Restless Legs Syndrome (RLS) Discussion Board

Monday, February 3 Welcome to pattywon, who inherited RLS from her father who has been battling it since he was in college. Her first memory of RLS related insomnia occurred when she was ~10 years old sleeping at a relative's. She is now 31 and the condition has intensified as she has aged. Among th...

Dave, thanks for your kind comments. While I was on the inside, I kept telling the staff that they were preventing me from providing care for my disabled wife and from helping others through this site and one other that I help with. I guess that when you work at a place like that, you become quite j...

Monday, February 3 Welcome to miki, whose RLS has caused her to restrict her evening activities, including movies, dining out and extended travel. She is looking for coping strategies. We can provide you with loads of coping strategies. Take a look at our forums on Physical Treatments and Non-Prescr...

Dave, I had to way a day to respond because a couple of points that you made about your history hit a bit too close to home for me. You are in excellent hands with Dr Ondo. He was my RLS doctor until I moved away from Houston a few years ago. I was on the patch during most of my time with him and he...

Sunday, February 2 Welcome to Thia M, who has suffered with RLS for 20 + years and is no 64. She is plagued by severe symptoms in her legs and my arms. She gets short unrestful sleep. She has been prescribed a plethora of medications, but nothing truly helps. The give her brain fog or interact negat...

Saturday, February 1 Welcome to Edyb, who has had RLS for several years. It affects her hands and arms too. She takes Requip which only works moderately. She is lucky to get 4 hours of sleep. Please post a note telling us what dose of Requip you are taking so that we can offer you some suggestions t...

At one point my GP said that the max dose pretty much depends upon side effects, which are specific to the individual. But he joked that anyone who was trying to get high off of it could take over 3600mg at a time and that all they would get is a long nap.

Saturday, February 1 Welcome to gracelands618, who wants to learn more about meditations. Graceland's doctor doesn’t seem to know much. Unfortunately, ignorance of RLS is something that is common among doctors. Take a look at our forum on Physical Treatments and you may find something on meditation....

Saturday, February 1

Welcome to

jjdaly4127, who needs to be able to trade info on helping alleviate the pain of RLS.

Please post a note with some of the info that you would like to trade and we can begin that process.

His regular office is in Downey, CA (Los Angeles area). His phone number there is (562) 904-1101

Thursday, January 30 Welcome to golub, who has been suffering from RLS since at least 1999 and was finally diagnosed in 2016. golub has found the RLS organization extremely helpful and encouraging, but still has a few questions. Please post a note with your questions and if we cannot answer them, we...

Thursday, January 30 Welcome to hwinborne, who has lived with WED since age 19, more than 40 years. With age, other nagging ailments arise and it becomes more difficult to manage. So, hwinborne is looking for information and support. Please post a note telling us what you are doing to manage your WE...

Enigmaman, since your problem is PLMS and not RLS, do you think that it might be possible that when you stopped the patch that your PLMS returned to its old level and that your legs are tired because you have been kicking all night? In a 2.5 month period, you could have lost some of the muscle tone ...

Wednesday, January 29

Welcome to

Crazy legs, who RLS causes loss of sleep low energy level during the day.

Please post a note telling us what you are doing to manage your RLS and asking any questions that you have. We would love to be able to help you out.

Tuesday, January 28 Welcome to Carol Edwards, who has had RLS for at least 10 years now. It stops her from getting to sleep and often continues thru the night. She can't do movies or anywhere she has to sit still. So, she needs answers. Carol, if you will post a note telling us what you do to manage...