Restless Legs Syndrome (RLS) Discussion Board

I wish I had an answer, Deb. What have you been doing? I have never used it.

Let us know how it continues to work for you, Rick. And, hope your body is handling the chemo and radiation OK.

It is SO frustrating. I find mine needs to be at least 200 for any significant reduction (about 50%). But, it took me years to get someone to do that and I STILL struggle with the doctors and hematologists.

I started to ask the very first question above and figured that the poster had no idea why the doc said that. I REALLY want to know if there are any studies...I surely haven't seen any! I bet a lot of it is just personal experience. Which shouldn't be discarded lightly. Even though I fully agree th...

I wish I had some suggestions - hopefully someone else will. That is a long time to be awake - I imagine you'd really like to reduce that!

I have another update to my long slow taper off Ropinirole: at the 4 month mark, I am down to 1/3 of my original dose (0.5mg out of 1.5mg). Am also taking Gabapentin 400mg. I drop down every 19 days or so, and things are going pretty well! Most nights are very manageable-especially compared to last...

I was told my doctor that going straight from augmented Pramipaxole to opioids may require escalating does of opioids and/or more opioids to control symptoms. The rationale is that the by not taking a drug holiday the dopamine system never has a chance to return to baseline. When I hear this sort o...

I was told my doctor that going straight from augmented Pramipaxole to opioids may require escalating does of opioids and/or more opioids to control symptoms. The rationale is that the by not taking a drug holiday the dopamine system never has a chance to return to baseline. Hmmm - that is interest...

I'm sorry for the late reply, but I've had a lot going on and can finally get back on here and wanted to update you on the methadone. Turns out I did sleep well with the methadone and it did well for preventing the rls to act up, but I had to fight to stay awake all day and would find myself fallin...

Surgery itself can be the trigger, Donna. Many theories, but they don't really know why.

But a quick internet search suggests toradol is associated with increased symptoms!

The only I know about is that it affects Northern European ethnicities the most, and east Asian the least...that was years ago.

Stainless wrote: ↑

Fri Jan 13, 2023 4:49 pm

It's really helping me sleep on what otherwise would have been rough nights. Not very torn on whether to continue. Getting to sleep isn't such a wrestling match with my legs. Slept thru the night last night! A $60 pump dispenser might last a month.

That seems awesome to me!

Surgery often does make symptoms worse. Since this isn't surgery, I don't think it would be the same. But, just a guess.

Interesting, Rick. Which specialist did you see that said receptors permanently damaged? I think Dr Ondo was working on this...but I may be remembering incorrectly.

Thank you!