Restless Legs Syndrome (RLS) Discussion Board

Thank you. My good news, got samples of horizant and neupro, will start trying one fri. Just frustrating when to try different stuff and haven't found anything yet. I just want something dependable for a night or two here and there, that would really help to be able to intersperse the bad with a res...

Been reading a lot about this illness, most recently heart/kidney info and life expectancy info. I don't like it!!! And, I'm so tired of waking up feeling like crap every day. So tired of it all, that in fact I said "Oh my god!" in my sleep last night. Does anyone have any good news to sha...

Yes! #1 and #7. PMLS here, with probably a rare bout of RLS. I am 44, diagnosed with PMLS a few weeks ago. I remember at 6 years old sharing a hotel bed with my sister, my father haranguing me in the morning saying, "Do we need to get you a crib?! Only babies kick like that!" Because shami...

Thanks. I've only been on it about a week!

Hi jul,

Sorry for your rotten experience on it too. I'm having some breathlessness too! And general limb swelling. Yeah I'm gonna start decreasing it.

I'm not getting relief fast enough from MD.

Hi views, No it's not helping. I use free Camera Trigger app to videotape, it has a motion detector... I'm still trying the gaba to be a good sport. Waiting to hear from MD to see if I should keep titrating or stop since no response yet. I'm only up to 600. I feel totally exhausted and emotionally d...

I use a free app called Camera Trigger to motion trigger videotape on my samsung S2 tablet. I was using Wardencam but this is better. I find it helpful, validating, (and right now upsetting because I'm not doing well yet). But I like it bc it gives me data for the doctor. For example, I know there's...

Hi all, it seems 1/2 to 1 hr after taking gabapentin for plmd, I am actually getting restless leg movements while awake ( which I don't usu have), very large jerky movements. Is this possible or do I have "medical student syndrome" and going nutty? Thanks.

midnight, OMG 3x/min you poor thing! I'm glad it's improved a bit. Wardencam is truly the name of the app. It's awesome but you have to be very careful when you upgrade from free to paid version (one time fee of 5.99, very cheap!) I upgraded wrong and now it won't work. Tried to get help from them a...

thanks viewsaskew. No, no easy answers. I'm having that phenomenon where the rls becomes less tolerable when you feel like it's close to ending. Like after you turn in resignation for a job and suddenly can't stand to go another day.

I would like to add that I'm scared trying all these new drugs. I live alone and am not the kind of person who has friends who come and stay etc.

That sounds awful! I'm so sorry that happened to youi!

For me, tramadol gave me really bad heart palpitations. I can take 1 a week that's about it.

I have to add to the phenergan nightmare. OMG. Was given that once for food poisoning and I was moving everything! Trunk movements bolting up in bed every few secs. It was horrendous. They called the MD in who said cooly, 'I think you're having a reaction to the medication." I was so far gone I...

My MD is aware but wanted me to try gaba for a few more days...so tonight is the first night of that re-trial. I'm wondering of those who have been on it, did it make you dizzy? The sensation of dizziness is like my brain rolling around in my head. Like if I lean forward, there's a part of my brain ...

Yeah. I gave in and took the norco. My back rx is running low. I will switch to starting the gaba tonight!