved). You have the right...

I started using a tablet computer, which I can carry with one hand and operate with the other. It does almost as much as my laptop and can run any of the e-reader software. I download books from Amazon and can read while walking around the house. The only "obstacle" is our cat and she know...

Beth, thanks for all the great information. The abstract linking iron deficiency and a decrease in myelin is the first time I have seen anything proposing a mechanism for how low iron in the brain has an impact. As for this link following your comment - We are also more sensitive to blunt pressure, ...

(There was a study that found damage to the myelin sheath in WED/RLS - maybe just to its functioning; even if it was physical degeneration of the myelin, that is not cell death, therefore not "neurodegenerative") Beth, could you provide more information about this study on myelin damage a...

Thanks Beth. I have been reading quite a bit about augmentation and the problems that people go through getting off of DAs. It was my sleep doctor who originally prescribed Miraplex. I am fairly confident that he is aware of the problem since they have me on a fairly short revisit schedule for close...

Beth, I am currently being treated with aPAP set for a range to resolve my flow limitations (I have virtually no true apneas). Although I have not had any trouble adapting to PAP therapy(I am an avid scuba diver so a mask on my face and breathing compressed air seems normal), I cannot say that the a...

I found the bruxism/migraine/WED study after my previous post. Here is the link: m In addition there is a new study that looked at the treatment of migraines with pramipexole. The initial results on a very small group looked promising, although they admitted that they could not explain why an AD wou...

I have suffered from migraines for about as many years as WED/RLS. I did an internet search on both, on a whim. I got a number of hits that indicate that there may be a connection and that research may eventually find a common cause. Here is a link to a somewhat recent technical paper that reviewed ...

Yes, my doctor had my ferritin tested at my last visit. The number came back as 43. I am currently taking iron tablets twice a day and it seems to be helping in that the Miraplex was only working for 23 hrs and now I am usually able to get to the next pill with few symptoms. I go back for my followu...

I first started showing symptoms of WED many years ago. My work required me to travel internationally and the 8-24 hr plane rides could be unmitigated torture. It was the outbound trips that were really bad. Return trips were generally not too bad, even though I was usually exhausted from the stress...

I suppose that anyone with any condition needs to get "up to speed" but it seems that you have two conditions that require extra work. Many doctors are not familiar with them, so you have to know more than someone with another condition, say diabetes type II, would have to. You are clearl...